Went to see my rheumy monday,he said the enbrel is not working,i've been on it since Jan 06,so he is going to switch me to Remicade or Humira,I had such high hopes now it seems they went down the drain,hope something will work,tired of being tired,don't know much about Remicade or Humira side effects,hope I can take it,will know in a few days which one my insurance will pay for,in the mean time will have to grin and bear it
Greg
Hi Greg, hope one of the others works for you, I have tried both Enbrel and Humira but had allergic reactions, so I still don't have an answer, it sure is a long drawn out process trying to find the right one, best of luck, patience is the main criteria for us RA sufferers. I am starting Cyclosporine tomorrow, in the hope that I can at least reduce my prednisone or stop it, that day will be a celebration in this house...... Cheers and best of luck, Janie.I had very good response with Remicade with no bad side effects, although you can get allergic reactions. To combat this, they should give you benyadrl during your first three injections. I had to go off because my insurance changed.
Enbrel has done nothing for me and it took forever for the doc to admit this. He hasn't given me something else yet.
A lot of people do take Humira successfully. And, people that have bounced around from one medicine to another usually find something that works.
So there is lots to hope for.
Good luck Greg. It sux when you have to change meds. Always worries me. Been there, done that, Enbrel is giving me some results but I sure am not who I used to be. I hope you find one that works soon. Let us all know.Humira, Enbrel, Remicade are all in the same drug family (TNF). So all have about same goods and bads. Enbrel did not work very well for me but Remicade has worked for last 5 years (just starting to fade ot now). Think I'll ask to try Humira next.
Hope that helps.
I've been on Humira for a little over a year and a half now and have been happy with the results I've acheived with MTX as well.
Hope you find what works for you soon Greg. Hang in there.
Enbrel did not work for me and I had horrible migrains with it. Humira has not caused me any side effects, and it works great for the first few days but then it wheres off. I dont know if I should ask to switch to Remicade or increase the Humira. Good luck to you, there is no way to tell but to give yourself in to being a guinnea pig....Makes me feel like a labratory rat.Crunchy, you should ask about them upping the dose. A lot of people have to do that. I'm sorry the enbrel's not working, greg. Like everyone else, I can only say, don't give up. I've heard some people say that basic things like MTX didn't work the first time around, but did much better later on. RA really keeps us on our toes - or not! Good luck on the new meds Greg. It's so frustrating trying out all these potent meds. I'm doing ok on enbrel but I have to keep going off due to infections. I'm also on prednisone, plaquanil, methetrexate and folic acid so it's hard to figure out which works and whick doesn't.Thanks all for the support,yes crunchy sometimes I feel like a pin cusion or a drug addict waiting for my next poke,and Fiona its like the opposite for me,at first the enbrel amd mtx worked good foe me,I mean I could move without hurting but its like my body got immune to it and it stop working,well anyhow I'll try what ever my doc gives me next and hope for the best(or I should say whatever my insurance says yes to) well let you know,the doc is suppose to call me in a few days to let me know what the insurance says.
Greg
ps Thanks crunchy for the lab rat pun
I went to the doc today and got the exact same news. Enbrel is not going to do it and I have to go to Remicade if I can afford it. She put me on prednisone again until I start something else. I'm really really bummed. Sorry you're not getting relief yet.
Nancy
Nancy,know what cha mean,maybe we will get it straight soon,haven't had prednisone yet but problelly will some time or anotherI am leary about increasing the humira for a few reasons...1. increased chance of lymphoma 2. extra pokes 3. more expense 4. not enough injection sites due to bad site reactions and injected MTX 5. the humira is wearing off before the first week is even up.
Still waiting to hear from the doc,I have 4 injectioons left,doc told me to finish the since they are paid for,..............STILL WAITING