Happy New Year | Arthritis Information
Hi all friends on this board!
In the middle of December I had been two years off pred. We have just moved to another home and have downsized. I was a bit afraid that the stress of moving and getting rid of old dear things (that we had to) would put me back on pred. But I made it!
As I have succeeded to get off pred, I want to repeat what especially mrs K writes. It is not pred that is the enemy - it is pmr. Pred helps us to stand the pain even if it doesn´t cure us. I am glad that pred helped me to get back to an almost normal life. I am 73 now, so sometimes it is hard to know what depends on age and what depends on other things.One reason I managed to get off pred was the method I used, and I am proud that on some boards they call it Ragnar´s method - to slowly go over to a lower dosage.
I hope that you all get better in 2011. I know there is a light at the end of the tunnel as I have seen it myself. Too bad with the cold weather all over Europe, though.
Happy New Year
Ragnar
Happy New Year to you too Ragnar and to everyone else on this board. It is so good to hear from you. I am so glad to hear things are still going well for you. Having fibromyalgia is a far cry from poly but I am now doing pretty well with the fibro. I got rid of all meds last spring and I am doing a lot better.....up and down. I
can say it is a lot worse than poly.
As you said Ragnar, there is a light at the end of the tunnel everyone and the advice given by Mrs E and Mrs UK is priceless and you are so lucky to have them.
Lots of good luck to everyone in the upcoming year and don't give up the good fight.
Pat
TeedOff2011-01-01 15:55:24TeedOff - or rather, Pat, I do hope you don't feel that the advice and friendship from MrsE and Mrs UK is exclusively for the other side of the pond or even for just PMR/GCA patients! I certainly look forward to getting my updates from your forum too and I suspect there is more of a relationship between PMR and fibro than many medics think. I'm appalled at the way fibro patients are castigated in the US - especially as the name of the disease is because they can only describe the disease as they aren't clever enough to work out where it is from - although I imagine that a lot of people do jump on the bandwagon for their own ends too. I had years of being dismissed "the bloods are normal" - sorry guys, where's your clinical ability?????? Once upon a time doctors didn't have a lab to blame!
Good luck from me too,
MrsE
Not at all Mrs E. When I had poly I met Ragnar and Mrs UK on the Canadian board. They all were such a great help to me and, I felt, great friends so when I saw Ragnar's post I wanted to reply to him.
I stop in from time to time to see how everyone is doing and noticed that you and Mrs UK are such a great help to the members just starting this journey and it is so important to the new members to have someone like you to guide them along. Fibro is such a different disease in that with poly I always had the feeling that it would eventually go away and that kept me going. With fibro you are stuck for life and it can be very depressing. After about 18 months of excruciating pain and getting worse I decided to get rid of the meds the Dr. had me on. Not the best idea I have had because of the withdrawl but after a few weeks I was feeling pretty good and by the end of summer I was walking and able to play golf again without people helping me get around. I am back on a very small dose of venlafaxine and a product from the health food store called myalgia X and doing quite well....have to keep moving tho....that is the key.
Keep up your good work here and take good care.
Pat
TeedOff2011-01-08 14:34:53
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