Arthritis and fatigue...help! | Arthritis Information

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Hi everyone,

I am new to this forum, and feel "very" lucky to have found it!!!!
 
I have recently been diagnosed with Psoriatic Arthritis, however I decided to post here, because I realized here is where most people are posting...
 
I haven't started my treatment yet, but will soon (just waiting on some labs) but Dr. recommended I start on Metho.
 
Besides having extreme pain and joint swelling as most of you have probably experienced, I find myself "incredibly" exhausted!!!!!!!!! I have read PA can cause fatigue, but my Dr. doesn't seem to believe that PA can cause this much exhaustion...however it coincides with the days my joints are more swollen and therefore in more pain...has anyone experienced this?
 
Any comments or advice is appreciated...
 
Thanks.


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ronbn562011-03-09 16:59:58sjenk,
 
Your doctor sounds as worthless as ronbn56. You may want to seek out a new rheumatologist. If he/she is not aware that PA causes up to severe fatigue, he needs to find another proffession. This from WebMD. Read it completely, link supplied at the bottom of the article

Psoriatic Arthritis: 10 Tips to Fight Fatigue

If you have psoriatic arthritis, chances are you've experienced a common symptom -- fatigue. Fatigue can be caused by a number of factors, making it hard to treat. But don't be discouraged -- there are many ways you can fight psoriatic arthritis and fatigue.

What Are the Causes of Your Fatigue?

Because everyone feels tired sometimes, it can be hard to define fatigue or pinpoint exactly when it started. But if excessive tiredness is having an impact on your daily life, it's likely that you're suffering from fatigue related to psoriatic arthritis.

"Fatigue is a difficult topic and understanding what causes it is hard," says John Hardin, MD, chief scientific officer of the Arthritis Foundation.

If you have psoriatic arthritis and fatigue, it could be because of the following:

  • Inflammation. When you have psoriatic arthritis or other kinds of inflammatory arthritis, your body releases chemicals called cytokines that cause inflammation and fatigue. If your fatigue is caused by inflammation from psoriatic arthritis, anti-inflammatory pain reliever medications may help.
 
Anemia. People with psoriatic arthritis can have anemia. When you have anemia, your body doesn't have enough red blood cells to carry as much oxygen as you need. You keep feeling tired because your body isn't getting enough oxygen.

Psoriatic Arthritis and Fatigue Tips

Since the tiredness that comes with psoriatic arthritis can be due to a number of factors, it's essential to launch a multifaceted attack on your fatigue. Try any or all of the following tips to help restore your energy levels.

Change your schedule. When you're diagnosed with a chronic condition like psoriatic arthritis, it's important to accept that you may need to make changes in your life. On days when you're really tired, give yourself permission to take a short nap. Or, if you find that your flexibility gets better as the day goes on, you may want to lay out your clothes and pack your lunch for the next day on the night before. That way, you'll avoid problems from morning stiffness.

Get enough sleep. Because your body is already stressed by psoriatic arthritis, it's even more important to get a good night's rest. If you're having sleeping problems, ask your doctor whether changing your medications might help. Also, make sure you avoid heavy meals, alcohol, and caffeine before bed and practice good sleep hygiene. Make your bedroom a peaceful place for sleep and sex only, and try to go to sleep and get up at the same time every day.

Exercise. It's true -- exercising and moving around actually gives you more energy. You don't need to overdo it -- getting 30 minutes of moderate exercise on most days of the week is plenty. Try to include a combination of aerobic exercises and strength-building activities, which will keep your heart healthy and your bones and muscles strong. Another benefit? If your fatigue is caused by being overweight, regular exercise will help you shed the extra pounds.

Prioritize. When you have limited energy, it's important to realize you can't do it all. Reserve time and energy for the things that matter to you, like spending time with your spouse or playing with your children.

Seek support. No one can better understand the fatigue you're feeling than someone else in the same situation. Online communities hosted by the National Psoriasis Foundation and the Arthritis Foundation let you connect with others with psoriatic arthritis and share tips on fighting fatigue.

Treat depression. When you're depressed, it can be hard to believe that you'll ever feel energetic again. But treating depression, either with therapy, medication, or a combination of the two, can help you feel like your old self again. If you think you might be depressed, ask your doctor for a referral to a licensed therapist or psychiatrist.

Eat right. The National Psoriasis Foundation includes healthy eating as a key part of its Psoriatic Arthritis Total Approach to Health (PATH). Don't skip meals, and eat whole foods with a good mix of unsaturated fats, protein, and complex carbohydrates to give your body energy throughout the day.

Support your joints. If your joints are swollen and tender, wearing supporting footwear and braces may help reduce pain. And when you reduce pain, you increase your desire and ability to be out and about.

Do something you enjoy. All work and no play makes Jack a dull (and lethargic) boy. Make sure you carve out time to do what you love, whether it's seeing a movie with a friend or planting tomatoes in your garden.

Practice stress-reduction techniques. High levels of stress can zap anyone's energy and may make psoriatic arthritis symptoms even worse. Practicing meditation or yoga, or even just curling up with a good book or sipping a cup of herbal tea, can reduce stress and increase energy.

Top Picks

http://arthritis.webmd.com/psoriatic-arthritis/psoriatic-arthritis-10-tips-to-fight-fatigue?page=2

levlarry2011-03-04 15:36:55kkronbn562011-03-09 16:57:51Dear ronbn56 and levlarry:
 
Thank-you both for taking the time to read my post and for posting info. back
 
ronbn56: As you mentioned, I was "very" surprised to see how many symptoms I have within the list...and unfortunately I am def. under the "intermediate" category...I admit I don't eat as well as I should, so it def. can't hurt to improve my nutrition
 
levlarry: I agree about looking into another Rheum... and I really appreciate the info. you included...I truly don't wish these symptoms on "anyone" - however knowing I'm not losing it, is comforting!
 
