Applying For Disability | Arthritis Information

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Unfortunately, it's come to that for me. I am in my early 50's, and have been a registered nurse for 20 years, but can no longer do all the standing, walking, squatting, etc. required for the job. I've had multiple joint surgeries throughout the past 10 years, most recently, a total knee replacement and a total knee replacement revision this past year. My last surgery was in November, and I am still on temporary disability due to problems and much pain. This has been discussed with both my RD and my Orthopedic doc, and they both feel it's time.

I filed all the paper work online just this past week, and am wondering if anyone else has recently gone through this process. It's my understanding that most people get denied the first couple of times, and then go through several appeal processes before finally becoming eligible. My question is, assuming that I do get denied, does a disability attorney help with the appeal process and becoming eligible sooner, rather than doing it on my own?

I was diagnosed with RA about 8 years ago, and was hoping to finish out my career, doing the job that I love. With more surgeries looming around the corner, and the fact that my RA has never been completely controlled, that just is not going to be possible. I would love to hear from anyone that has gone or is going through this process.

Thanks in advance!
Brisen2011-04-17 17:46:00 Brisen,  I  went thur it twice,  first time  I was really down and got on within  2 months,  After a couple of years I made the mistake of going  back  to work  and  getting  back down  and   later  I was trying to get back on  and it took  me almost a year.

You need as much documentation as possible.  I had a huge binder full of info.  I also had the support of all my drs.  They all included letters along with chart notes.  My surgeon actually called since the replacement is an unsual surgery.
 
My plan is to return to the classroom in 2012-2013.  I really miss it-love those crazy middle schoolers.  I'm really hoping I will be able to do it.  I'm 34, plenty of teaching left in me!
 
While Social Security said yes, the Virginia Retirement System(VRS) said no.  Their reasoning: I had RA when I was hired.  I get legal representation for free since I belong to the NEA.  The lawyer sent an entire box of documentation and we are awaiting their answer on the appeal.
 
It is very overwhelming, and scary.  I wish you the best of luck.  If you do get denied, definitely go with a lawyer.
rocckyd2011-04-18 07:39:21Gale, so sorry that you have to apply but thankful that you recognize that it's time.  I waited until I couldn't work any longer, just couldn't do it and applied but I went with an attorney from the very beginning.  They guided me through the whole process and filed the necessary documents.  It was a burden lifted from my shoulders because at the time I was in a massive flare and was virtually homebound.  I was approved 8 months after applying. 
 
It's necessary that all of your doctors are on the same page and that documentation is in line with what you're stating on the paperwork.  I had pulmonary and cardiac complications and I think it made it a little easier to be approved plus my age.  I was 58 when I applied.  Good luck and if they ask you to wear a red clown nose you'd better find a clown store, buy one and wear it!!!Thanks everyone for your input...I will let you know what happens. I probably should have gone with an attorney right off the bat, but I went ahead on my own, and if denied, I will hire an attorney for the appeal. It saddens me that it has come to this, but my line of work puts a lot of stress on the body and the mind, and I'm just not able to do it any more. If things change in the future, I'd love to go back to work, but I'll just have to wait and see. Gale, I've gone back to work now and I'm 65 but I didn't go back to work as a nurse.   You might be able to return at some point but nursing is so hard on your body.  I was a surgical nurse for years and paid a price with my back, legs and feet.  LindyBrisen---I'm with you applying for SS due to my RA.  I have been diagnosed with RA 7-8 years, I also have Lupus.
 
Two years ago I fell and broke my tailbone, from that point on my work performance and attendance was shoddy and the pain from RA is never gone.  I worked as a receptionist--sitting for hours at a time--my boss was less than sympathetic, stating that 'RA was my problem and not to make it hers!".

I suffer from severe depression, anxiety and severe, chronic pain.

Unfortunately, when I went for my 'non-biased' SS physician appt., that doctor informed me that the rheumatologist I use (and have for several years) is not pro-SS.
After my discussion with this non-biased doctor, telling him that I am not able to tolerate the infusions - I have already been on Remicade, Orencia and Rituxin - he felt my treatment options were limited and intended to write that in his report.

My case is still in the 'pending' process--I'll let you know.
Thanks for the info Mawt28. My two docs are very much on board with the process, so I'm hoping that will help. How long has your case been open? As I stated, I just sent it in last week, so I know it's going to take time for them to contact my doctors for my records. At what point will I be called in to see the SS doctor?

Good luck with your application, and please do let me know how it turns out. And BTW, welcome to the forum! The forum is going through kind of a rough time right now...a couple of trolls, but just pick and choose what posts you want to read. There is a wealth of information here!

You might not have to see a SS doctor.  I never did.  About a month after I sent in the paperwork, my local SS office called me to make sure they had all my current drs and contacts listed.  They said they would contact me again if I needed to see another dr.  Next letter I got was the approval letter.  It was all very quick.  Hope this will be the same for you!

