Ah! I am so happy to have a place to come and say how I really feel. I'm glad I'm not alone any more in this. Being able to come here and say "ouch!" is like taking the best pain reliever in the world. It doesn't really change my situation, but it makes me feel lighter and more in control. I feel the same way. I know my husband gets tired of hearing it because he has no idea what it's truly like. He does his best to comfort me, but it's not always the same as sharing it with people that know exactly what you are going through.Ditto! I've given up complaining, I only makes you feel worse when you get a grut back for a reply. I still complain to the cats, and they at least purr back at me.
I bought some water shoes and my foot sores are healing nicely. YAH - I HAVE A PLACE TO GO TO SHOUT OUT SUCH TRIVIAL STUFF LOL Amen Deanna! My hubby listens but has no idea what is really going
on. I have grown children and they have a fit if Mom is not feeling
good, so I am always feeling top notch when they come over or call.
But, if I really feel like whining, I can come here. Not only that, I
learn so much from others...Love it, Love it!
Luv, Justme
Kelly - where do you get those avatars? They're hilarious!!
My husband doesn't understand why I spend so much time at this site - but I learn something every day, and I learn how to deal with different challenges - some things I haven't even thought of. Then they crop up and I think - yep, I know about that. It's made my trips to the doctor so much easier & more worthwhile, too.
My brother and sister don't want to listen when I start talking about this new journey in my life because they don't want to accept it. I have always been the strong one and the one they come to, and I think it is scaring them to see me deteriorate in front of them, so I am going to just try to not act like I hurt when I see them because I don't want them to worry. My husband has had three major back surgeries and is for the most part disabled but able to get around still a little, but he is addicted to his pain pills so I am not that important to him anymore. He spends time with others who overtake their meds. My son is wonderful and my reason for living :)
I am grateful I found you all here.
Iam so sorry to hear about your husband does he know he has a pill problem. My husaband mother had a problem with it also when she was having back problems then after the surgery she relized she had a problem and tapered off of them. Does he want help? This is a great place to come for support and to vent. I'm coming off my metetrexate today and I hurt all over and feel depressed. I take enbrel on Wednesday which makes me more enegized. Then I overdo it Thursday because I feel better, and die on the weekend recovering from MTX. It's so variable. Last weekend we drove 7 hours to LA and other than walking like an old bent over man after I got out of the car, I did really well. This week, no long car trip but I die.lindak, are you are coming off the MTX or do you mean your week is up & you will be taking another dose?
Trisha
I need my daily fix here too. sometimes to vent, othertimes to hear what everyone else has to say.I don't complain to my family, my husband wouldn't be able to handle the truth, he is a big baby about his own health issues, which he has very few of and will only jump to help me when I ask him to. Our oldest daughter is home from college and is overly intuitive, she's only been home a week and is driving me nuts with her helpfulness. She's mad at her dad and sister for not helping more and my not asking for more help because I'm "heavily medicated". She's an EMT 1 and knows just enough to push my "Hey! I'm doing better than you think" button. These boards, and I visit four of them, reassure me that I'm not the only one out there who's dealing with chronic pain issues and that ironically, if my DD and mom only knew, luckier than most. I was dxd with RA 18 years ago and had my 1st horrible flare last Dec., I'm not back to what I was last summer, which was just moderately miserable, only MTX for 16 years kept it at this slow decline. I have so much empathy for those of you who were dxd just recently, but sound like you have gone through so much more than I have. Despite my health, I am so fortunate, married for 22 years, 2 wonderful daughters, a job that takes my mind off this crappy disease and where my boss will do anything to keep me. These boards help me count my blessings and keep me from cleaning my house.Welcome Ninil! Glad to have you join us.