Nothing like taking a quote from Dorie the fish!
Things are still rough. I just get so tired of updating depressing news. Especially when so many of us are struggling. Please know that I pray for many of you...
First off, totally un ra related...Today was supposed to be a child support/custody hearing. I was served these papers back in August. Nathan's dad has not seen him since Jan 1st-easy date to remember. However, got a phone call from my lawyer yesterday stating that my ex would not be able to attend due to another commitment. WHAT? My lawyer is beyond mad. I don't know what the reason was. The lawyer is suppposed to call my today with more info. The only plus-support will most likely be decreased due to the fact that he is no longer in full day daycare. The next court date is.....March 29! So at least I know that I'll have the extra support amount for a bit longer. In the meantime, my lawyer wants to appoint a Guardian ad Latim for Nathan. Kinda like his own laywer. He will talk to Nathan and make recommendations as far as visitation goes. Not that it matters, it isn't used anyway. I could really use the help with him.
Nathan is really struggling right now. He is very very clingy to me. These last hospitalizations have thrown him for a loop. Since Aug., I've been inpatient 5X unexpectedly. Once was the result of an ambulance ride from the drs office. Whenever he hears that I have an appointment, he just bursts into tears. I am terrified that his dada will decided to make a reappearance-get his hopes up, and then disappear again. Little guy just can't handle someone else walking in and out. If he can come and make a commitment-that would be great.
Saw the jaw surgeon yesterday. He is very frustrated. Joint wise-it looks awesome. He took xrays yesterday to make sure everything is in place. But, I have crazy amounts of inflammation which is causing the muscles to be beyong tight. He just keeps asking...When will the biologic kick in??? That's the million dollar question. I can honestly say I've never hurt so bad. Even blinking my eyes hurt. Right now I'm taking Klonopin to try and loosen things up...not working. I go Dec. 7th to get Botox injections from my pain management dr. If insurance will approve it, he'll get me in sooner. The pain dr, surgeon, and RD are all going back and forth trying to find a solution.
I see the cardio on the 8th. Hopefully she'll have some answers as to why my heart is constantly 100bpm+. I go in next week for a 6min. walking test. They'll take my vitals while walking for 6min. This is to test lung function. I'll repeat it in 4months. Cardio and pulmonologist are using this to see if the Orencia is having an effect on the lung function.
Tomorrow I drive to Duke to get an infusion. I'm dreading the traffic....
So sorry for your trials and tribulations, Rebecca. Lots of people are thinking of you and sending good thoughts your way. Life is complicated enough without the addition of pain and medical issues. I hope SOMETHING improves soon.What Bluehour said..
Keep up the positives.. things will continue to improve..
I know it.
Hmmm ? Botox ? I guess thats a thought. Let me know how it works for you?