Hi there...
I know there are many of you, including me that are on
remicade. I just came back from the hospital having 400 mg of
remicade and I am soooo tired. I guess I forgot, since I have
these infusions every 2 months. But today it was increased from
300 to 400 and I am so tired, I can hardly type..
Is this a common side effect for any of you? I know
my day was full, lying in the bed for 5 hours... yawn, but today is
worse than before.
Anyone know about this??
I take remicade with IV benedryl to prevent headache. Oh man, am I tired. But I always thought it was the benedryl rather than the remicade.I start Remicade in a couple of weeks and I can't wait to feel better. Vickilee, is that a typo...do you really take 40 mg of methotrexate? That's 16 pills. Hi Nancy.... whoops, yes... I take 20mg.. not 40 of
methotrexate!! My math was off!! Thanks for the heads
up!
I've been taking 300mg of Remicade and yes I get very tired. I usually sleep thru my infusions. Next week I start 400 mg every 7 weeks so guess I'll be sleepier. I think it's a pretty common occurance. Hope it's working for all of you.Vickilee
I have been having remicade infusions for three months now and I am always tired, Like Linda I sleep through my infusions. Not only am I tired the day of the infusion, but also the following day. Im getting used to it now and even my husband knows because he usually gets me a pillow and blanket the day after so I can lay on the couch. I will say though that Remicade has worked very well for me, and I thank God everyday that I have a really good rheumy, that believes in aggresive treatment. Take care
Sherri
I've been on Remicade for a year now, for the most part taking it every 4 weeks. I feel tired the day after usually, but not horribly fatigued. MTX is the one that knocks me out. I'm on 20 mg and am just wped out when I take it.
I am on 6 vials of remicade..does anyone know how much that is?
Thanks for the responses. I imagine that between the methotrexate and remicade, I will be tired any way you look at it. When I have the remicade, I have to pee all the time.. tired and peeing! What a combo.
I get tired on infusion day, partly due to the remicade and partly due to the fact I have to sit there for practically the whole day! I've reached my 5th infusion now and in the UK that means that I get to have the infusion in 1 hour and only have to stay an hour - YIPPEE
Hope you're getting used to it.
KT
Yes, I get tired after infusions...I'm sleepy when I get home, and I also remain fatigued well into the next day. I don't take the Benadryl or Tylenol 3 with it, as I've not had any allergic reactions to the Remicade.
I've been getting the infusions since August of 2001, and it has gifted me with the ability to walk completely without mobility aids. I began my infusions using a wheelchair and sometimes a walker, then I went to arm band crutches after only six months on the Remicade/methotrexate combination. Now I walk (or rather, waddle) completely on my own.
In 2002, I also made yet another effort to lower my prednisone. I can't even remember how many times I tried over the years, only to have too much pain and go back to at least 20 mgs. This time, though, I really felt good enough to tolerate any initial reactions to a lowered amount of prednisone. I was able to lower my dosage to 10 mgs., per the docs instructions of 5 or 2.5 mgs. at a time. Then I figured out that a very slow and gradual reduction makes it even easier. Now I'm down to 2 mgs.
I've also been working at a part time job for three months now, working every week day from 8:30am to 4pm. It's the first time in almost two decades that I've been able to keep a day-to-day schedule like this. I've always had to rest every other day just to stay mobile; now I have to wait for the weekends like everyone else!
Remicade has worked miracles for me. For all of you who are still adjusting to it, or have yet to begin the regimen: please hang in there and don't give up hope!
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