Ever feel like you’re doing something wro | Arthritis Information

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For those of you on RA meds, have you ever heard someone with RA tell you that they are "trying not to take any meds"?  I'm on Arava, Remicade and Relafen.  When I hear people tell me how bad they feel and then say they're not taking anything, I have to wonder, are they looking at me like they have the same symptoms as I do but they don't need meds and I shouldn't either?  Am I CHOOSING to treat my illness or would I be okay without nothing, even though any time I've had to stop my meds I feel like crap.  My doctor said that anyone with RA who only takes an NSAID either has a very mild condition or was offered something else an has decided not to get treatment, but I feel like I'm doing something wrong when I hear about people who say they are doing what they can not to take anything.  I didn't think there was too much of a choice if your doctor tells you that your disease is progressive unless treated.

You've answered your own question:  " I hear people tell me how bad they feel and then say they're not taking anything"...  They feel bad, and yet they're not trying to feel better by taking meds?  How much sense does that make?   I say do what works for you, and stop thinking about what others do or think.  You have to decide how you want to feel.  Yes, you are choosing to treat your illness rather than feel like crap.  Who wants to feel like that?  Plus, you're doing what you can to slow the joint damage being done.  You're OK, girl.  Just get out of your own way!

Take care.

Great answer Sara, I agree completely. I won't let people who don't take medication for their arthritis tell me all about how bad they are feeling. I should be apologetic because I take medication and feel better and have a better quality of life. I don't think so.

BarbSpeaking as someone who isn't medicated right now...it sucks.  But, the only reason I'm not is the whole "I fired my doc and have no decent insurance deal (it covers a total of 00 a year for 2 people)," not because I find meds evil or anything!  I'm just waiting until we get insurance to kick in so I can find a new rheumy.  But, in the past I have had people make me feel bad for needing to use pain meds plus a host of other meds.  They aren't in my body, they don't feel what I feel. Pain is not objective really.  Each person has their own perception of it.  What I consider the most painful thing in the world is nothing to others and vice versa.  I'm unhappy at the thought of possible damage.  Unfortunately, I'm kind of in the middle when it comes to qualifying for help as we have insurance but not prescription insurance. I keep telling myself to hold on just a bit longer until I can get a new rheumy and then it will all be better. 

Do what is best for you..and ignore the rest as best you can.  Never apologize for what you need to cope with this monster of a disease. 

Without medication, even the simplest things seemed like impossible hurdles. I remember dreading having to go to the bathroom in the morning because sitting down on the toilet was so painful in my knees and grasping the toilet paper with my sausage fingers was a joke and then I would sit for minutes just working up the strength and mental energy to get back up off the seat. Getting out of the bathtub on my own would have me in tears and for weeks I had to sleep on my back because everything else hurt too much. That's the reality of no medications for me. I have no doubt in my mind that I need medication and that I'm not being a wimp by using them. I am also pretty sure that if the no-medication types were in as much pain as I was, they'd soon be the medication types! 

 

people who claim to have ra and don't take medication are not at a stage that's dibilitating. if they were really hurting and couldn't function well and were in alot of pain, they'd be on meds.

i don't know about anyone else on the forum, but i run into some people who just like to blow smoke loL

I'm currently not on meds, but only because of financial difficulties.  I am however, going to a new rheumy next week, and will somehow find the money for it all.  I can't take the pain anymore, and fully intend on keeping my job.  I have to in order to support my children.  Being a single mom, they depend on me.  I was going to "tough it out" and do the best I can, but have recently realized that I will soon not be able to function unless I stop it now.  My brothers and their wives don't see anything wrong with me, and wonder why I'm going to the doctor.  They don't agree with the diagnosis I was given in '99.  When I was on disability, my sister-in-law even yelled at me for being on SS!  Said I shouldn't be.  My brother told me to just "bite the bullet" and keep going.  "I have 13 vertebra in my back that are destroyed, and you don't see me on SS."  It's infuriating.  I've finally gotten to the point where I realized that I MUST do something to feel better and continue to provide for my kids, and not worry about what the family thinks.  I get so angry when I mention that I'm fatigued, only to hear "Yeah, I'm tired too."  They just think I'm trying to get attention. 

