HAP Sucks | Arthritis Information

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Well, they did it again. You may remember that HAP, my insurance company, denied me any medical treatment from December until March, requiring test after test that had to be done one at a time before I could get any help. So it took 3 months before my RD was able to prescribe a medicine. She said my RA was very aggressive, and said she didn't think MTX would work for me, so she prescribed Humira. My insurance company denied it - but they waited a week to do that. Then, I had to get ANOTHER appointment, a month later, to actually get the MTX. So - December to April, basically no care.

Well, the MTX, as my doctor predicted, isn't really working. The swelling is back, the pain is back, and now I have terrible heartburn and really bad cramps in my neck and feet.

So my doctor prescribed Celebrex. I was afraid to take it, and it doesn't agree with me, but it helps the terrible cramps in my neck and feet. She gave me a sample, and then wrote a scrip. HAP, the HMO, in its infinite wisdom and to save a few bucks and make more money for its shareholders instead of taking care of its patients, denied the prescription. Do you believe that? I am so angry right now, I'm thinking of filing a lawsuit. Man, they do really suck! Can you switch insurance companies? I would raise hell like crazy! Maybe your local news consumer defender could help you.

Try this first. There is usually a patient advocate in most insurances and you can file a complaint with them. I have actually had that person get up and walk over to the person holding up the authorization, chew them out and get me started.

Also, these doctors can help push these through. Keep bugging their nurse until you get what you need.

I will not go with an HMO because that is their policy and their slow attention nearly did me in.

If you don't get results from either of these, then call your State Health Insurance office. You may be able to raise a complaint there. But your doctor should be pushing these authorizations through. At one point, I discovered the problem lay in this lazy, uncaring nurse.

So, push.

I'm going to push, Deanna - I have the feeling they'd be just as happy if I died and got out of the way.

My doctor isn't in the office today, so I had to leave a message - but I'm going to look into the patient advocate. It's a great idea. I usually just go along, but I can feel myself getting worse and worse every day, and I just can't go back to where I was in December. And I can't go back to 20 mg. prednisone.

One reason I'm so upset it that the foot cramps kept waking me up, so - not much sleep last night. Then the insurance company kept me on the phone for an hour this morning. It didn't help my mood any.

Crunchy - I can change at the end of the year - and I might - but part of me wants to stay and stick it to them. They do this to chase people like me out of the system. It really makes me angry, because there are other people out there who can't fight back and who have no support, and someone needs to stand up to them.

I'll tell you - I am learning so much from RA - maybe it's a blessing. I had no idea how bad it was for people who were really sick.
The paper work involved is overwhelming and that is why each physician should have a person on board that does nothing but insurance for their patients.  But, the physicians do not want to pay for this service.  So, the poor nurse gets stuck with all of this and on & on & on.  It all trickles down to the patient who is paying for this insurance and receiving no benefits while their diseases go untreated.  This is truly a soap box issue that is way out of control.  I am so sorry for those that are suffering. 
I Wish there was a magic wand in the mix.

Luv, Justme

The goal of most HMOs is cost containment and not patient care. If you talk to most doctors regarding HMOs they are just as frustrated as their patients. Someone in the HMO office is deciding the medical care for their patients. I don't know if HAP is an HMO. But I have found that PPOs are much better. You pay more up front but it is worth it. I do not have to go to the referral cycle on anything. If my doctor suggests I need to see a specialist, I just have to find one in my network. I can still see someone outside my network, but I pay more.

Justme is right about the state of affairs in a lot of doctor's office. If you see the little cartoons making fun of HMOs in the office, then you know that they are experiencing this type of problem.

I would look for a PPO and not stay with your current one when you have the chance to change. In order to change the attitudes and policies of these companies we need legislation that does not allow them to rule the nature of our medical care.

Yes, they want you to die off. There have been many investigations into their practices. RA is one of those illnesses that insurance companies have to keep paying and paying on. It is heartless in the extreme because it is about your life. But for them it is about the money. The one thing you might be able to do is to get an investigation started on their practices.

Right now, though, fight for the care that you know you are entitled too. Get better, then fight the war. Just document everything as you go.

 

Oh God! As if there weren't already so many things to worry about with this disease! I think the patient advocate is the right direction now, but don't stop there or rest until you get appropriate treatment. I would sue the pants off them too, if they kept you from treatment and as a result caused deformity or loss of earnings! Make sure you document everything you get from them in the event that you have to do that!!Thanks for the support, everyone. I've calmed down a little (okay, a lot). I can't do anything more until I talk to my doctor, and that will have to wait until tomorrow.

It IS an HMO. Geez - if I'd had any idea I was facing RA, I wouldn't have kept them last year (where's that crystal ball when I need one?). We switched from Blue Cross because some of our doctors were dropping it, and we wanted to keep our doctors. They're both gone anyway, so...

There is no way (in Southeast MI) that you can have all the doctors you want with a single plan. The podiatrist might take one, and the  RD a different one, and the pediatrician someone else. It's very frustrating, and I've never seen a system like this before. In addition, they play musical chairs, so it's almost impossible to keep the same doctors year after year.

Also, you have to worry about which hospital your doctor is affiliated with, and there are a LOT of them. Even though my RD does blood tests in her office, I have to go someplace else and wait a couple of hours to have bloodwork done.

We do have healthcare, and even though my experience says this insurance company is subpar, nearly to the point of criminal, I do eventually get treatment. That's more than a lot of people can say (bashes head against the wall). Fiona,  I am SO SORRY.  I think HMO should be illegal.  How can they not be trying to save money.  It is just like the institutions they put my daughter in, they are for profit, no motivation to help her become independent

I wish you luck with getting the right medication SOON!

