newly diagnosed | Arthritis Information

 

Hi everyone Im so glad I found this place, for three months I thought I was losing my mind. Im a 47 yr old female with a great husband and two wonderful children who just graduated college. My life was going along like a perfectly oiled enginge and then overnight this huge truck called ra came along and swiped everything out from under me in a blink of an eye. I watched my mother suffer through years of this and finally lost her battle when she was 56 due to complications of endocarditis, Ive spent hours amazed at reading peoples entries in these message boards because alot of them is as if I wrote them myself. Just recently I couldnt for the life of me figure out why I have been so tired but I see its a common complaint. I have severe pain in my shoulders hips knees hands and feet and have already suffered a bout of endocarditis myself. Thanks to all of you who help all of us new ones out you dont know what a comfort you all have been for me.Welcome USMOM to the board. 

 

Thank you for your welcome Lindy. Its nice now to have a place to go where people can truly understand what your going through, Its a really nice suppoort system you all have set up here,thats an important part of dealing with something chronic I believe. Welcome usmomm, I've found this group helps you get through some tough times because somebody has already experienced it. You're never alone with your RA. The fatigue for me is worst than the pain, I get used to the pain and block it out (as much as possible), but I can't block out the fatigue. Best wishes!I thought it was the meds at first because my rheumatologist has me on methotrexate, humira,and the pain center I go to has me on avinza, but I wasnt tired initialy when I started my meds, maybe its built to a certain level now and its having a different effectHi and welcome Usmmom! Welcome, USMom - Getting diagnosed with RA is like getting a ticket on the Titanic. These forums are little lifeboats. A lot of good people with a LOT of good info here. Makes living with this disease a little easier. Good metaphor Fiona.  Welcome USMOM.  For the first 1.5 years, RA was just pain to me, extreme, debilitating, depressing, panic pain.  Now with my meds, my biggest complaint is I am tired all the time.  I mean all the time, VERY TIRED.  I am going to water exercise and the water wakes me up but then I get home and I am still tired.  I have been wondering if I have fibromyalgia from this fatigue but I know RA will do it too.  I understand your grief.  I used to be very very active with more energy than I knew what to do with.  My whole life has changed    Welcome usmmom.


MarisaYes, welcome :) This board makes me feel not so alone.Ron Im sorry I meant pericarditis not endocarditis I mispoke and got the two mixed up. Thank you for your reply thoughWelcome usmom, This is a great place. We all are dealing with fatigue, pain, and trying to maintain work and home. Glad to have you with usOK, no problem, Google pericarditis+lyme.

Then Google dr charles crist and follow the Borrelliosis links until you find where he says, "Lyme borreliosis can cause any symptom and any disease".

Lyme disease was discovered in 1975 when a mom questioned why young persons were getting a rheumatoid-like disease.

Research is the answer to our problems.

Good luck!

Ron

A big welcome to you usmmom. You will find truly amazing people here who will help you understand what is going on in your body. I'm new to RA & I have questions, & the people on here have just been wonderful to me. I wish you well.

Trisha

Welcome to AI--Are you taking folic acid? It has played a huge role in managing my fatigue.Welcome to the forum.  I was feeling so lost when I found this place too.  I have a mom that has it, but I never truly appreciated what she went through until I was living it myself.  It does help to read what others are going through.
Thanks again everyone for the warm welcome. Yes crunchy I started taking folic acid because of anemia that the dr said was common in people with ra. It has helped some. I have a lot of flares though but I think its because Im newly diagnosed and their still trying to balance out my meds. Its like hit or miss each day I never know what joints or how many or for how long thier going to be affected. That tends to be the nature of the beast.
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