Just feeling lousy---and kind of mad. I thought this was behind me...I dont know why, I know better. But still, I feel let down with no one to blame. I am back to pain with no relief. I am going to suck it up and go grocery shop this morning...then I am staying in bed the rest of the day.
Crunchy,
I'm so sorry you aren't feeling well. I hope you are better soon.
This does bring up another question... sorry, I'm a newbie! Does anyone ever reach true remission with no joint pain?
Crunchy, sorry it is another one of those days. It doesn't matter how often they come, they are always cruel and an interference in our lives.
kweenb, I just asked that question myself recently. I imagine if someone truly reaches remission, they are not going to be hanging out here much. But there are some people who do reach it. There's even some people that have a one time incident and that it. Some always have mild symptoms. And, some are stuck with aggressive RA. The theory is that the new biologics and aggressive treatment may push you into remission. But some of the people here who were told that they were in remission for 4-5 years, still had damage going on.
But they were pain free for those years. I believe it is reachable. Do all you can to give yourself the chance for it. Get the medications, the best ones available to you, diet, exercise, get plently of rest. Focus on the good things in your life, your loves and your passions. Let go of negative people and negative situations because they cause your grief and stress which destroy all your good efforts.
Make sure your doctor is paying attention to you. Make sure they do the blood work and the xrays. Stay ahead of the possibilities.
Morning Crunchy, Go ahead and be mad because I'm joining you. The Remicade started working on Sun. Mon and Tues I felt great. Even golfed a few holes. Took mxt on Tues night and Wed. I felt worse than I've felt in ages. Slept most of day, hurt, and was swollen. A little better today. I"M MAD. Why aren't the biologics working everyday? Take it easy. That's what I'm doing. If we try and do more we'll just frustrate ourselves further. Then we'll be frustrated, mad, sore, and swollen - not a pretty picture.
You start to feel better, and you think it's a trend. I've had a good week, and I thought - boy, this is it. But now, I can feel myself sliding downhill again, and there's nothing to hold on to to stop it. I think the best answer, Crunchy, is do the most you can (and I don't mean housekeeping) with the good days, so you have that to hold on to for the bad ones. I ought to go shopping, but I think I'm going to take a nap, instead. I was up at 3:30 this morning, but everyone else here was sleeping (and I'm glad you were). Darned foot spasms.Crunchy, Hope you were able to rest today. Glad you didn't have to work feeling so poorly. Lets hope it's just a minor set back.
Your Embrel should be starting to kick in soon. As hard as it is, try to stay positive. Better days are bound to happen.
I think we all have days like that, Crunchy. I know I do...and it's all I can do to get myself together and get to work. Some of my meds make me feel like I'm in a constant fog (naproxen), and some days I just can't seem to fight my way out of it....other days I'm more able to focus.
Fiona...you made a great point....on our good days, it's easy to try to catch up on things we simply cannot do every day...and housework is one that I found myself struggling with....so...I'm going to hire a housekeeper! No more scrubbing tile showers and moving furniture to vacuum for me! I'd rather spend my good days "playing" with my hubby and socializing with friends.
Keep your chin up, Crunchy...tomorrow will likely be a much better day!
Well Crunchy, it's just no good that you aren't feeling well. I hope you were able to get your shopping done and then get some rest. And I'm joining you with being mad.
I fully believe in rest when a cold is comming on, especially in kids. I think they recover faster. I guess it is like the old saying 'an ounce of prevention is worth a pound of cure'
He is sleeping his little butt off too! They always are so much sweeter when they are sleeping.
Copyright ArthritisInsight.com