I think the reason that I had to see a SS doctor was because of multiple hospitalizations due to side effect/reactions to infusion meds.   I started with Plaquenil and methotrexate, moved up to Remicade infusions for a couple years--until it began leaving horrible sores and scars on my arms.  I then tried Orencia....what a nightmare! got a kidney infection from hell and spent several days in the hospital.  We then tried Rituxin...had such a bad reaction that I couldn't breath.

The problem....I worked for a doctors office and often was treated in their office instead of going to rheumie or PCP.  So my records are spread out over several clinics and doctors offices.  I know that my PCP would write me a letter stating the obvious, my RA has become a disability to me.

I have obtained a lot of information from the internet regarding SS - number one, get these records for yourself, build your own case; number two, concentrate on how RA is disabling you---refrain from words such as---it hurts alot, etc. be very specific like 'I cannot sit for more than 20 mins." I cannot stand for more than 30 min.", etc.

I actually called SS social worker to check on status this morning.  Its been 5 weeks since my appt, with SS doctor.  Gale, I had an appt. with a SS doctor but in this state it's almost mandatory.  I was in a huge flare, swollen from tip of ears to bottom of feet, walked very slowly with a cane, and generally looked like crap.   I was at my worst when I had the appt. which was points in my favor.  My approval was made within a month of the appt.  LindyMy Orthopedic doc mentioned I would probably have an appointment with one of the SS doctors, and he said to just swing by the office and pick up all my x-rays to take with me. I'm assuming the SS dept. will get in touch with me to make the appointment once they receive all my records. I wouldn't necessarily say I'm in a flare right now, but my RA has not been well controlled for over a year now. Actually, it's never really been well controlled, but I'm probably worse now than I was a year ago. Definite swelling and my inflammation markers are highly elevated.

I really appreciate all the advice everyone has given me, and as soon as I know something, I'll let you know too. BTW Lindy, I really like your signature line quote!  Thanks Gale.  I use it as a reminder that just because we sit alone in front of a computer we still are interconnected; even though there are some who misrepresent themselves, their words still have a great impact negatively.  Sometimes I just need a reminder. LindyWell, I received my letter from SS stating that I am not disabled according to their guidelines.  Very disappointed, but I have hired an attorney to help me try again.  I hated to do this because of the cost involved - the 25% or 00 - upon approval for disability.  But I am not in a condition to fight this alone - I know it is important to build your own case, but that involves driving to the multiple doctors offices, hospitals, infusion clinics, etc. to get all the records, etc. 
I am in too much pain to go through that.  Yes, some days the pain is not as severe but it is always there.  Somedays I can't seem to get myself out of bed - although I do know the importance of forcing myself out of the bed because I know the stiffness will set it - but I usually wait until I am forced to get up by having to use the bathroom. I'm so sorry to hear your claim was denied Mawt28. I still haven't heard anything, but did receive a packet in the mail last week asking lot's of questions about my daily activities, changes in my health, inability to work, etc. A few days later my husband received the same packet, asking him to fill it out about me. I'm expecting to get denied also, but like you, I don't have the strength to fight this on my own, and will also hire an attorney if denied. I had no idea what the cost would be...that's a tad more than I thought it would be. Did you check around for prices?
My best of luck to you as you appeal this process, and as soon as I know something about my application, I'll let you know. Mawt-keep fighting.  I'm sure it must be incredibly frustrating.  A lawyer is the way to go so you don't go overwhelmed.
 
Brisen-I remember that packet.  I felt like they were asking the same questions over and over again.  Just wording them differently.  It seemed like they were trying to trick you or trap you in an answer.  I really didn't think I'd get approved right off-but I did.  I hope you are one of the lucky ones.
 
As I stated earlier, SS said yes but the Virginia Retirement Services said no.  At least I am getting the SS income.  I'm lucky that since I am in the NEA, I get a free lawyer.  He called me yesterday and said my drs have all submitted more info.  I should get a hearing date soon.  I laughed and said by the time the VRS says yes, I'll be trying to get back into the school system.  According the the lawyer, there just isn't much money in the system.  Still think it's crazy that the VRS only has to agree that I can't teach while SS has already stated that no employment is really an option right now. 
 
Keep pushing-we are stubborn folks.  I hope that you guys get some good news, and soon!
Disability update: Received a call from Social Security both yesterday and today, asking for clarification of several things. Everything they asked me, I had already filled out on the initial form I sent in, but I guess they felt the need to ask again. I almost felt like they were trying to trick me with my answers. But maybe that's just me being paranoid. She said I should know something soon, as all of my paperwork is in. Even though I'm prepared to be denied, it's still scary knowing that your future is in someone else's hands. I definitely haven't had the greatest past two weeks, lots' of pain and inflammation. I almost wish they would ask me to come in to see one of their doctors while I'm feeling this way, but that hasn't been mentioned. I have lot's of x-rays at my orthopedic surgeons office, but they haven't asked for those either...and those tell a lot of the story with all the damage I have. Anyway, as soon as I hear something, I'll let you all know.
Gale and Mawt, don't be discouraged and don't give up!  As Lindy said get your doctors all on the same page and buy the clown nose if need be.  It took me three years and a lawyer to get my disability hearing and when I got into the hearing even though the judge over the proceedings was a jerk, the panel (a doctor, physical therapist and an occupational therapist) were in immediate agreement as to granting my disability.  My lawyer did not say a single word at my hearing (no need) and the judge told him (in front of me and the panel) he was entitled to a larger portion of my award because the government had approved an increase and the judge would allow an amendment of the contract of charges!!! Brisen-you can check on the SS website on the status of your claim.  You should have been given some sort of ID # when you applied.
 