Trisha

I heard a story on the History channel about how Brazil made it a consitutional amendent that everyone is entiled to decent health care. This had a powerful effect on the country. For instance, one lady who had aids and was dying was able to sue for those expensive medicines. I truly think this is what we need first, an amendent to the consitution. Then, let them figure it all out from there. Seems the way it is happening is only paying the insurance and drug companies. Many RDs are quitting because they cannot make the same money as say a Cardiologist. Roxy, the way we treat people with mental illness is disgraceful.

We DO need a constitutional amendment that guarantees everyone the right to decent health care. Emphasis on decent. My husband & I have been talking about this, because medical research in the US, funded by us, pays for a lot of the advancements. When the drug companies can't gouge us for the cost of medicines, they might not invest as much in new drug studies.

But what good are all of thes medicines if no one has access to them, and if people are dying for very simple procedures? A lot of insurance companies keep health care costs down by kicking out the people who need them most. When hospitals went to for-profit status, that's when it all fell apart. My doctor, bless her heart, goes on prescribing these drugs. I know she'll get in trouble for it down the road. I'm pretty sure she's supposed to tell me to shut up & suffer.

You know, Deanna, being an RD is kind of thankless. You make less than doctors in other fields, and your patients never get better. I'm not sure I could do it.
Fiona38873.5297453704Fiona, I pay cash because it is cheaper than insurance rates.  I spend about 170 for an office visit and a blood test.  I don't get x-rays or any of that expensive stuff.  I will eventually see her every three months, and if I get in great shape, every six months.

MTX costs me about 25 dollars a month at Walmart.  I am also on pred that runs about 7 dollars a month.  I plan to ask for Arava next, because I know the generic version of it will be about 130 a month.  I can't get insurance cheaper than those prescription prices.

My doctor has a lab for her blood tests, and sometimes there are community labs that are cheaper.  If you have to go get treatment for cash, I say do it and don't even tell the insurance company.  Still do what you can to get what you need from them, but you might be able to work out paying cash for some of your meds in the meantime. 

I really hope you get some relief.  I have no insurance and feel your pain.  Good luck.

Fiona: There are several steps you need to take to have the prescriptions and treatment plan approved.

1.  Have your RD write a letter stating diagnosis and his/her treatment plan.  Backup with copies of lab, xrays, etc.

2. You need to write a letter of appeal and send along with the RD letter and support documents.  Your insurance company has a set of rules and regs that you will have to follow for appeal.

3. Make sure you have the correct address for the appeal or review department.  Don't send it where you send claims.  Either they'll have a different address or P.O. Box.

4.  Besides mailing I would fax the above to the insurance company.

5.  A couple of days after you've fax'd I'd call the co. and find out if the paperwork made it to review/appeal.

6.  Make sure you get the names of each and every person you talk to at the ins. co. and jot down dates and times that you called. 

7.  Call the offices of the Insurance Commissioner for the state where you live.  Ins. Comm offices are usually in the state capitals. Look on internet for telephone number and address. Find out if there are any other complaints lodged against this ins. co. Ask the person that you called how you can lodge a complaint.  Follow up and file an official complaint against the company.  Send a copy of the complaint to the insurance company.

8.  During all this time keep checking with the insurance company about progress of appeal.  Keep notes as stated above.

9. If this doesn't elicit a positive response from the insurance co. I'd call your state Senate representative's office and explain the situation to them.  Elections are coming up!!!  They need to be makeing big points with their voting public.  Once again get names.  Package everything up along with a cover letter stating that you spoke to so and so on such and such date and here is your complaint and appeal paperwork.  I've done this when I was an advocate and Senator Reid in Nevada was always helpful and several times the client got what they needed. 

These are the only suggestions that I have except don't lose your cool, be calm, direct, and don't take no as the final answer.  You don't want the ins. co. as your best friend but then you don't want them as your enemy.

I spent 15 years as Director of Managed Healthcare and Workers' Compensation for the dreaded insurance company.  Please don't throw darts at me.  I've since retired.

 

AZ, that's an excellent suggestion. I was wondering how much Celebrex costs - and I'm sure the pharmacy will tell me. I also think my doctor will give me some samples. We pay a lot more for our insurance than they will pay for me - at least this year. And I have tried to be very careful to contain costs. But I'm not sure I'm willing to do that anymore.

Linda, I don't blame the people who work for insurance companies. I actually felt sorry for the woman who turned me down (but I did say, "Aren't you ashamed to work for a company like this?"). She seemed to know that what they were doing was wrong.

I blame the people who set up a system where medical care became "for profit." What? When did that happen? They have to understand how unstable it all is. I'll start by contacting my doctor, because I think she may be able to take care of it. I hope so. That would be easy.

We're very easy to ignore. We're not going to get better, so there's no end to the expense. We don't have a great spokesperson (Chris Reeves & Michael J. Fox come to mind). We don't look "tragic but sexy," (hey baby, that limp is SOOOOO HOT. RRrrrowr). And worst of all, we're already kind of beaten down by the disease, so we're not always up for a fight. We shouldn't HAVE to fight.

So, I'm going to follow the process. And I will document it every step of the way. Linda, you're so right - I need to start taking down names and documenting everything. But I'm going to think long and hard about next year, because Arizonara is right - we've always paid more for insurance than we've gotten out of it. It's supposed to be there when you need it. Well, I need it, and it's not there. Fiona: I would have my doctor's office push  on their end.  It does depend on what he says on the reports going into the insurance company.  Good luck and don't give up--keep trying. 
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