It sounds like the MTX is starting to work for you, thats great.
Barb
I'm like Barb; MTX gave me my life back. I really have found it to be helpful for me; but just like everything else I've taken it takes more and more to continue with the success. Once I reach 22.5mg my doctor said we'd have to try something else. It wasn't going to be enough. I'm now taking Humira weekly as well. Good Luck. Lovie I'm on week fourteen and so far no problems. Other than it doesn't last a full week. My RD has me splitting my dose half on Friday morning and the other half on Monday evening. That seems to make it through the full week but whens it's good it isn't as good. I'm supposed to call her the end of this week and let her know how the split dose is working out. I agree with Roxie, let's keep this going. I started MTX Saturday night and like the rest, scared to death. It took me six months to decide to take it. Ya'll gave me the strength and wisdom to take it. Just a note to xjennax, don't rely on the doctor to get back in touch, call him for your results. Just a word of advice, hope you don't mind. Papers can be misplaced, etc. Mailady Thanks everyone for your MTX input. I have had some in the pantry for about six months and was scared to take it. I have been on AP for five years and do well, but not perfect. My rheumo thought the MTX might lead to remission since I am so close to " normal". Reading your posts has given me courage to try it. I am setting my start date to start for next Tuesday. I am teaching summer school for three weeks so I hope that the fatigue won't be bad. Please keep posting on your progress! Leslie MTX failed me in a big way. I was one of the rare (and I do mean very rare) people that had a massive reaction to my initial dose. It came very close to costing me my life. I did research after that and found that only 152 people in the US had a similar reaction (at that time) and it was just my luck to be number 153. Still, I would recommend this drug to anyone. Why? It is a proven effective drug that has helped a tremendous number of people. There will always be those weird few that will react negatively to some drugs. I am taking MTX and on week 5. I have to admit that I was scared to death when I first started it but I was bound and determined that if it helped, I needed to settle down and not worry. I do get dizzy and I do get tired and it seems to kick up my colon about 4 days after taking it. But, I do want to get off the prednisone so I am willing to go through this. So far (aside from my side effects) I am doing well and the pain is so much better. I will let you know how things progress. They say though, everyone is different on this drug so my side effects may not be yours. Visa versa. But, lets keep in touch anyway! IslandWomen...I am so sorry you had that reaction. So hope they can find something to help you. Susan
It was just one of those rare reactions. From what i can see most folk are fine on this drug. Have you noticed any reduction in pain? I hope the fatigue will lift soon for you. Less For those of you on MTX....does it seem to help the pain in past joint damage? Most of my pain comes from damage that my joints have sustained over the years of the diesase. Very little new pain for about three years now. My rheumo thought My RA might be in a " beginning to burn itself out" stage. But if MTX will help with the aches of having narrow joint spaces ( like the kind when you hit something, stand too long, try to hold something heavy, or you bend your wrist too far back), I would love to try it. I have been holding out on trying it for months. Thank you for any input! FOr some reason, i was never scared about starting MTX. i guess i was just wanting to get rid of the pain. I know it can affect my liver, so i did get tested before ( for TB, too) and the doc told me i cant drink.. (i do occasionally, but never was a drinker!) Roxy; I take my MTX late Saturday night right before bed and right before my Humira injection. By about 2:00 on Sunday I drop like a rock. I try every week to go about my normal business...but it never fails; I'm ALWAYS exhasted by mid day. You said two days later you are tired; and that's about the case for me I guess. Probable a good 15 hours after....and then on into the next day. Today for instance I'm really tired. Mondays are often off to a slow start for me so I guess you could say it's a two day thing for me too. I've had repeated bladder infections since starting the Humira; but prior to that I had no infections at all and I've taken MTX for three years. Every ones different and I would try to be cautious; but don't get overly paranoid about this Medication. Sometimes I honestly believe we can worry ourselves sick. Try not to let yourself get into that pattern. Glad you're enjoying your time with your fiance. We sure miss ya around here. Lovie AND: Welcome Susan; we sure are glad you're are here!!
