Several of ya'll have said that you do yoga, Id like to know if you go to classes or use a DVD in your home. The only DVD i have tried was seriously painful the day after. Pilates was also suggested, does any one do this? Right now Im using a Lesli Sansone 2mile walk DVD, but thats only for cardio.And I have tried Pilates before, oh wait it was a Joseph Pilates "Based" tape, and I gave up in the middle of it. Any one have any advice?
ps, I heard yoga makes you Fart.....
I have the Winsor Pilates DVD's. I did them faithfully about a year ago and then got too busy with work etc and stopped. I've been thinking about getting them out again and using them, but I'm just too stinking tired all the time. I'm just going to have to force myself I guess. I did like them though.Yoga is just not my thing. I tried at the fitness place. The music about drove me crazy. Plus, my legs start to tremor when I exercise sometimes. That was just too much to handle in front of others. I never had any flexibility.
But I swear it was the music that was the worst. If you can do it, that's great!
Yoga is the most nurturing thing I do for RA. I do a gentle yoga class that makes my joints feel so much better. On Saturday I am starting a water yoga class. Also for home, it is the best, Rodney Yee, AM PM on DVD. Please try it. It has helped me more than any meds and is so nurturing. Good luck on your journey. RoxI have heard that Rodney Yee is very good. In fact I had a friend that would make her kids do 15 min of Rodney Yee when ever they got to hyper. I still havent gone to a yogo class but I really want to. I tried Pilates before, I ended up laying on the floor watching the video and thinking they were nuts if they thought that was for beginners. I like Tae Bo, but I lost my tapes when we moved.The Winson Pilates tapes are the best. You won't get hurt because she alligns you properly. Yoga, too is so good for our joints. Even if you do not do yoga ..the MOST important exercise anyone can do is stretch. I am looking into a Thai Stretching Massage for my Mother's Day Gift to myself. My business partner said it was amazing. She had one at "We Care" spa in Palm Desert.
Good Luck!!
I have been doing Pilates on the reformer through physical therapy and now am working towards ball stuff so I can do it independently at home. It has helped me so much! And it seems so much more doable with a real person there to help you adapt the ones that hurt.You have to get it through your doctor's head how bad you are hurting. They have to do something for you.
Is there anyone who can give you some relief from caring for the kids? What about dropping them off at a church nursery or something like that and then going home and taking a nap (or pain meds). If you are not getting enough rest, your body cannot recuperate. You need some kind of relief on a regular basis.
Will any of your family help you at all? Friends?
I ache for you.
Well my mother took the kids last weekend I slept forever saturday and sunday if it wasn't his b-day and our anniversary I would of never went out on saturday.My mother is very supportive and she takes them when she can she has Valley Fever and might be receiving chemo intravenously for two weeks straight. She is as sick as I am But she doesn't have pain like this. Her meds actually make her throw up every day two to three times. She is also going to see a ENT doctor her thyroid needs to be removed she is having troubles swollowing. She a tough woman and an inspiration to me. As for his mother not so good we hardly ever see her and she never visits the kids. I wouldn't feel comfortable leaving them with somone they don't know.
You have a tough situation to say the least. Valley Fever is so hard to get over. I feel for both of you.
Okay, let's see, your husband is not much help. Your mother-in-law is not someone you consider dependable. You mom helps as much as she can, but she is so sick herself.
Oh boy! I take it that you cannot do Vocational Rehab because you are in too much pain and that also means you are in limbo about disability. Circumstances would suggest you don't have monetary means to hire someone to come in to the house. That's what is coming to my mind. If you could find someone trustworthing to come by daily for an hour or two, if temporarily, that might help you get through the immediate situation.
When I was in high school and college, I used to babysit for a woman. I didn't get paid much, but it gave me a little spending money and helped her a lot. I came to care for the kids very much. You wouldn't have to leave the house which is important to you because your kids are so young. But just having someone else watch them during that period of time, especially if it was a predictable time, might make the situation more bearable.
I wish your husband was more supportive. Maybe you can talk to your mom and between you a solution will present itself. I know that when I can't physically help my daughter that sometimes I can help her financially or by getting her brother to help.
If you could do what you felt you needed to, what would it be?
Desert Child, I am so glad you are feeling energy. We have to muster it for our families most of all. Enjoy the good times and don't expect bad times, just go with feeling gooooooooooooooood. Wishing you the best. RoxI think I would defianetly have someone come to watch my children but once again would my husband be happy to pay someone to do what he says is my job since I don't work. I dont know I just can't take this anymore.Your husband is not being fair to you and not being loving. A loving companion would do this for you. It is not about whose job is it. It is about does he want to keep the mother of his children well enough to be a part of their lives. He should love you enough for this and you have every right to expect him to help you.
I know that might not be the case. But we have to face so many facts with this illness. It isn't that much to ask and if he will give into this then you will begin to have energy to be more resourceful. Having energy will help you save money in other ways. You are ill. You need the help. Your children need someone there too. He can spend the money on doctors and medicines or spend a little on helping you get back on your feet.