Starling, you need to do what's best for you so you can continue to function.  As hard as it is, you have to try and ignore what others say, and do what's best for you.  Take care of yourself. 

Cris

 

Starling,

I just have to say that I hear you totally. I am currently taking strong pain meds. I don't take anything else because I have been on it all with no results, so my doc is trying to at least treat my pain until something new comes out. And I am made to feel bad about being on narcotics--like I am some kind of junkie. I don't abuse it--I just need it to get up in the morning and live. I take the amount exactly how it is prescribed--no more no less. Some people I know will be like, "hey I got a really bad headache or I pulled my back out--can I have a couple of your vicodin?" Like I can even spare them--I get exactly a months supply at a time and their not candy for crying out loud. But I think people sometimes think its no big deal and I am taking them for a buzz or something.
People just don't understand this disease and how it can turn your whole life upside down. If you need meds---take them.

Starling...personally I don't go around telling everyone what meds I take. Unless they are a very close friend of mine or my family they have no idea what medication I take....and it's really none of their business anyway.

If you have any form of progressive arthritis you should be on medication. I feel for you girls that are having insurance problems. I was there years and years ago and don't know how in the world I'd manage now. My medication alone would be more than 00 a month...that doesn't include office visits and labs which are outragous!! I'd be right where you are now. I wouldn't be able to function and I'd just be waiting for the day I could get treatment. My heart goes out to all of you.

I once was at a point where I felt like I was in remission. That was about 4 years into my dignoses. My doctor warned me not to disregard my meds. He said it would take a long time for me to get back to the point I was at; but I thought I knew better. All I had to do was try it once to convience myself that yes; I do indeed have a chronic illness that there is no cure for. I have just resolved myself to the fact that I require medication to substane a somewhat normal life. I still have pain....but not nearly as much as I know I would have. Not could have...would have. Sometimes you just have to face the facts.

Like the others have said...Don't worry about what others say...they aren't you; and obviously their pain can be managed with over the counter pain medications that yours can not.

Keep your chin up girl...you aren't alone in this battle.

Willow--Wow.  I've told your exact bathroom story to people "on the outside" trying to explain how the simplest, most routine movement is a struggle. All those things that, before RA, were like breathing in and breathing out. I thought I was the only one, you know?  Tying shoes--omigod.  That's how I learned to love mules and clogs.  And just reaching for my computer mouse, much less typing, were impossible.

Starling, listen to your doctor and to your own heart.  Forget the others.  Even those closest to you don't understand the pain unless they've experienced it. 

To those of you without good insurance coverage, I think of you often and wonder how you get through it. I absolutely know I'd not be able to.  I wish there was something I could do to help.

Sara

 

 

Sara38482.5730902778Thank you all for your encouragement.  I can't imagine how those without insurance cope.  If I didn't have meds, I wouldn't be able to work, and then I'd have no insurance.  It's a miserable viscious circle.  Oh, I forgot to mention that I also take Ultracet when needed, so I get the non-narcotic meds strictly for pain too.  I will remember all of your words the next time I want to reach out and choke someone.  Then again, I am usually too sore to try!

I will chime in here too since I am one who does not presently take meds. I have to think that I either have a mild form of RA right now, or, all the "stuff" I'm doing to attempt to "help" my symptoms might be somewhat effective.(diet/supplements/chiropractory/mass age/acupuncture/mercury detox/...)

I do know that if I ever develop the pain I intially experienced again (where I was chronically depressed/crying because of the intensity and extent of the pain; and was losing control of doing everyday movements like opening doors or holding onto a milk bottle, or taking forever to walk from upstairs to downstairs, or dreading driving my car because of arm pain, or doing simple movements  preparing meals, or holding onto my toothbrush....)  then, I would definitely ask my rheumy to prescribe the appropriate medication.