No need to apologize! I just thought I would ask in case it was
an issue of voice recognition software. I know mine is sometimes
fussy. I don't know why, but all caps I just have trouble reading.... weird, eh? Hi all, I woke up feeling pretty good this morning. I hope it is the mtx working
Welcome Susan. Call me vain, because it is the truth, but how much hair loss?
Lovie, I miss you guys too but I am GOOD BUSY ............ spending lots of time with my fiance and his son. Trying to keep up with them
Just come out of hospital having had methyl pred infusion and started MTX 3 weeks ago. Just keeping everything crossed that it works!! I was terrified of taking it but was in so much pain I had to. Makes me feel very tired and a bit 'foggy' but I'm perservering so I can get back to work after 3 months off!! It helps to know I wasn'tb the only one scared to take it----I thought I was!! Marie x Marie; I think we were all a little scared at first, but the benifits far out weigh the risk in my opinion. Try to stay positive, it's been a great medication for lots of us here. Good Luck to you...I hope it turns out to be good for you as well. Hi Susan, I am new to MTX too. I just took my third dose. Scared was not the word for me. The script was waiting to be filled since January!!! The dose for me right now is 7.5 a week. This is a great message board. You get so much support from everyone and I, for one, have learned a great deal. I am very thankful for each and every person here. Just hang in there, we are in it together. Mailady I'm a bit late in joining this thread but after reading thru it, I think I might have something useful to add. When I started MTX I had a bad reaction like morning sickness. I went back to the rheumy and he switched me to taking two tablets every second day, with one tab of Folate on the alternate days. This has worked beautifully for me - I'm now painless and no side effects!!! Isabelle. I've been on Metho. for about 3 years now. The symptoms do get better with time. I did have the tiredness and foggy. Either I've gotten used to it or it has gotten better...... It did make my stomach hurt with the pills and gave me mouth sores, so I switched to the injections. Then, I heard you can take the injection orally with juice. So, I do that now. The mouth sores only come every once in a while. I drink lots of liquids! It does take things longer to heal, like blisters and small burns like from an iron or stove. This week I'm experiencing my first urinary tract infection - pretty bad. Anybody else out there experience those? I've read that metho. can cause bladder infections. So, I will talk to my dr. about that. It is a scary drug, but it's been around a lot longer than the biologics, so I feel safer being on the metho, that the biologics or prednisone. Good luck everyone out there.... MIMER; YOU WILL BE MORE SUSEPTIBLE TO INFECTION ON MTX AND IF YOU GET AN INFECTION, ADVISE YOUR DR ASAP. YOU WILL HAVE TO COME OFF THESE MEDS TO HEAL. YOU WILL NOT HEAL ON MTX. , UNLESS IT'S MINOR. I KNOW, HAD TB EXPOSURE AND MRSA STAPH INFECTION. (THE FLESH EATING BACTERIA!)