Hope it works out it your favor.
Don't forget that when you do start to feel better you can work, you just need to be careful and follow your state's guidelines for working when you're on disability.  I was able to work within my state's guidelines.  It made me feel much better about the whole situation.  You have no idea how long the first packet of papers sat on my desk before I got up the courage to mail them.  It's a huge step but remember it's a huge step in the right direction. LindyThat is my goal Lindy, to at some point when the RA is better controlled, to be able to work again. The problem is, nursing is all I know, and working in a busy hospital, especially those 12 hours shifts, seem like it will always be impossible. I've thought about maybe taking a coding class, something where I could possibly work from home. But yes, I will have to find out what the state guidelines are. This was such a big decision to sign the SSDI papers, but it definitely needed to be done. Keeping my fingers crossed I get approved.
Good luck with your application Gale!  Hope you don't have to wait too long and get a positive outcome.  When I finally had to give into it,  I had to go on an Invalid's Benefit here in NZ, not such a protracted process here, just a letter & records from my Rheumy  to take an appt with the Dept's nominated Dr.  When approved, the benefit was backdated to the date of application.
 
Probably only took about 3 weeks altogether, I'm not saying our system is better, please don't get me wrong, but of course, we only have a fraction of your population here, about 4.4 million, so of course if we had your population I'm sure certain that we'd be going through the same sort of admin hoops!
 
I got very lucky - stablised and went into (Medicated) remission about two years later, and was able to think about going back to work.  Dr said to me, a couple of rules girlie - part time - not a full day - not sitting at a computer all day - but something for 1 hr on - 1 hr off - plenty of exercise - even if just walking around an office doing paper shuffling all day, or letter box posting.
 
I decided to have a go at selling real estate.  I could work from home at my own pace, all our company databases and resources could be accessed from home, only required in office at a weekly staff meeting or on a duty morning.  And even got to do the letter box posting promotional stuff on my compulsoty walks around the town.   I Didn't make much money at it, was commission only, I had to declare anything I did make to the benefit providors, and they made the necessary adjustments, which weren't too bad really, and within their guidelines.
 
But it was a challenge for my brain, (which had almost turned to mush in those two years I was not working),  got me out and about, and with my tasks being so varied, felt that I was succeeding in getting back on top of things.  It was great! Did it for three years and no probs. Now I've just recently retired,  and enjoying kicking back, still getting out and about, but for enjoyment now rather than survival - but that was my choice and quite a differerent scenario - I'm 65 which is the age here to get Superannuation!!  And I'm determined to make the most of everything for however long this remission lasts!! 
 
So I think you're definitely on the right track Gale - thinking about working from home - it's got a lot going for it, promise!~  As an experienced nurse, you must have a whole heap of transferable skills, that could slot you into a lot of different niches.  I'm not saying it's the only way, but for me it was a heck of a lot better than putting on a brave face for others in a work situation if I wasn't having a good day.  And I didn't have to worry about taking time off work and losing pay if I had not such a great day - just would blob out and work from home in my dressing gown!!  And I could leave my false tooth out LOL
 
Omigosh, I've done a real ramble, sorry! 
 
 I really hope you will have it granted before too long.  I'm sure I'm not the only one hoping this gets attended to quickly, it will certainly lessen stress, and then you might get a better feeling for what and how much you might be able to do with yourself workwise! 
 
Anyway, all the very best from me.
 
Hi Gale, you don't have to go back to nursing....I know you think you do, but you don't.  There are many other areas that you can use the skills that you have, health insurance company/office, doctor's office part time, lab, nursing facility other than hospital, private nurse, non profit organizations, school nurse, wellness classes, just ask me, I'm full of ideas and have worked some of these jobs when I was on disability.  Right now I'm with the Coalition for Senior Citizens and manage a couple of the programs at the senior center.  My nursing experience has helped me a great deal in this job.  Take the time on disability to brush up on some other skills that will help you out.  Take some classes at the local college, some business courses from the Small Business Association and join organizations in your community, volunteer you time and services at the senior center or one of the other organizations that use volunteers.   Nursing can lead to numerous opportunities.  LindyYou're so right about that Lindy...there are so many avenues to take in nursing. I think I'm still trying to accept the fact that I can't do the type of nursing that I used to...critical care, PACU, surgery. I've felt so awful since I had the knee replacement revision in November...just haven been able to bounce back, even with doubling my Simponi dose. You've given me some good suggestions for when things turn around and I start feeling better. One thing I don't want to do is stay home every day laying around...which is what's been happening since November. I still need to have my right knee replaced, and a revision of my forefoot and ankle fusion, so I know I'll be down for a while. I just hope and pray I get accepted into the disability program for now.

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