"All those things that, before RA, were like breathing in and breathing out. I thought I was the only one, you know?"

and i sit here crying, i am going through the battle with family where sometimes you just wanna say i hurt! or i'm exhausted! or i can't! without being told "i know that one", or like others have said "yeah i'm tired"  or "of course you can you'll be ok!"

I just wanna scream and say i'm scared! I want a cuddle, i want to cry! i want to be able to make something out of my sons magnet set with him, but i can't even pick em up!!

And i'm on meds, although i can't take anti-inflammatories so sulphasalazine and pain killers. I've turned down methotrexate for now for selfish reasons, I don't want to ruin any chance of having another baby.

so i guess i have no right to moan that i didn't sleep last night, and haven't had a whole night's sleep for nearly 8 wks.  we are all different though and like some have said we all deal with pain differently and at different levels.  I really feel for those of you not on meds for insurance reasons, i realise that i am incredibly lucky in that sense, being in the uk i get my care totally free. Although its not always good, despite the lack of sleep and pain levels at the moment i am currently on a 6 month waiting list to see a rheumy so couldn't take up offer of mtx till then anyway.

I guess i'm a bit of a hypocrite as i agree people shouldn't make you feel bad for taking meds and if there were less risky options open to me i'd be there. But i turned one down, or put it on a back burner, so i guess i'm just as bad.

sorry not much help eh?

Tori hon;

Ask your gp for something to help you sleep when it is really bad.  I am on pamelor, which is an anti-depressant, in a mild form which helps the body to relax.  You take it 2 to 3 hours before bed.  You don't have to take it all the time.  when are you planning on getting pregnant again?  Are you waiting till afte you see the rd?  Let us know.  xoxox  Meme

Thanks meme,   I will mention it next time i go, anything's worth a try!

I have to confess to not having a partner right now, wish i did. Single parenting is not easy for anyone i don't think. So it'll be a while till next baby but i still worry about fertility and stuff.

My son's desperate to be a big brother, bless him.

Dear Starling,

As a holistic healer, what I typically tell clients is that medication, while not curative of the problem, is often neccessary to keep oneself well and funtioning until their problem is over.

In my experience, curing rheumatoid arthritis can take weeks. I would never have a client suffer for that long! Only after their condition is cured should they go off their medication.

Esther,

I am curious, as a holistic healer, how do you "cure" rheumatoid athrtitis, a condition that the allopathic medical doctors say there is no cure for yet?

Also, did you happen to experience RA yourself? I sincerely appreciate your response to Starling in assuring her that meds are often a nessecity, but please be forwarned - this site is sensitive to folks coming on board to attempt to tell people who do have RA (like myself) that it is easily fixed. That would be very presumptuous, and most likely untrue.     Rana

Rana38483.4818634259

Thank you Rana...I was about to question Ester as to the same thing. Exactly what experience have you had that RA is curable? WEEKS?

I can't stop laughing at that statement.

Forgive me for being rude.

Lovie38483.4959259259Lovie,
I gotta say you aren't rude.  Me, I'm the rude one.....here goes....
unless you've been diagnosed using the ACR criteria or by a rheumatologist do not tell me your "rheumatoid like symptoms" going away is a cure for the rest of us who have struggled many years with trying to keep the damage to a minimum.  Lack of treatment can cause serious damage and telling people who are new to this that there is a cure is just giving them false hope.  Yes there are treatments that can cause medication induced remission, but even then most docs do not feel going off of the meds that caused that is a good idea. 

Supplements, alternative treatments all have their place.  But they are not cures!  
wayney

Amen Sister!!

I still can't stop laughing.