I WOULD ADVISE PEOPLE TAKING MTX OR PREFERABLY BEFORE TAKING MTX TO GET A TB TEST! THEY THINK I WAS EXPOSED TO TB WHILE ON MTX. MOST PEOPLE THINK TB IS A DISEASE OF THE PAST. I AM A WHITE COLLAR BUSINESSWOMAN WITH NO ACCESS TO THE HEALTH CARE INDUSTRY OR ANYONE AT RISK YET I WAS EXPOSED AND GOT THE GERM! MOST OF THESE IMMUNE SUPPRESENT THERAPIES CAN ACTIVATE THE DISEASE AND WE COULD REALLY HAVE PROBLEMS. I too have had numerous bladder/UTI. I take MTX (22.5mg & Humira; weekly.) For me the repeated infections didn't start until after the Humira. Never had problem one with just the MTX. I've continued to stay on coarse with my meds though. I suppose they may have been considered "minor infections", I'm not sure....because I was surprised when they told me to continue with my RA medications, and add an antibiotic. Roxy; I'm sorry to hear you're having such a hard time Sweetie. I'd hoped you would be one of the ones that just breezed right through the MTX adjustment. Hang in there. The fatigue will ease up as your body adjust...it just takes a little while. I remember the fatigue being far worse when I began. Lovie When I was on MTX (back in Dec-Apr), I felt great, actually felt like the MTX was doing it's job. Then after about 3 months of taking it, my body started to ache, I had aches & pains in places I did not seem to really have pains in before taking MTX, I also had severe stiffness in places I did not have stiffness in until after I started MTX. So, I stopped taking MTX on my own, becuase I was not going to be able to afford it again anyways. And I felt better, most of my pain & stiffness I had in areas that did not hurt before MTX has sub-sided. The question is has anyone else had a reaction like this to MTX? Does that mean it was not working for me? I respond very well to prednisone, wasn't that one of the reasons for putting me on MTX? Just asking. I just want to know what I will be looking forward to when I actually and hopefully get my insurance back. If it will be injections, or some other pills. I'm not really sure Joonie; I responded well to predisone too; always have for the last 11 years off and on; but I was only put on MTX about three years ago. What dosage were you at when you stopped taking MTX? Sometimes people respond better to the injections verses the pills; but considering you were having all this other pain that you contributed to the MTX they may want to go a different route entirely. There's lots of different things they can try; and I imagine they will try something else, all things considered. Hope you get your insurance reinstated really soon. I can only imagine what a struggle that is for you. Lovie Lovie - I was on 2.5mg @ 3 tablets weekly. I was only on MTX for 3 or 4 months. I started MTX last july, 10 mg per week. At first I had some pretty nasty nausea and the runs, but that wore off slowly. About 3 weeks ago they doubled my MTX and the side effects returned, BUT, there is a marked improvement in how my Humira is working. It's lasting almost the full 2 weeks now. I've got to do something about the nausea though, so am going to try some ginger tea. Wish me luck. How long were you on MTX before you started having the allergic reaction 6Xmum? I've been on it for three years; 22.5mg and Humira for the last 7 months. Do some people go years before they have a bad reaction? I've had quite a few headaches lately myself; but I'm contributing that to my recent Humira increase. I've doubled my dose recently I imagine that's got me spinning just a bit. Thinking back I vaguely remember headaches early on with MTX. I imagine your going to have several bothersome problems while your body adjust. It's all going to depend on how bad they are. Can you handle it while you adjust? I think everything will settle down once your body is use to it.....but then again; so many here have never been able to adjust and have had to discontinue use. You might put in a call to the RD nurse and run a list of questions by her. I'm sorry you're having this and other complications. I'll keep my fingers crossed that it passes quickly. Hang in there. Lovie Oh; That's intersting and scary at the same time 6XMum. MTX has been such a good medication for me; I hate to think that after all this time something like that could happen to screw up my recent success. Sounds kind of like bee sting allergies. People have been stung for years and then all of the sudden that get several stings at one time and almost die from an allergic reaction. Scary stuff!! Just thiought I would add,so far the MTX is working,monday I increase dosage to 12.5mg. I HAVE A QUESTION -It been taking 2 days to start working I have 2 really good days,then slowly start getting stiff,and by the day before I am due again I am hurting QUESTION -as RD increases will it stay in my system longer or should I be greatful foe having to really good day?? & nbsp; sherry Sherry; I have had a simular experience. More than likely as you increase you will have less problems toward the end of the week. I'm now at 22.5mg; and have been at this dose for more than a year 1/2 now I guess. Eventually even at that dose it wasn't getting me through the week and we added Humira; then we switched bi-weekly injections to weekly injections. I still