I am a new member, have pmr and am taking 15 mg pred. i am in so
much pain, and have extreme fatigue, I also have chills,which i
amwondering if any one else is experiencing.
Hi Georgiana,
I'm new too. I've had PMR for a couple of years now. I'm also on prednisone, and we're tapering down this week to 12.5. I also take Cymbalta 60mg a day to help with the pain.
On a good day, I feel good. Unfortunately, my immune system is shot with the prednisone, so I get sick every time I turn around. When I get sick, the PMR flares, and I feel awful.
I struggle with serious fatigue. I also seem to run a low-grade fever any time I'm moving. I don't get chills, though... usually I'm so hot I'm miserable. Of course, it doesn't help that I live in southern Louisiana!
Hi Laynie
I feel so awful today, it isn't funny, i feel
like i am dying, pain across my shoulders and my hips and legs weakness
in my arms and legs i feel like i can not even walk, can not go and get
the mail, down a flight of stairs, some one has to help me, i can not
go on like this
I also get a low grade fever some time, does the cymbalta help? Thanks for chatting
I'm so sorry you're fighting with a bad flare. I'm in the middle of a pretty bad flare myself, thanks to the shingles. During a bad flare, I honestly can't even make myself a sandwich.
The Cymbalta doesn't help with fever. It's great for pain management, though. It's actually approved for pain, and antidepressants have been used off label for pain management for a while now. Also, my doctor prescribed Soma for the muscle pain and spasms I have... I don't know why it works, but it works better than narcotics!
Hang in there. This sucks, plain and simple. But it will get better, eventually.
I have never heard of soma, what type of drug is it ?
Do you ever experience a heavyness in your head, or have any trouble
with a feeling of unsteadiness like you have to be careful when you are
walking that you don't fall, like your head is foggyand your eyes are
tired and heavy................... i have so many crazy symptoms, I
think I am going crazy sometimes................Did you ever hear of
anyone getting better from this?..........................Georgiana
Brainfog. It's like my brain is wrapped in cotton batting, and following a conversation, or doing anything that requires focus, is just so incredibly hard. And yea... when I'm flaring, I have to be really careful, because I fall over or run into things.
Soma is a muscle relaxant that also helps with pain. While it helps the pain, it doesn't help the brainfog.
Hi
I hope i get some feedback. Yes, I get the chills too. If fact I woke up during the night with them. I think the worse thing is there if nothing one can do to warm up. My hubby doesn't understand why using a heating blanket doesn't do the trick. I've told him the chills are inside and in the muscles. I do hate them. I'm on my way down with the pred. I'm down to seven and hope next week to go down to 6mg. I do so want to get off this pill.
Please let me know if any of you have these chills and what you do about them.
thanks everyone
Anna
hi
It's me again. Totally down in the dumps. I was on my way down from the pred. at 6mg. I went to my rheumi wednesday and am now also plaquinil. My sed rate was 77. Instead of going down it is going up. Ihave a very sensitive tummy so last night was not a good night as it was the first night on plaquinil. At least the chills haven't hit me again. Have to stay at 6mg. for a couple more months. I figured my sed rate was up as my legs were so darn shaky.
I hope all of you are doing better. Laynie I hope your shingles are going away and I hope your flare up is lessoning Georgiana.
take care
anna
This interests me, as I have had this on-going problem with colness. Not chills or shakes, but just cold cold cold, like I can't get warm. I thought it MUST be a thyroid thing, but although I have autoimmune thyroid antibodies, my actual levels are normal, so I'm apparently not hypothyroid. But I never see sensitivity to cold mentioned as part of PMR. When I;m not on pred I am utterly miserable with pain, fatigue and COLD.We have a warm and comfortable home, but I still could not get warn. And once I was cold, the only way to get warm again was to immerse in warm water and warm through like that. This is all new, and came along with the PMR.Morning everyone. I sweat profusely about the head and face and nowhere else since I've been on prednisone. It's a wonder my head hadn't just melted away and ran down my neck and shoulders like lava or something. It is so aggravating in the summertime! A chill sounds pretty good sometimes.
Have a good day, predheads. Gotta get to work.
Hi, all!hi
Me again. Chico you got it right. It is not chills. It is cold. I try to explain to my doctor that I feel cold inside. I feels like it's in the muscles and in my chest. No matter what I have on or try to do I can not warm up. I have find if I cover my head and try to bring on a hot flash, yes even at my age, it tends to warm me up a bit. I do have a thyroid problem and am on synthroid. I've awaken in the night being so cold, even tho it is warm and I'm covered up. I so hate it. If you ever find out what is causing or if I do will let you know.
Knitwit, welcome to the world of menopause.lol When I went thru it, it was surgically inducesed, and since had blood clot problems could not take anything for it so went thru hot flashes galore. I remember the ears getting beet red. People at work would kid me all the time. Lived thru that and will make it thru this stupid disease too. One day at a time.
take care both of you
Anna
ps. Knitwit, Back surgery are not one of the operation i hold a lot of success with. Two of my sons and a brother had one done. One of my sons had a new type of surgery where they go thru the front. His came out beautiful while my other son had a fusion and it has been a totol diaster. Same for my brother. He has had two fusion and his doctor wanted to go back in but he said that it was enough. No more surgeries. He is 72 and says he has had enough. He looks like he is in terrible pain. I guess not enough for my surgeries. Tell you mom good luck.
Teeger,