 

Lovie38483.5103356481

Rana, Lovie, Wayney--

I need to thank you for saving my computer!  When I read Esther's post, I almost put my foot through the screen.  (Thankfully, the meds seem to be working well, so it wouldn't have hurt much.)  Before raising my foot, though, I read on, and your comments made me feel like you shut her up very well, so there was no need for me to shut her up my way.  Don't you find it interesting that she hasn't been back to defend her utterly stupid comment?

The only thing I take issue with in your comments is that I can't find the humor in it as you did.  Cure..holistic..jeez!  I'm steaming.  I need to take a cool shower, don't I?

Sara38483.5990393519Dear Rana,

You asked a very good question. First of all, the method of choice of the allopathic establishment is medication. Since nobody ever got arthritis because they didn't take medication, then medication (and the allopathic practitioners that proscribe it) do not target the root cause and therefore cannot cure arthritis. Hence,according to allopthy, arthritis is "incurable".

My approach is twofold. First of all, I apply the neccessary hands-on manipulation to relieve the inflamation directly causitive to arthritis pain. Sometimes,I use provocative motions to draw the inflamation away from its "resting place" and get it moving to the rhythm of my hands. From there,I try to coax it out of the body. Other times,I leave the inflammation itself alone and try instead to loosen the tense areas around it. Once these areas are loosened, the inflammation often dissolutes into the bloodstream. Of course, these are just two tactics for the release of inflammatory buildup.

The second part is more complicated. The very fact that the person is suffering from RA in the first place shows that their body is (duh) somehow suceptible to it. Everyone has different metabolic problems that render them prone to different diseases and imbalances.

Let's say Jack is good with ideas and bad with details. Joe is the opposite. If Jack works alone, he may come up with a brilliant business plan but go bankrupt over details like whether or not the products come on time or how to manage manpower. If Joe works alone,he might do everything on time but fail to understand the basic gist of the market. Working alone, they both risk failure;working together,they can fill in for eachother's shortfalls and survive.

Same with health. If a person naturally clenches up under pressure, they should follow a light,relaxing, anticoagulating diet and other lifestyle measures. These measures will counterrract the person's clenching tendency and prevent problems associated with it.

And so on. I use diet,lifestyle counseling, hypnotherapy, and to a smaller extent herbology to complement hands-on treatment.

In short,the program is as follows: relief,balance, and retrain

Relief: use hands-on manipulation to get rid of inflammatory buildup,

Balance:use whatever therapy fitting and neccessary to balance out any tendencies and patterns that leave make them vulnerable,

Retrain: teach the body to act and react differently.

The approach takes time and dedication, but it works.

Keep emailing, Esther.

Are you aware that RA is more than just "inflammation"?  Inflammation in and of itself is not the problem.  It's the autoimmune system that is attacking the body that's the problem.  That's what causes the inflammation! How do you "teach" the autoimmune system to change the way it functions?  By touching?  And you didn't answer the other question.  Do you have RA? Or have you ever had it?  Do you even know what it is?  It's not "arthritis".  It's a disease.  I have a friend who was supposedly cured of cancer through a hollistic healer.  Oh, did I tell you she didn't even know she had cancer until the healer told her?  Her body apparently "talked" to the healer and told the healer that my friend had cancer.  Funny.  I don't believe it myself.  Unfortunately my friend is now totally sucked into this person's tricks, and has even spent her savings on this healer. Yeah, that's the savings that was going to put her kids through college.

Cris

Esther--

"Hence,according to allopthy, arthritis is "incurable"."

Are you saying, therefore, that ascribing to your hollistic methods would make it "curable?"  Your logic is faulty to say the very least.  I'd say more, but my apparently curable hands don't want to waste the energy. 

Esther, we're all here to encourage people that they can slow the pain and help prevent further joint damage.  This won't happen with your "teaching the body" not to hurt or laying your hands on an inflamed joint and massaging it.  Your writings are no better than comments by people in their lives who just don't "get it" and act like they're just whining.   Following your advice would be like putting a bandaid on an amputation site.