have my worst days the day before and the day I take all of my medication. It's just wearing off...and then it takes another day or two to get back into your system completely. Am I making any sense at all? For me, as I've increased I've improved...until my body gets too use to that dose and then we have to increase it again. I've found this to be the case with just about everything I've had success with. We'll increase it until it can't be increased anymore....then we try something new. I'm not sure if I've helped you at all Sherry...but I do know exactly what you mean. Lovie Lovie and others on MTX, I have enjoyed learning from all of your posts. You all are a wonderful source for information! Is it common for MTX to wear off by the time you get your next dose? I have noticed several people have stated this and I was wondering if this is the norm. Less; I'd say so. Sherry was just talking about that as well...and after all this time and even at the dose I'm at now I can definately say toward the end of the week I still can tell it's wearing off. And increase in your dose can help that to some extent if you haven't already done that. Are you taking MTX now? If so for how long? Oral or injection? We need some more newbie stories for this group of users. I've been on if for what seems like along time now and I'm having trouble remembering those early days and symptoms. We're really glad you're here with us. I've become very attached to this little group; after all these years I've finally found my people!! (At least that's the way it feels after feeling so alone for so long.) I had problems with MTX wearing off a couple days before my next dose. So I called my RD and she had me split my dose from 4 pills on Friday morning to two on Friday morning and two on Monday evening. That seems to be working real well as far as not wearing off, but it doesn't feel like I'm getting as much relief from it as I did with four at once. I go back to see her in a little over a week. She said she may increase the dosage. I'm only at a total of 10 mgs/ week now. Lovie, I am not on MTX at the time, but have the injectable for sitting in the pantry. I am on antibioitics and plaquenil and do really well, but still have some nagging wrist pain and ankle pain when I do too much. I have a good bit of damage, so I don't really know if the pain is from the damage or because the RA is still active. My labs are good with only a slightly elevated CRP ( which could be because of HRT, but I am not giving up the hormones to find out!).Everything else is normal now. My rheumo thought the MTX might put me into remission from the pain I have now, but I can't decide if it is worth starting the more powerful drugs to do away with little bit of pain that is with me now. I just don't have that RA " sickness" feeling that I use to have with the fever, fatigue, night sweats, and aching. I have contemplated starting it in a few weeks when I am through teaching summer school just to see if it will make a difference. I feel like I might be cheating myself if I don't at least give it a try for several months. I am scared I might get worse due to the possible side effects of MTX. It seems like such a big decision! Right now I stay at the same level of the disease, no flares now for about three years. The same old things keep hurting with almost no new areas affected. If I do start taking it, I will keep posting as I am sure there are more trying to make the same decision. Leslie Absolutely. I know several of our friends here have struggled with this decision. At the time they offered it to me; I too was scared...but so willing to try something new there was really no delay in my treatment what so ever. If you don't mind me asking; how old are you? I'm 34 and also am on HRT and don't get to discuss this very often here. I've gone through early menopause due to either this illness or the medications and to be honest seem to handle it fine now, but for a while I was close to desperate to find someone to discuss it with. There are actually a couple here headed into what I've expereinced the last couple of years, but they have not quite reached the point I'm at. Also; Leslie, if it were me and I was doing as well as you seem to be I think I might put off the MTX. It will be there when you need it down the road. I've been on it for a while now and at 22.5mg (I'm not sure how much that is for the injections) I still have pain; although not as bad as in the past. I also use Humira. It's unlikely to give you 100% relief and if you are already on a treatment with fairly good success I wouldnt' change it now unless I had to. Three years with no bad flairs sound pretty good to me, you might want to save MTX for later. I'm not sure that makes sense or not. I can certainly elaborate (As you've probable noticed
