Update on Kels, posted on 4ratalk | Arthritis Information

Share
 

Sorry  you guys, I am trying to stay in contact with everyone but I don't have it in me to post on all the boards the same thing so this is a cut and paste.  Kelsey is sleeping peacefully and I am up early enjoying watching my fish.  I may try water exercise with Kelsey today.  This is quite an adventure but it feels so good to have her home and see how happy she is

 

I didn't realize it would be good medicine for ra having to take care of another person but I think it is. Kelsey kept us all up the first night she was here. She was so excited. We had a family talk and she is learning boundaries - the hardest one for her is we are rationing her cigarettes. She would chain smoke if we didnt.

She was a real sweetheart today but you could tell the whole household was on pins and needles since we were all up all night. Anway, it was fun, Kelsey and I took a walk and we went out for pizza and we got to put our first fish in our saltwater aquarium. We all went to bed at 7 pm. I decided to lay down on the other couch in the livingroom to keep an eye on Kelsey and try to keep her in bed. I woke up with a start at about 9:30 pm. Kelsey was not on the other couch. I ran out in the front yard, no kelsey, I ran out in the backyard, no kelsey, now my heart was beating fast. I came running in the house and I find her in the office with her feet up on the top of the head of the recliner and her body on the floor stark naked. Her breathing was really strange but I tried and tried to move her and she just would not cooperate. I just covered her. Kelsey sleep walks. We are in for an adventure but she is trying so hard. I think it will be better when she has her own room but right now we have to sleep her on the couch. We have boxes everywhere from getting ready to move.

I cannot take my Enbrel due to an infection but so far - so good. I pray I feel good tomorrow as Kelsey so wants to go to my water exercise with me. We were supposed to go today but I knew I could not do it on no sleep. SEE- I am learning limits. Anyway, my focus on Kelsey today - I don't think I thought of my ra once. I think this has a chance of working out. We were going out of town but we can't this week as she has many appts. to get services for her here and as soon as she gets signed up for those services, we will be moving to OR. Jumping through the hoops

Wishing you all well.

Roxy, you sound like a very happy woman. I'm so very glad for you. You take care of yourself & do get proper rest. You know how we need our rest. lol

Trisha

Hi Roxy, glad all seems to be going well, keep praying and keep your spirits up, Kelsey will be good medicine for you, regards Janie. It really is true that being a parent forces you to put your own troubles on the back-burner....for some a real inconvience...for others a blessing in disguise!!Sounds good, Roxy. You may never get her to give up all of the junk (you'd never get me to give up ALL of the junk - even though I don't eat much anymore), but it's good that you try. Life sounds like it's really falling into place. Less than a month until you close.    Roxy, I'm glad that Kelsey is doing so well at home. It's just what you needed. I will keep you in my prayers that things keep getting better.


   MarisaKelsey is being quite the sweetheart.  She cooked us dinner last night.  Srambled eggs, it was good.  Brought us coffee this morning.  I am feeling spoiled the last couple days.  Brett and I have some kind of bug we think.  It may be the heat but neither of us feel well so Kelsey is taking care of US and loving it - LOLOh Roxy she sounds like a normal kid to me.  In fact she sounds more normal than some people I know.  LOL  I had a neighbor that has Kelsey's disease and she and I were good friends.  She, like Kelsey smoked 2-3 packs a day but she went to a smoking class at our local hospital and she kicked the habit.  She was a wonderful artist and just before she died, she painted a picture of my house for me.  I always encouraged her to write a book about her life, but it never happened.  That would be a neat thing for you and Kelsey to do Roxy. It would be a really bonding, healing  thing to do and a wonderful past time. It seems like everyone is writing books these days. You write it and I'll read it!
Still thinking and praying for you and the family. 

Hugs & Love Glad things are going well so far Roxy.  It takes a lot of courage to step out and make a major change like this and I applaud you for taking the plunge. 

I pray that things continue to go well and that you all find a routine that works for you. 

I imagine that until that routine happens, it is a very tiring process for all of you and may have contributed to why you and Brett are feeling under the weather.  It takes a lot of energy to keep up with people who are bipolar.  Take care.

Jeanne



Copyright ArthritisInsight.com