Hi All
just thought id come and say hi and give yall an update.
Things have been disastrous for me. Mostly in the mental health respect. I have had to withdraw from graduate school.
My joints have not been great either but given the circumstances m suprised they are not worse. I got denied getting actemra. I went off remicade in anticipation of actemra, but since being denied i havnt gotten on anything else. Doesnt help that my hoorrible rheumatologist wouldnt call me back!
I just switched doctors. I have only seen the new one once but so far I like her. She wants an mri of my hands since MRIs are very sensitive to inflamation, and if we have more proof of disease I can be approved for actemra.
The new doctor is also sending me to PT. She thinks that a large part of my joint problems is due to hypermobility. which does actually make sense. So ill try. if PT works and I feel better great! If not-well at least im getting some good exercise!
So yea. lifes been pretty horrible. my joints hurt, but really its other stuff, im just really down on myself for having to withdraw from school because of all my issues.
sorry to hear about your school issues. Hopefully you can get things under control and go back in a year or so? I had to drop out of school due to a bout of severe depression. I was able to go back 1.5 years later and eventually did get my chem degree... just a couple years later than most of my original classmates!
yea maybe. I dont know if I want to go back. I want to go back to grad school eventually but I think I will study something different.
it just sucks. I feel like all my issues will get worse now that I dont have school as a distraction. I didn't think I would go back either.
really? I dunno I think ive learned that its not the career for me. I think i would have left even if it wasnt for all this crap with eating and fun mood stuff, I think i just left earlier than I would have had I been more healthy I did change my focus after going back; I ended up taking lots more math and stats classes, and some electrical engineering and comp sci courses too. Ended up doing scientific application programming rather than being a bench chemist.
Hi Mermaid, I assume when you say "denied for Actemra" it means that the insurance denied coverage, or didn't approve the medication? Did they give a reason? Or was it just a simple "no"? What role does the doctor play in this decision? Thanks!
Roland
Good luck appealing the Actemra denial. That just plain sucks. My insurance co. fought me tooth and nail. I hope your new RD is going to go to bat for you.