AND keep posting anyway!! Ok talking about the HRT stuff... if i am on the BC pill, would that count as HRT? Been on it since college just to regulate myself, and i dont know what would happen if i stopped it. Are you guys on estrogen only or something like a combination BC pill? Just curious My RA was diagnosed two months after I went off the pill. I had had some very mild joint pain that would come and go for about 10 years and was never bad enough to see a doctor), but after going off the pill it never left again and was bad enough to send me straight to the doctor. I read in a magazine that they some studies are finding that the pill helps protect some from getting RA, or at least postponing it. Lovie, I was 42 when I went on HRT. I became very sick with my RA after having been diagnosed for five years and my internist looked at me and said that she thought I was in menopause. Sure enough, we did the FSH and she was right. Within several months of starting HRT my disease backed down considerably. It was amazing. She ( my internist ) told me that she had a patient who had an early hysto and her doctor did not prescribe horomones and she got RA symptoms shortly after the operation. As soon as my internist added HRT, she became much better. There are some interesting studies about the hormone connection and RA. I have been on HRT for almost five years. I am getting ready to try the low-dose to see how it does. Thanks for the advice on the MTX. I think you are right and that is why it has been in my pantry for almost a year. Unicorn; HRT is a little different than BC pills. I did however take BC pills for probable 9 years before stopping for about a year and quickly entering full blown menopause. HRT is "Hormone replacement theropy" which is used after your ovaries stop working like mine have; and Roxy takes because her ovaries have been removed. Is that correct guys...or am I mixed up on that? Lovie Lovie, Your reply helped,your experience is always helpful.Along with alot of long time RA people.You don't know how much help it is to us newbies,I take next dosage Monday-here it is sat. and is waring off,I'll let you know how it stays in my system with higher dosage next week.I am just thankful that I feel better when it stays in system,thanks again for replies to question,sherry It's neat here isn't it? There's always someone here that knows exactly what your talking about. It's such a big help....I'm glad I could help you this time. I take mine tonight...so I know how you feel right now. In fact I'm going to post a question right now I'm hopeing someone knows about; I'm sure there is. Hang in there!! Monday's coming quick
Meme I have never had the rash problem from MTX, but I have had problems with rash caused by sweating , unknown cause. I had good luck with baby powder. It makes the rash feel better and you smell "just like a baby".
Barb
How are you today?? Is the rash any better? I hope so, that sounds really painful
I really am thinking of you though and hope it's better and gone soon!
i have about 8 different incisions on my stomach from 2 different operations-those incisions itch the day I take my dosage ,they don't turn red or rashy ,but they sure the heck ITCH,I tried some calamine lotion but it didn't help.i just figured the skin is sensitive there.wish could help more,sherry Meme~I recently heard someone describ a simular rash that turned out to be shingles. It's probable not that...but when you describe it as painful it certainly sounds simular. Let us hear from you when you get back from the doctor...I'll be anxious to make sure you're alright. Feel better Sweetie. Lovie How long have you been taking MTX period? You've been on it a while now haven't you? I've been on it for three years now Roxy, so it's really hard to remember back exactly. I do remember it taking a good little while...it has for almost everything with me. Several months and I seem to remember increasing many many times before we finally added Humira to the MTX. I doubt that's exactly what you wanted to hear, Huh? We're all different though, you can't judge it by another person...that's only an idea. I can't say about the energy either...it will get better with time though; but I still have days when I'm exhasted. Even with the Humira which really made a big difference. Xjennax, I did not have such a great experience with Methotrexate at all. I could not tell you if it helped me because I felt horrible most of the time. I was on it for four months and it sucked the life out of me totally and made my bones hurt. That is a sign that you should not take it anymore. When I quit taking it I lost so much hair and got these huge pimples. I was looking good to say the least. It sounds like it is working for you which is awesome. I just started Humira last week so I am waiting for this big jolt of energy to over take me or wishing it would. They say it takes about 3 months. I am such an impatient woman. I want results right now not months down the line. I pray this will be the solution that I need. Everyone is so different as you can see. I wish you the best of luck with MTX. Franny I just had an increase to 20mg per week. Everytime my dosage is adjusted, I'm extra tired and I get dizzy again. This time, I have noticed nausea which I hadn't had before. Perhaps the dosage is enough now that I'm starting to pick up over side effects. My liver enzymes have gone up but the rheumy says they may go up and down. If they stay up, I'm off it. I have also started developing large pimples which is enough to make me want to stop taking it but.... it has helped. I only have to take pred during an intense flaire up. I did have problems in Feb/March with the Pred. It