I went to lunch with a couple that the wife had lupus and the hubby ra. It is my start in finding a support group. Anyway, it was surprising. I was describing my symptoms. chronic fatigue, muscle aches, can't concentrate besides my joint pain and the woman with lupus said "I just bet you also have lupus". You even have the butterfly rash on your face. HMMMMM So now, lupus and ra ??????????? The possibilities keep coming.
I have Lupus and Lupus Nephritis (kidney) and RA. I've had it for about 5 years now. They seem to think that the Lupus of the kidney started before the Ra (I don't know that it makes a difference or not). In fact I have had the butterfly rash / redness for about 10 years.
You just have to be really careful with medications and mixing them. Some cause a flare or could cause a flare.
Also, you can test serum negative for Lupus but still have it. So check that out also.
Thanks you guys. All I need is one more diagnosis. Geeeeeesh Olive. You seem to have ALL the diagnosis. HOW ARE YOU COPING????Day by day... Inch by inch.
I try very hard to stay positive and not to be a burden to anyone.
I have a lot on my plate right now. I have breast surgery this week (I had breast cancer 6 years ago with a mastectomy and they found something on my mammo and ultra sound) ergo, they need to come out (the lumps that is) and I have a foot surgery that I am putting off until I can't any longer.
Olive, You are amazing. I doubt you can be a burden. I hope you let people support you. That is what life is all about. Helping each other. You have so much to share and the only way you can do that is to let people share with your burden. Good luck on the surgery. You make me feel like "what a whiner". You are one tough broad
Thank you VERY much for your VERY kind words. They are much needed right now.
I only have Friends that support me which I am VERY Thankful for. As you and many have found there are just some people in life that they either don't care, don't want to be bothered, or have the attitude of out of sight out of mind. Ergo, my family (mom, dad, and 2 brothers) left my side when I started getting ill 6 years ago). To be honest I think that is what has made me a lot stronger. I had to face the fact that there are some people and things in this life that are not worth getting sick over or making you sicker, or taking you down for days on end. Therefore, I had to set in my mind to be strong and ignore some and focus on others.
Don't get me wrong I am still in denial about a lot of things that these dang disease cause. But, I will not be treated like a moron, like it's all in my head, or because I didn't believe enough in something that this has happened. I believe that EVERYTHING has a purpose and with that purpose comes responsibility and strength. Sooooooo we should all be proud of the fact that we have the strength that we do to continue on a daily basis (not very many people in this world could withstand or go though what we all have).
Sorry... didn't mean to ramble.
Thank you all for the warm thoughts, and wishes.
*hugs*
Olive
I admire your attitude Olive.
Roxy~Hasn't your doctor checked you for Lupus in the past? But then again Olive says you can test negative and still have it? Maybe you do. Might explain a lot of the different problems.
So how was your lunch with the new couple?
Lovie, The lunch was so therapeutic. It was so good to talk to people who totally understand face to face. We are in this restaurant comparing body parts
Been sick all day. I have had this hellish vaginal infection and now I think it is effecting my whole body. Called doc and she said if I still have a fever tomorrow I need to come in. One thing after another. Spent the day in bed. Brett brought me juice and a bowl of soup. Feels good to be cared for but I slept a lot, woke up soaking wet, I think fever broke but still achey. I so miss good health.
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