If you find a need to share your beliefs, you certainly have a right to do so.  Please find a more appropriate forum.  Before you go, please answer the question of a previous poster.  Have you ever had rheumatoid arthritis?  If not, please just go.

Sara38483.635462963 [QUOTE=willow]

Without medication, even the simplest things seemed like impossible hurdles. I remember dreading having to go to the bathroom in the morning because sitting down on the toilet was so painful in my knees and grasping the toilet paper with my sausage fingers was a joke and then I would sit for minutes just working up the strength and mental energy to get back up off the seat. Getting out of the bathtub on my own would have me in tears and for weeks I had to sleep on my back because everything else hurt too much. That's the reality of no medications for me. I have no doubt in my mind that I need medication and that I'm not being a wimp by using them. I am also pretty sure that if the no-medication types were in as much pain as I was, they'd soon be the medication types! 

 

[/QUOTE]

Now I know that I am among people who understand what I am going through.  A year ago that was ME, right down to the details.  I could have written every word.

Ditto, RMaria.  When I read that, I knew I was home! 

When I'd get to work and my eyes were puffy, people would ask what's wrong.  I'd tell them I'd been crying all morning, trying to get dressed for work while my morning meds took hold.  They thought I was nuts.  Now if that happens, I just lie.  

And I was so hoping that she had "THE ANSWER". My hopes have been dashed again.

Ester, please go where you will be accepted and welcomed, obviously not here.

Barb

Who fed you a hand full of giggle pills today.

(Anyone need a can of WD-40? I hear it works wonders for joint problems...if you're made of metal.

Cris

Thank you Barb...I appreciate your encouragement. Laughter is great medicine and I've found more here this morning.

Ester you're keeping me in stitches. I am enjoying it; Although your long drawn out posting as to how you'd cure us lost me about mid way through. I'll have to admit I lost interest about the time you started talking about Jack and his good ideas and bad details. I'll also have to admit; like my friends here I highly doubt you have any personal experience as to which you seem to speak so knowledgably. We come here to get personal expereince, advice and support....not unsolicited hocus pocus from a "holistic healer".

Your "hands on treatment" might be for some folks...but it's certainly not for me. I do appraciate the laughs though, like Barb says it's good medicine....and I'll take more of that if you can take the abuse here from us.

Who is this crazy lady Esther?  Quacks like this need to be behind bars!

Esther, it's obvious that you and the other silly "holistic" practitioners don't have a clue.  RA is an autoimmune disease.  Manipulating the joints will do nothing!  It's not a blister that you can pop!  Retrain the body!  Is there an autoimmune boot camp?  Please, sign me up!  All people like you do is suck down people's money and give them false hope.  Why not go to the ACR, as someone suggested, and look up the criteria for RA.  Then how about writing a letter to Johns Hopkins and tell their department of rheumatology how they have it all wrong.

Oh, now I'm sore.  I need to go put on my copper bracelet, and then tomorrow I think I'll soak in one of those hot springs so I can cure myself. 

Here was Esther's reply to my post via private message:

Dear Starling,

Kudos for your healthy skepticism on the subject of holistic/alternative approaches to arthritis. Here is my response to some of the issues you raised:

First of all, you assert that "RA is an autoimmune disease.  Manipulating the joints will do nothing! " However, it is a basic tenet of Chiropractic that the studied movement of body parts can relieve pain in those parts. Same with Osteopaths. In short, it's done all of the time.

"Retrain the body! Is there an autoimmune boot camp?"
In response to this, I must point out that common to chiropractic, Feldenkrais bodywork,gymnastics and practically all competitive sports is the premise that bodies can be trained to overcome limitations and function better.

"All people like you do is suck down people's money and give them false hope."

1. I give all prospective clients the first session free.
Nobody spends a cent before I have PROVEN to them that I can help. I could not earn a living if NO ONE saw fit to come back.

2. I do not promise a cure. The sad truth is that the older the problem, the harder the cure, and the more resistant the body. Many people do not have the money to come back enough times to be through. However, given my level of proficiency, as well as my record, it is likely that I can offer you some improvement.

