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Yesterday was a high energy day...felt pretty good but today I can't even squeeze the toothpaste out of the tube, nor pull up my pants, can barely hold my coffee cup.  What is going on?  I know that there are good days and bad days, but it seems when there is a good day then the the bad day that follows is soooo much worse than before.  This has been happening since I started the Mxt 8 weeks ago.  Good and really bad.  I never complain but this is weird for me.  Sometimes its part of the day is great and the other part of the day is terrible.  I can be right in the middle of a project and I have to stop because of pain and inflammation. Any advice?

You describe my normal perfectly. I will do exactly that, feel great one day, maybe several days. Then, it hits and I cannot do the simplest things. It is very hard to cope with. I try to balance my energy better, not tire myself too much on good days and reduce my efforts on bad days.

I know it is getting worse for me. It takes me nearly two hours to get my body to be able to move in the morning. Sometimes getting up off the couch is a physcial challenge. It reminds me of when I was pregnant and we had a couch that sunk in the middle. Only this is my muscles and joints that will not work together to do the function of getting up.

Consequently, I won't let myself lay down and rest until I just must. I'm glad no one can see the contortions I go through to get to my feet. They would laugh. They wouldn't be able to help themselves.

To answer your question, talk with your RD on your next visit. Maybe there is a med adjustment that will help. I know I must completely rest before I get back up to the good day again.

I have to agree, that seems to be my pattern too.

I think that just describes life with RA but If your bad days start to out weigh your good an increase in your medication or an addition to your medication might do the trick.

 

Kelstev, am on 18.5 mg of Mxt weekly and Enbrel 50 mg. Will be starting Remicade at end of month and hopefully will get some relief.  Your right Lovie bad days are starting to outnumber good ones and I am refusing to up the Pred.  On 15 mg a day down from 35 mg. Guess I was looking for a magic answer.   Lindy, I can't offer any advise but I hope that you're feeling better.


MarisaLindy,  I remember when it was like that for me.  Now it has evened out some.  The Enbrel has helped.  I hope you get better results from the Remicade.  Hugz Lindy, You sound a lot like me. The MTX really throws me for a loop and I'm only on 7.5mg. I can't figure out a patern to the whole thing , except for the MTX which predictably makes me feel lousy. Have you tried enbrel? That gives me energy for a day or two.

LindaB, sorry to hear you're in pain. I get the same exact symptoms.

These things sometimes help me... rest, water, green tea, bath soak, stretching, massage.

Any other advice would be great.

feel better...

 

I don't think it is all mtx because I am no longer taking mtx.  Too hard on my body but I have the same symptoms.
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