It is supposed to be a partnership, not a you do it because you are the woman or you are the man. If he was this ill, and you worked, would you be willing to do this for him? I'm only suggesting a couple of hours a day until you feel better. You need something to help you get over this. As bad as it seems, not every day will be like this the rest of your life. But if you keep pushing, with this much emotional stress, you can make yourself much more ill.
Please care enough about yourself to find a way to do something like this. I have been at the point where I haven't been able to work and my entire family has had to accomodate me and had to do without very essential things. But now, I can help all of us much better. Sometimes you must crash and burn before you can rise like the Phoenix once more.
Im hoping he will come to my next doctors apt. SO she can show him the problems maybe she can tell him better than I can. Or is it he thinks this isn't that bad. I dont know. Maybe some film with some nice bone missing will show him I m not faking or maybe she will enlighten him a bit. Thank you for the help I needed someone to be there today thank you for being there to talk to.I think that is a wonderful idea. It helps so much when a family member comes. One, the doctor starts taking you more seriously and the other person gets educated. Sounds like a very good start.
Hang in there. I hope you have a pain free day tomorrow.
Hey Nichole, it sounds like we need a special RA Class for Husbands. I am in the process of trying to educate my husband in all of this. I was starting to think that I was better off with out him because he was just making me feel worse. We had a big blow out on Wed and I finally told him exactly how I feel. I think it has helped. We still have some things to work out and discuss but I am hopeful. Sometimes people change, but alot of times the change is temporary and deep inside they are still the kind and loving people that first attracts others. I am hoping that the great guy that I fell in love with is still in there. I am not letting my guard down yet. It took a lot of anger to get me here and it is going to take alot of understanding to get me back to a comfort zone. I think one thing that also made a difference was that I didnt tell him all of this in a fight, I just called him up and said look here, we need to talk....and out it all came. With summer break just around the corner, a teenager could be a cheap way to get some help with your kids or with some housework. Maybe you can sit down and talk to your husband...I should have done it sooner, but I thought I could avoid contraversy by just ignoring him. I think I was just pushed too my limit though. Good luck girl.That how I feel maybe Im better off alone. Another problem is he doesn't even care that mothers day is tomorrow the only one that is doing anything is my parents there having a bbq so Im upset that he doesn't care plus its his day off today and what is he doing sleeping while im watching the children, cleaning the bathroom, doing laundry, and I didn't get any sleep last night. I tried to go to sleep around 230 but I was in pain and couldn't. All he has been thinking about is himself. How all this is affecting him not the family or me. I think Ive had my limit with him in general.I have been married to lazy, uncaring men and it is heart breaking so I know what you are going through. But the solution is not an easy one because it involves so many things. I don't tell people to leave someone because how do I know if it is the right thing or not. I've seen some women be able to teach their husbands how to act and others decide to leave.
I left because they were abusive and eventually it was my life that was at stake. I will say that you can make it on your own if necessary, but it is not an easy road with young children. If he is irresponsible now, he is going be even harder to get financial support out of later. Plus, if you love him, then this is a heartache that you will always carry with you. It is very hard on the kids. My divorce was a continual war zone.
Maybe you should just stop doing things for him. Tell him until he starts to help, he's not getting any help from you. Don't cook him any meals, clean up after him. Nothing. If he gets mad, leave with the kids and stay at your mom's until he can be reasonable. However, if your relationship is abusive, this can be dangerous.
You really need to talk to a counsellor. If he won't go, go by yourself. I did that more than once and it helped me sort out things. Regardless, stay safe. If you can let it roll off your back while you're feeling bad, that's ok. You need to solve these kinds of problems when you are feeling better.
Desertchild; Leslie Sommers has a video out that has walking and yga together. I don't know if they have it in your area but there is yaga classes for people with ra. Now the pilates I use the pilates machine I like it because I go at my own pace, I have a hard time finding videos on different uses of the pilates machine though. memeFirst time this happened to me was at physical therapy. It was way embarassing. All the therapists gathered around me to try and figure out why it was happening. They were really worried about me and talked my doctor into sending me to a neurologist. I'm laying stretched out on one of their tables with my legs doing their own little dance thing and I have no control of it. Actually, they were geniunely concerned but their scientific curiousity was taking over as a great deal of them were studying for degrees. Ah! Deanna, the experiment.
Well, I guess it's just me. The solution-- they stopped icing me down after therapy.
But when I tried yoga, the tremors started again. My doctor and I both think it is some kind of muscle fatigue. But really, I'm doing whimp level here.
You know what I hate is those commercials that if you take Remicade or Enbrel, you get you life back and you see people riding bicycles, etc. I cannot even imagine that. I just want to make it through the grocery store without severe pain at the end. A marathon -- not for this kid.
I do tell people I had to give up skiing. I never have been skiing. Oh, we can try and say I did water skiing. But I never could get up on the skis. They dragged me across the lake all summer and I had a blast falling on my face and falling on my butt. It was great entertainment for my friends. I love the water even if I go crashing into it.
But it is funny when I tell people that I had to give up skiing. They get this sad look of compassion on their face. I get a kick out of it and a smile. I never was coordinated enough to begin with. Skiing probably would have killed me without RA or OA.