has always worked like a charm and for the first time, I didn't notice any results. Eventually the rheumy increased it to a really high amount which I took for several weeks and then we decreased it and I stayed on it for a couple of months. Even with the high amounts, it took over a week to see results. That was a little scary since it has always been my magic pill. Okay, I am realllllllllllllllllllllllll late on this one. But I have been on MTX since my DX'S. I do not like the medicine...but the long term effects have been very noticeable. I have had to increase my dose from 10mgs Pills to 17.5mgs. They tried to increase it to 22.5mgs. I got sooooooooooooo sick! MAN...so, my Rhemy dropped it back to 17.5. I have really bad side effects. Not even an hour after taking it...I feel like a weight was dropped on me. I get sluggish...I am VERY...nauseated...and I can't eat anything for at least a day after taking it. Because my symptoms were so bad...The rheumy tried to put me on the Liquid form, the kind you mix in your drinks. BUT...the manufactuers have changed and you can't find it in the states right now. She had talked about the shots...so I may try those... I also get Really Really Really tired. I drag butt for at least 2 - 3 days after. But then...My energy is off the chain! I feel much better on it and my joints are better on it. I just hate the side effects! When I first started on it I lost my hair and mouth sores were bad. Now since being on folic acid...and I drink lots and lots of fluids...it helps some. So...even though I DREAD taking this CRAP...LOL
It does have it's benefits if you can take it. Roblyn
I haven't had quite the bad effects that you have had with MTX; I take 22.5mg and Humira weekly; but when you said "I feel like a weight was dropped on me" it decribes my Sunday afternoons perfectly!! (I take mine Saturday night) Lovie Thanks Lovie...It is a combo of my father's name...Robert and Lyn. I have been here off and on. I use to be here quite often till I got sick and had some family Problems... I take mine on Wednesday nights and Thursday nights. I have begun to split the dose. I also get real bad head aches. Like now...my head is hurting...kind of a dull ache. I am glad to be back. So many new people.
I also take my mtx on Wed. nights. Last night after I took it, I could not sleep so I got four hours intermittent sleep. I was feeling great the last two days and this morning I can feel EVERY bone in my body and I am hurting all over. I don't know if I overdid it the last two days or the mtx makes me feel this way. I also woke up with a pimple RIGHT ON THE END OF MY NOSE!!! I am 49 years old so this really sucks. Now I am wondering about Franny and Cristene's post and if the mtx is causing this. MTX is so scary. You hear both extremes on this board. People who love it, hate it and people like you who have a love/hate relationship with it. This is my fourth week on it. I pray I do not lose my hair number one, number 2, no boils and number three - someday I can say - I love mtx. I FEEL SO MUCH BETTER!!!!
Good morning All Roxy, I talked to another girl who had dramatic hair loss and she said it happened with in the first 11 days. Hopefully that means if it's going to happen it will happen early on after taking it? I have had no noticable hair loss. I've been one of the lucky ones though...Little to no side effects. Tired yes; but well worth the benifits for me. *I have had quite a few headaches lately though...but I've been on MTX three years; I contribute the headaches to either the Humira increase, or maybe even whatever it is going on with my eyes? We'll see what the doctor thinks about it today. I've pretty much accepted the fact that in my later years I might be confined to a chair a god bit of the time...but thinking that I could might not be able to read, do a craft or even watch TV freaks me out!! My headaches seem to be mostly in the back of my head, almost like it might be coming from my neck though, so I doubt it has anything to do with my eyes. I'll do it. My son is going with me to the doctor so he can drive me home. How they dialate your eyes like that and just let you walk out the door after they see you can barely see to sign the paper work is beyond me. I'll have to come home and take a little nap...I can't stand the way that makes me feel. Hopefully they'll give me some cool glasses like you got
Talk to you tomorrow; if not later tonight. I take a combination of Enbrel and Imuran. When I had to stop taking MTX my Rheum... added Imuran in its place. I haven't had any sideaffects from it. BarbHi everyone. I haven't been here in a while because things have been a physical and emotional rollercoaster. My 10 month old son was hospitalized for a severe case of Strep throat (he's fine now)...so I was on antibiotics as well (I get strep all the time.) The funny thing was that about 8 days into the antibiotic treatment, I started to feel better...I mean really better. One morning I woke up with almost no pain!!! Things were so great, that we decided to take the kids to an amusement park for the weekend. Walked my big feet off!!! Loved it!!! I felt like I just found the fountain of youth. Anyway, that ended a few days after we returned, and the pain is back.