Would you like to try a free first session? Maybe I can help you. If not, you can always laugh about it to your friends!!!!

 

[QUOTE=Esther]Dear Starling,

As a holistic healer, what I typically tell clients is that medication, while not curative of the problem, is often neccessary to keep oneself well and funtioning until their problem is over.

In my experience, curing rheumatoid arthritis can take weeks. I would never have a client suffer for that long! Only after their condition is cured should they go off their medication.

[/QUOTE]

Am I reading this wrong is does it say something about "curing rheumatoid arthrits" above this?  But in her private reply to you she says she never promises a cure..so which is it?


wayney38488.8756134259

And here we have her pm to me.  Check out some of her "many reasons" for autoimmunity!  She had me in stitches!

In her pm to Starling, she says that most people don't have the money to come back enough times to be through.  So how can she claim to have "numerous success stories" to back up her claims?  She has contradicted herself over and over again.  And the nerve to pm each of us with yet more contradictions! 

I think Starling's comment about sucking people's money and giving them false hope is dead on! 

Cris

 

I am sorry to hear about your friend's painful experience with a "holistic healer". Unfortunately, we still live in a very dishonest world.

However, I have nothing to do with that individual, and would not want to be judged for their sins. I have my own
methods of dealing with autoimmunity, and numerous success stories to back them up.

Usually,I let my results do the talking, but since that is not possible,I will truthfully explain HOLISTIC perspective on autoimmunity in words:

The body is a single,harmonious unit that functions solely for the benefit of the person in it. For the body to attack itself is a sign of an external problem.

Here are some (OF MANY) possible reasons for autoimmunity:

1) the person hates themselves, and the body reflects that. The specific nature of the autoimmune attack is reflective of the person's specific criticism of themselves.

2)the person is starving and the body is trying to eliminate tissue to conserve energy (unlikely)

3)for whatever reason, so much toxicity has stored up in a specific part of the body that the immune system tries to stifle or amputate it to protect the rest of the body,

4)the immune system is actually trying to heal the body, but due to the severity of the condition the healing process is destructive of healthy tissue (think chemotherapy)

And so on. Of course, every case is different and is to be evaluated on its own merits.

You are welcome to come to my practice for a free first session. I am sure I could help you in some way. Feel free to email me.

I may be the loner here, but I actually believe that some people can get relief (and maybe even remission) from hollistic treatment.  I also believe that some people can get relief and/or remission from dietary changes etc.  And, I believe that the level of pain one has, and how one copes with it are not just factors of the degree of disease.  Different people have different pain thresholds and different pain tolerance levels. The human body is so complex.  I think RA is likely affected by psychological processes (and the studies that indicate that it often, though certainly not always, begins after a difficult or traumatic event support that), hormonal processes, dietary issues, etc.  But, I suspect that for each person that combination is different.  I don't see a thing wrong with trying diet, acupuncture, etc. before or in conjunction with medication. I don't think it hurts any of us to hear more about other possibilities.  Just because someone talks about something that has worked for him/her, or he/she has seen it work for others, that doesn't mean we are being scammed.  It also is not necessarily an indictment of other means (including standard medical care).  While I do think it would be inappropriate for someone to come onto this board to tell members that they shouldn't take medication, or to sell natural remedies, I'm not sure why providing a viewpoint or information is a problem. The bottom line is, you have to figure out what works best for you and then go forward from there.  BOY OH BOY I'M ON MY LONG WEEK AT WORK AND BOY S#$% JUST HITS THE FAN!!!!Hey Everyone!!

