Emotional "meltdown" over PsA...anyone else? | Arthritis Information

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As I've mentioned before, I am SO glad to have found this forum-regardless how much support I have (and I do) I really feel, unless you are feeling what we are feeling, you cannot relate.

After going back and forth with Drs for about 1 yr, and constantly complaining about joint pain and extreme fatigue, I was just diagnosed with Psoriatic Arthritis. I have been diagnosed with other health issues in the past; (Diabetes, post-concussion migraines, and other fun stuff)...I "thought" I was taking this ok...until this morning...I just had a "complete" emotional meltdown...
 
Maybe I've been trying to be SO strong for everyone else, (I hate to see how worried they get over me-I hate that my son is constantly seeing me in bed...) OR maybe it just hit me, that my life will need to be adjusted due to my PA.
 
I'm sorry-I don't mean to be such a downer...especially because 99% of the times, I am SO optimistic and a happy person...
 
Thanks to all, for letting me vent!
 
Hugs,
 
Sandy.
Hi Sandy, I can totally relate to all you say, inbox me if you wish.  Gentle hugs from Janie. Oh sandy  boy do I understand this. Today wasn't great and I found myself just wishing I could cry.. But I just don't
 
 try to feel better soon, you aren't alone.
Sorry Sandy,  It will  get  better,  after  a while  you will get use to the new you,  and the pain become  less,  meds  kick in.  I think all  of us have been there  and knows what your saying.   Just  try to take it easy and try not to over do.  I have good days  and some very  bad  days.    My  RD doc,   told me years ago  to do everything I could,  But to know when to quit  to be very careful  not to over do.   Thanks to all ...
 
I guess it's a matter of having patience, and taking "one day at a time..."
 
Many Hugs to all...
 
Sandy.
 
 
Give yourself permission to cry, beat your fists on the table and have a meltdown.  It's all part of the processing.  I've had many meltdowns over the years.  This won't be your last one because the disease changes. 
 
You will have to adjust your life, little shifts at a time so that the changes aren't so apparently drastic.  Little shifts at a time are easier on you physically and emotionally and aren't as apparent to everyone else. 
 
PsA has been far more painful for me than RA and I understand completely how frustrating it can be.  Hopefully, meds will begin working for you and you can have some relief.  Lindy
Hi Lindy,
 
Once again, thanks for getting back to me. I've started by "pampering" myself, and pacing myself (something I'm not used to doing). I decided to take the day off from work today (something I don't do, either) and just allow myself to "feel"...and cry if needed...
 
I guess one of the "very" frustrating things in my case is: for the past 5 1/2 yrs. I've dealt with post-concussion migraines (after being in the hosp. 20 times for them, I stopped counting!) I "finally" have them under control (thanks to Botox shots...) and have felt relief for the past 6 months or so, and now thanks to the Methotrexate, I'm getting headaches!!!! Dr. said it was a common side effect and that it should get better...boy! I hope so!!!!!! As you said, fatigue and nausea are already feeling better, and it hasn't even been a week-I just pray these headaches go away as well...
 
Take care,
 
Sandy.

Hi, you have had two major life changing diseases - migraines and PsA and that will take it's toll mentally and physically.  The headaches from MXT should go away and no one can tell  you the time frame.  Could be next time you inject or it may take a month or two.  One thing I've done and it works for me....I give myself permission to be down, cry, thump on the table but I set a time limit on it.  Usually 24 hours and it always works for me.  You might try to limit your meltdown.  At the end of the 24 hours I do something nice for myself - lunch out, some new makeup, a pair of shoes always works. Lindy

Hopefully your headaches will go away.  I take the MTX pills and I believe I had headaches at the very beginning but don't have them anymore.  I totally agree that sometimes you just need "me" time - whether you pamper yourself at a spa, sit and quietly read a book, or cry and get upset.
 
Hope better days are ahead.
  You WILL get there!!  But it is a bumpy journey, and at times very hard to bear, but remember - you are not alone, and just give yourself permission to let go and tell us how is it for you, just as you are doing!!  We all react differently to the meds, unfortunately it is a matter of trial & error until you get the right mix for you!  When I was first diagnosed - No way was I ever going to put all those awful drugs into my system  - I was going to beat it on my own!  Eventually I had to admit it was beating me, and gradually came to the conclusion that I did need the drugs. 
 
I think most of us eventually get to that stage, and then a maybe few months or more further down the track, when things regulate, things get better.  We need to prevent damage as well as manage the pain, the drug regimes can do most of both, along with sensible exercise and sensible nutrition!  So many decisions and choices to make, and it's not easy, but just work together through them with your Rheumy and you'll get there. 
 
During the early part of my journey, one of the best tips I got from mine, was 10 minutes "work"then 10 minutes "blob" to start with, when you have things you must or want to do,  increasing when you feel able.  On any one day you may feel good and really energetic - just don't push yourself!!   And you will soon realise the benefit of pacing yourself, until it just becomes natural! And if you don't feel up to anything, allow yourself to sit with that as well.   I can now do about 1 hr of vacuuming or time in the garden before taking a break - so my break is 1 hour as well! These are the two things I consider to be tough.  But I really enjoy getting out in the garden, so that's treat stuff anyway!  Don't enjoy vacuuming at all - but who does!! LOL 
 
There are no hard and fast rules, we are all different, and I am sure you will find the strength to meet this thing head on - well you're already doing lots of self help, being here and sharing your "stuff"! Thank You for trusting us with that!
 
We do understand, and know it's hard for family and friends too to come to grips with the whole thing!  
 
Have you ever heard of the "Spoon Theory", I know a lot of other members on here have found it helpful for themselves, family & friends who make lots of suggestions with the best of intentions, but who just don't get it!!  Take a look!
 
http://www.butyoudontlooksick.com/articles/written-by-christine/the-spoon-theory-written-by-christine-miserandino/
 
Take care and hugs for you Dear Kiwilass2,
 
Thank you SO much for your reply and for sharing the 'Spoon Theory' with me; I just shared it with my husband, and I think he understood me even more (especially because today was one of those days, I practically had "no spoons av." - I spent most of the day in bed, sleeping...
 
I know days will get better...and people like you are a big reason for this!
 
Thanks again!
 
Sandy.

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