Kim, It's good to see you here. I'm sorry your good days were short lived. You know it might have had something to do with the antibiotic. I've heard of low dose antibiotic treatments for RA. In fact I believe we've discussed it here before. Seems like actress Kathleen Turner was on one of the talk shows talking about her success with it. Wouldn't hurt to do some research on that I suppose. As for MTX; I've found it to be my wonder drug...if you can call it that. After more than 2 years on it I was at 22.5mg. and had to then add Humira. That's been about 7 months now. Still doing pretty well. I personally have not had any trouble with infection over the last 3 years on MTX. Since starting Humira I have had a few bladder infections; but illness in general hasn't been a problem for me. I live in a household with a husband, two of my own children...11 & 15 and two step sons....7 & 8. Every one of them has had some sort of illness during my time on MTX and I've cared for all 5 of them just as I would have before. I may just be lucky...but I have yet to have gotten as sick as any of them has been during their sick spells. (KNOCK ON WOOD) It might be good to note that over the last 20 years besides RA and a few minor "Female" issues I have not been sick with anything other than the occational cold or allergy type symptom though. Rarely even see my GP. If you have a tendancy to get sick often you may not have the same good results that I have had. One last thing; If my doctor had not given me a clear, sure, definate diagnosis of RA...I don't think I'd take MTX. Everyone here knows I'm the first to recommend taking it as it's been a great medication for me and I truely believe in it. However I think I'd want a definate diagnosis before I started such a serious medication. I think I'd look for a second opinion. Again; it's good to see ya Kim. Hope you're feeling better soon. Lovie I know exactly what you mean...My blood work was negative as well, but my RD didn't hesitate to diagnosis me that very first visit. I just think some doctors hesitate more than others. Good Luck with that 3rd appointment.
How frightening that must have been for you! I've been lucky and the worst I've gotten was repeat sinus infections.
I hope you won't think me tacky if I ask if you have a particular
reason for typing in all caps. For some reason, my eyes just have
a hard time processing it.
Thanks for the warning Karen. I am trying to be careful but didn't realize what a slob I am until I was told to be careful !!!!
Welcome, Susan!
It was almost a year total, and about 6 months on the injections.
The reaction happened pretty suddenly. Funny thing about
allergies! I just developed a penicillan allergy in December and
I'm 39 years old!
HI all. Anyone have problems with headaches on MTX? I am having constant headaches. I do not know whether it might be the mtx or plaquenil. Taking excedrin does not help which usually cures all of my headaches. Any ideas? I am on 10 mgs. mtx in my third week. I have had a headache for four days now and get exhausted from very little exercise.
Sorry to hear about the problems you are having with
the rash. I've had that in the past but not from mtx...I
think mine was a bad sweat rash. I had to go
without a bra for several days.
I hope you feel better and the doctor can give you
something else to take.
Blessings,
Tara L
My Rheumy wanted me to go on MTX last month. I've been scared because I have 2 little germ magnets at home. I love my germ magnets, and need to be at 100% every day for them. I get sick alot as it is, and I can't afford to be any more exhausted than I am already. I thought I was "cured", since docs don't understand what's wrong anyway. Just "Possibly early RA". Has anyone had similar experiences with an antibiotic? Was it that, or just a good week? Now it's back, and it's !!!
Wishing everyone those fountain of youth days I had a few weeks ago.
Kim
Thanks for the prompt reply, and words of wisdom. I have an appointment for a 3rd opinion later this month. My labs look perfect, but my body looks like I got hit by a truck. Sometimes, you're just willing to try anything because of the way you feel right now. And if it is RA, I'm afraid that if I don't do anything now, I'll have more damage later. But this has been going on since November, so what's a few more weeks. Thanks for being there, and I hope you're feeling well.
Kim
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