I hope you are both doing better, and once again...thanks for taking the time.
Hi and welcome to the forum
 
Fatigue, unfortunately is part of the disease process.  The fatigue from PA or RA is very different than just the normal, everyday fatigue.  Fatigue caused by these diseases is a bone weary fatigue.  You're tired when you go to bed and tired when you wake up.  Some days it's an intermittent tiredness, other days you have tons of energy, and then there are the days that fatigue is all there is.  It's hard to make plans to do fun things, jobs need to be adjusted, work needs to be rescheduled and we must learn to PACE ourselves.
 
Learning to pace is one of the hardest learning aspects of these diseases, at least for me. 
PA for me has been unrelentless, it's always present.  I happen to have PA and RA and for me PA has been more painful.  RA has done more damage to the joints, lungs and heart.   It's taken me years to learn to pace myself.  I still work part time because I love what I do and I refuse to allow the diseases to take my job away again, so I pace myself both with my profession and my personal life. 
 
It may sound like an easy thing to learn to do but it's not.  I work with my community, volunteer, do art, have a home and husband and my life is filled with friends but I've learned over the years that I can only do so much and I don't push myself to do more.  I rest.  PA and RA requires a certain amount of rest that other diseases don't require due to the fatigue. 
 
I'm curious about how your RD diagnosed PA.  What criteria did he use for diagnosis?  A second opinion never hurts.  I had a second opinion regarding some treatment. 
 
I have changed my diet over the years and found that eating a diet based on the Mediterranean diet works best for me.  Lindy
LinB2011-03-05 13:14:58Hi Lindy,
 
Thanks for both your posts on the RA forum and on this forum...actually you are a "huge" part of why I will be staying aboard!
 
I am only 43, but two yrs. ago, I had a complete hysterectomy and that's where I learned about 'forums'...If I hadn't joined "hystersisters"...I don't know how I would of made it, through those days (considering I was never able to find a sympathetic OBGYN).
 
Anyway...I'm sorry about your RA and PA...I was just (last week) diagnosed with PA; and it was based on several things: about a yr. ago, I started complaining of joint aches, especially in my fingers and toes, but the first Rheum. said it wasn't arthritis because they were not swollen; then my ESR levels started rising, and still had no help from the second Rheum. I saw (I always like to get different opinions) and it wasn't until I saw my Dermatologist, (because I have atopic dermatitis) when she asked if there was a history of Psoriasis in my fam. - I told her there was, and she started looking into my skin more...she asked why I wore acrilic nails and I immediately mentioned because they were always brittle and ugly, so the "vain" side of me hated seein them that way...she proceeded to show me some pics of people that had psoriasis on their nails, and to my surprise that's what mine looked like!!! She then examined me more carefully and found a "tiny" red patch on the back of my neck and since my hair covers it, nobody had ever pointed it out...she said she would do a biopsy of it, and although the results would were expected to come back in two weeks, she was calling me in three days...biopsy confirmed it was Psoriasis!
 
With this information she referred me to a new Rheumatologist that specialized in AutoImmune Diseases (I thought they all did, but apparently not)...and that's how I got my diagnosis...I am supposed to start Metho. next week...i'm just very nervous about all the side effects I've heard and read about.
 
I'm sorry this is such a LONG posting...thanks for sharing about your fatigue...It sounds like a complete lifestyle change! Ugh...I'm also Diabetic (insulin dependant) and suffer from post-concussion migraines, among other stuff...so just when I thought I had my stuff under control, here I go...however I'm sure that with the support of people like you (hopefully it will work both ways) we will get through our hard days together!
 
Many Hugs,
 
Sandy.
Thanks for telling me about how you were diagnosed.  I've been on MXT for years and only had a few side effects when I started it.  I switched from pills to injections and it made a world of difference.  MXT bypasses the stomach when injected and I found that I was less tired (another reason for fatigue) with the injections.  Some people are more sensitive and their side effects are worse but I think over time your body becomes used to it and the side effects disappear.  This happened with me.  I've been off MXT for several months due to an URI and pneumonia and I'm sure it be like initially starting the med.  I fear the diseases more than the treatments.  Lindy
Hi Snow Owl,
 
Thanks for sharing your experience...I am also going to start with the same dosage of Metho. - I'm supposed to start tomorrow, I'll keep you posted, if that's ok...(the idea of splitting up the three pills is great! Dr. had suggested them all at once, but I think just to get them out of the way...I'll ask tomorrow). At the moment, my fingers, toes and lower back are greatly affected...I just pray it stops there-however I'm aware it might not
 
One thing I "have" to say about this forum...is that so far, I notice there is a LARGE variety of members...people like you and others that have greeted me SO warmly and shared their experiences and given me tips, etc. and those that sound SO bitter, and just have "ugly" things to say!!! (I work with kids on a daily basis...and I don't even see this hostility and immaturity among them...)
 
I find this very sad!!! I had only belonged to one more forum (Hystersisters) when I had my hysterectomy-and there was nothing but warmth, friendliness and kind words that were exchanged...and yes...it is a different type of environment, however those in the forum are still suffering from one or another type of illness-some just temporary, but many are chronic and even include loses (miscarriages, etc)...
 
I guess it's just a matter of making a choice: stayin in this type of forum to learn what you can and learn to ignore those who take their bad days on others or move on...we'll see...
 
Sorry, to vent all this with you...I'm just a bit in shock, that's all...
 
SO glad you are doing much better! and Thanks again for your comforting words, it does give me some hope
 
 
 
 
 
 

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