I have to chime in on this one!! Ester is crazy!! First off I have been on every med available and tried holistic approaches also. The acupuncturist I went to was great and indeed it did help out somewhat but certainly did not cure my arthritis. Even she said that she couldn't actually "CURE" my arthritis. Her method was just to give me some relief along with meds and yes I did get relief but it is shortlived and even the acupuncturist acknowledged that. She was helping out so that maybe possibly my med dosage could be lowered. She worked in conjunction with my rheumy not in place of my doctor.
Someone claiming to cure our illness is not very educated. Don't get me wrong--I certainly respect people that take holistic approaches with massage, acupuncture etc etc etc. But if they are reputable then they work along side with the medical profession not against it! They are suppose to be there for offering other options for us not hocus pocus!!

In the PM Esther sent to Cris she states that our disease is caused by some form of self hate...or some form of criticism of ones self; Now I ask you 6XMUM do you take kindly to someone implying that you are ill because you hate yourself?

I surely do not and would appreciate Ms. Ester vacating our boards!! I've played along and yes; even found her suggestions to be funny but that sort of statement is NOT WELCOME here.

I can not believe the nerve of this woman.

MEME...Our biggest protector!! We love you. Your protection of your friends here is heart warming.

"1) the person hates themselves, and the body reflects that. The specific nature of the autoimmune attack is reflective of the person's specific criticism of themselves."

So I hated myself when I was a baby??? At age one and a half when I got sick it was because I didn't like the way I looked in my footie pajamas? So I conjured up this horrible illness because I couldn't deal with stress of my hectic days of napping and feeding? I was trying to 'amputate' myself?

Is that what you're telling us Esther??

I didn't just fall off the turnip truck Esther and neither has anyone else here. Please take your schtick elsehwere. No one is buying whatever it is you're selling.

Who owns this board? Perhaps we can request to have Esther blocked.

 

Thank you kayobe....my line of reasoning was going to be similar to that.  I was diagnosed at 7.  Had problems for a good 6 months before I was diagnosed.  All I remember about my childhood pre diagnosis is happiness.   No reason to hate myself.  Even now, after having a disease that cripples, causes extreme pain, takes a toll on my self-esteem, causes fatigue and helps other diseases to come along....I don't hate myself or anyone else.  And as  much as I get sick of having RA and pain, I can even find that it has taught me things, I has definitely given me quite a few friendships I would not have had otherwise so I can be somewhat thankful for aspects of it.  So, it's my fault I have RA!  I love that.  I'm the first to defend people's right to pick what treatment works best for them, but to come here saying a cure can take weeks and then turn around and say you didn't say that and then blame me for my disease is just complete and total crap.  Plus it is insulting to me.  In addition, this has to be hard for anyone new to this disease and dealing with the normal feelings that come with a new diagnosis to hear.  To be given false hope there is a cure is just cruel.  Yes there are treatments, yes holistic treatments help some people.  Not all, just as not all meds help every one.  What helps one person is extremely horrible for others.  For me, NSAIDs are horrific.  For others, it is all that helps them keep moving. 
Esther---I am curious...what kind of arthritis were you diagnosed with?  Who diagnosed you?  Is that person a member of the ACR?  Did they study rheumatology?  Please feel free to send your message privately to me if you don't think anyone here wants the answer as much as I do.  Or are you not answering these questions because you self-diagnosed and are wrong?

You make a very good point Wayney...she's got Tori all upset (See post "Ester" for Tori's comments) and she's having a hard enough time with things lately without these type of comments on top of it. It's doing far more damage than good.

 

I have been daring Esther basically to come to me privately as she has done to many of you.  I must be scary or something.  I am normally not this way..I try ot give people the benefit of understanding but this has gone too far.  Upsetting people who are already having struggles is cruel.  Upsetting those of us who are not struggling is bad enough.  Although venting my feelings over this is lessening my stress over the fact I'm having cable problems which affects my phone and computer...but not my cable.  I'm still waiting for a private offer of coming to Esther for a consultation or any private comments to me.  It is unfortunate that the owners here do not seem to feel inclined to get involved in this. 
hugs, wayney
Lovie,
No need to get hostile.  I guess I misread the message. I understood it to mean that there were many reasons that could be behind RA, not that each person had all of them, or any particular one (even the self-hate one).  I wasn't saying that I agreed with everything she said.  As you can see in my signature line, I haven't had much luck with alternative medicines and am using pharmaceuticals just like most of you.  But, I guess I do like hearing alternative viewpoints.

