I have been sick for a couple weeks now. Today I hurt so bad I finally went to the doctor. I can't believe it. My doctor suspects I have polymiositis on top of my RA. She wants me to come back tomorrow for more tests. She said I would have to go back on pred. This is getting too much for me to handle. MY God, when does it stop.
It does seem that the diagnosis do pile on. But Crunchy is right about them maybe being able to treat you better.
Hang in there. You are always in my thoughts.
Call if you need to vent, cry, swear (well, maybe not the last one - I have virgin ears, you know).
They think I have BOTH. Polymiositis and RA. I go back to doctor today. I am just numb.
oh, roxy! i'm sorry to hear this may be! but if it is, don't worry ok!! we are here for you. gotta look at the good side of it all, and that is that maybe your doc is finding it early on (if you have it) and that's much better than finding it later on!
chin up, girl...
Saying a prayer for you right now Sweetie.
Let us hear from you as soon as you return.
I just got back from Doc. I am feeling better today so she was dissapointed I could not get in yesterday. I have been sick and weak all week. She did a strength test and I have inflammation in my muscles - that is why she thinks I also have polymiositis. I am not going back on pred. I will try other anti inflammatories but NOT PRED. on a regular basis again. I said at the most I would do one of those pred packs or whatever they are that you start weaning from the beginning.
We have spent the entire day trying to fax like 80 pages to the loan company. I am so glad I have this house to look forward to and our kids. That is what I am holding on to. Thanks for all your replies. I really am numb. It just means my immune system is attacking my whole body Glad to hear you're feeling some better. Evil, evil, evil disease.
She could be wrong. It wouldn't be the first time. I think Fiona is right though about you'll feel better when some of these things in your life settle down. I really think you need Brett right now.
Hey, when I bought my mobile, I only had to do a title change. It cost me only . But I've done all that paper signing before. It is so exhausting.
Hang in there, Roxy. You have so many, many things to live for. And, you have friends that love you.
Oh Roxy, I'm so sorry to hear about your latest complication. With this disease the complications just go on and on. I will keep you in my prayers.Thanks guys. I just keep trying to focus on looking forward to having our kids again and being in the new house. The move worries me but I already have two volunteers on this end to help load the truck. We might be going up there next week to show it to Brett and Kelsey. That excites me. When I was there, I met the nicest people when my car broke down. I think I am going to go back to that mechanic and see if he has friends that we could pay for the unload.
Believe it or not, today is our first anniversary. We spent the day doing paperwork for the house. We sure suck at holidays and occasions. We were supposed to go camping tomorrow but I am afraid I will not be able to walk when I go to court on Monday to get custody of Kelsey and it will blow it soooooooooo we decided it would be great fun to take Kelsey camping after all the time she has been locked up. We know a great lake. We are going to get inner tubes and easy grub, hot dogs, etc. and just relax with her a couple days.
I talked online with my stepson for like an hour today. We really get along well. We play together well. Last time I saw him he was 5'8" - my height. Now he is six foot - it is going to be wierd to boss around a 6' kid - lol. Truth is, he is a good kid. It will be interesting the dynamics between him and Kelsey. They have never met.
So that is what I have been focusing on. I am very very weak today. Cannot stand more than a few minutes. I haven't showered in almost a week. Been sleeping on the couch a lot so Brett can get his sleep. What a reunion but yesterday when he heard about my possible second diagnosis, he has really been trying hard to be with me and dream together about the possibilities.
I only need two prayers - let me make it up the stairs in my beautiful new house and I don't want to give up water exercise. I think everything else I can deal with. My fear is going back on pred. but I am going to try this other med. they have for polymiositis first. I also can never take cholesterol meds again which is scary. My cholesterol gets well over 200, hereditary. It just can't be my diet or lack of exercise as I have always eaten well and exercised.
Thanks for being there when I do think about it. I try to avoid it and instead dream about what color my new living room is going to be and the look on Kelsey's face when she jumps in that lake and the excitement when Colton sees how big the basement is and it is ALL his. LOL He is sixteen and I said - we will have to do something about it being cold in the winter. He said - no problem. I will be sneaking girls in to keep me warm.
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