hey! anyone tired of getting treated like some alien just because we look puffy and wierd from our illnesses and prednisone and other meds we are on?! I never expected this! Even my family wont put up any pics of me since I went from having RA, etc and looking somewhat ok... to now looking like something is wrong with me, but people arent sure what... since I am almost always swollen, etc. I look like crap and I never used to care too much about vanity, which also makes me mad. I was all about cycling, my very physical job and did many other sports... for which I am so thankful I could do those things when I did... even when my knees hurt since I was 5 or smaller. I may have had JRA too then. Anyway! I am so tired of feeling bad about the stupid looks thing when there are so many REAL problems in the world! Anyone experience this? It makes me mad also that "regular" folks who are healthy who choose NOT to exercise, etc are considered just fine, while I get the crappy comments and looks and I didnt choose to be ill! I am only 34 and this sucks! My family avoids me since they just dont handle this well... and friends are hard to find. So... anyone want to chat about that or share an experience?
I can relate to this--when I went on chemo, it freaked out my boss and coworkers because I looked a bit weird being almost completely hairless and my skin and nails looked a bit alien. I'm sure it's why I lost my job.