Meme,
I actually have been reading along on some of those posts.  I don't post often, but I read a lot.  That's why my post said that I thought it was inappropriate for anyone to come on the board selling something (services or products).  I think those type of posts should be deleted, the person warned, and if he/she does it again, he/she should be banned. You are right that free advertising is not the point of the board.  However, when I read Esther's first post, which seemed to really upset people, it didn't seem that she was specifically selling something, and for all I knew she could have had RA herself or had family members  who do (in fact, heck, that could still be the case).  I guess my point was more that if we don't like information, we can just pass on it.  There isn't much point in getting all worked up about it.  We all need our energy too much for other things.
6xmum38489.7073958333

IS ESTER SMOKING CRACK!!!! Get off the board you insensitive, ingnorant poor excuse for a human being!!! 

"1) the person hates themselves, and the body reflects that. The specific nature of the autoimmune attack is reflective of the person's specific criticism of themselves."  ***MY ASS***

I for one am a VERY spiritual person coming from an in depth background of holistic methods, meditation ect.... and NOT ONE person that is truley spiritual would ever let BULLsh*t like that come out of their mouth or off their fingertips in writing.  Poor, Poor excuse for a spiritual being or human being for that matter!!!  I am absolutely livid at that UGLY post!!!   Girl you need to have a GOOD LONG CHAT WITH YOUR GUIDES CUZ YOU'RE ON THE WRONG TRACK!!!  Go read tarot cards because healing is certainly not your path!!!

Sorry if I offended anyone with my cursing...I'm just so livid I could spit flames.

I can't even Peace & Love this one.....Neasy

Hahahahaha...that was a great laugh...yes at 2 years old i hated myself and RA is psychological.....please!!!! On the contrary i have been told I am one of the most positive optomistic people that others have met.....and i am the first to call bullsh*t on those people that supposidly have a 'disability' and cant work, yet go rollerblading, skiing, etc. - trst me, when it hurts to sctratvh my own nose (who put it so far away anyways) that aint in my head...neither are the 2 titanium hips i needed at age 26 from having no cartilage left......heal that ester.....thats about as productive as the copper bracelet my dads hippy friend insisted was the answer.......

6XMUM;

People come to this board for support not to have to read advertisement and to read idiot postings of people who don't have arthritis nor have a clue as to what is going on with the life of a sufferer who has to live with a degenerative disease,NOR do they need to recieve pm from these people!!!!  Ester has Tori so upset and in tears with the pms she has been sending.  We have people here who's self worth is down the tube and you have this woman trying to shove it down even further telling them it is their fault that they have this disease.   This is what makes me angry!!!!

I was not trying to be hostile to you; I was making a clear point that this woman does not deserve your defense. She insulted you as well as the rest of us. I was mearly pointing that out to you.

And for the record; I can guarantee you that this woman does not have RA or any other related illness or she would not be spouting such nonsense!!

Meme and Lovie,
Ok. Thanks for the replies.
Not that I'm trying to defend this crackpot, but I didn't see anything about self-hate in THIS message.  What she's saying is that medication can tide you over until you get to the root of the problem, and that (her words) arthritis takes many weeks to cure.  She's saying that her holistic treatments can get to the root of the problem, and the problem can be cured by joint manipulation.  I'm so sorry that people are so upset by her that they are brought to tears.  You have to consider the source.  She reacts the way many stupid people do, by name calling and hostility, when they are bested.

Starling...the thing about self hate was in a PM that she sent Cris; it's certainly there....and it certainly got us all stirred up.

She's gone now though; and I for one and very happy about that.

Lovie, I missed her PM to Cris.  I was referring to her PM to me.  I posted the last PM she sent to me, where she tells me never to contact her again.  As if!


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