Make the "It Actually Works" go away! | Arthritis Information

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I am so tired of seeing the "It Actually Works" thread bumped up to the top.

People....stop replying.

Here's my news....the Enbril is actually working for me....for now!!

Anyone else on my band wagon??????

Gena,

I am so glad Enbrel is working for you.

I get discouraged regarding the one post that is negative all the time. It is enough to make one leave. But then there are those new people coming in that I worry about. It really is a shame.

GenaRogers-

I'm with you. Can we delete that thread??

Enbrel rules!

They will just bump it back up to the top, even if we let it die.

 

 

I am not interested in that thread but some people enjoy a battle.  Maybe it takes out their frustrations.  In my opinion, I could care less.  I just don't open thread.Yeah that's the way I feel, Roxy.   If I don't want to see it, I don't open it...if I feel like I need some entertainment then I go read it.  I actually prefer that nothing here is monitored .....I hate when posts are removed because something thinks it's best.  I prefer to be able to view posts if I feel like it.  I don't need anyone looking out for me

I don't understand, I have saw something mentioned  twice now about New people is there a problem with having new people here?   I am new but there are many times when an encouraging word from someone on here is really helpful. 

 

GOOD THANK YOU!!!!!

If people would just stop replying to it - it would go away...just like the others on here in the past.

 

So happy that the enbrel is working for you!

 

No, I do not think it will go away, if we stop replying on it. As I have seen CathyJones on here yesterday, and she/he was probably coming to see if the post was bumped back up to the top, and if it was not I am sure she/he would have bumped it up to the top again like they did the last time when it was on the second page.We love to meet new friends here, the newbies remark is in regards to the feeling that most of us get once we have been here a while...like we need to be here to give support to those new members who are maybe just being diagnosed and looking for answers or maybe someone new to message boards that needs words of welcome. Even though many of us frequent more than one board, alot of us started out here, as do so many others just because this board pops up first on the search engines. I guess this is kind of like the "home base" for alot of us.

I don't agree with that. Granted that thread is ugly. I'm not proud of any involvement I've had in it....but over all I feel like this board and others simular to it are very loving and friendly.

Never in my entire life have I been so close to so many people I have never met. The out pouring of friendship and support that I witness here warms my heart.

You'll find some of the most caring people in the world right here...and I for one and happy to be a part of it.

You'll find bad apples in every bunch.....you just have to learn to look past them and benifit from the love and support offered here. It doesn't take away from the goodness here. IMO.

Lovie39010.1637962963

Glad to know I am not alone. I don't open it or read it because my blood starts to boil.

This board is good because there is no censorship and the format is easy to follow. It is so helpful when you are new and posting for the first time. I feel like an old timer one year later. I thought I was going to be in a wheel chair last fall. TG my new meds are working.

Newbies rock!!!!

Oops! I'm a newbie who just posted in that thread.

I just went back and looked through it more thoroughly; I didn't realize it had gotten so volatile.

When I go on my favorite forums, I read fast, and pick up bits and pieces of info I feel are pertinent to the subject. When it looks like "fluff" or off-topic stuff, I usually skip over it. To be honest, I didn't read more than five pages into that thread before I posted. Had I realized that it was so undesirable, I wouldn't have contributed.

It's a shame, though. That could have been a worthy discussion about herbs vs. pharmaceuticals. That's what I thought it was...

We differ but this group bring in unrelated subjects just to confuse in order they can criticise to achieve thier naive personal agendas. By confusion and personal attack they create many disgusting issues. Is it clear to you roxy?

When I talk about herbs and natural foods, they are not processed foods like supplements in capsules, pills etc.. They are dried herbs and fresh natural foods.

I maintain that arthritis is not a problem but most problems are this group of cynical people.

Kokako, if you consider this just a "group of cynical people," then why have you subjected yourself to it, and broken in to yet another string? 

Let me just be blunt.  Please go away.

OOPS  Sry guys

When you mention his name he feels the need to defend himself....just don't mention his name.

I think we're all a little tired of the bla, bla, bla!

Oh yeah? The person we're speaking of didn't have anything to say to the post that I made on the other "threat of interest/concern" Maybe I said something that worked? HAH. I dunno. I was trying to keep this as cryptic as possible...but I don't think it worked....sorry..!!Sara G you are the one should disappear because you have not constructively contributed anything toward the healing! Only know how to say unwanted words!This person has hidden intention and that "cryptic" to me is stupid and naive. This person just don't understand simple English. You have my reply in the other subject. kokako8839011.86You all might be interested in my reply to the thread "It Actually Works!"
Trust me I didn't get involved with their childish unresolved issues.

Sara might not have contributed to this thread....but she is a very much loved member of this forum who lends friendship....support and experience to this forum on a regular basis. Can you say the same Mr. Kokako?

That's why we all come here. Friendship....support and shared experience and yes often new and different ideas.

It's not your ideas we shun Mr. Kokako....it's the manner in which you present them and the manner in which you interact with all of our members here that we don't like.

No doubt you'll have something curel to say to me as well. Will you make fun of my spelling? My grammer? Or my medical treatment this time? It doesn't really matter to me.......and frankly I doubt it will make a difference with my friends here.

Some people know when they are not wanted and go away. Sadly some don't.

I wish I had never started this thread. What was I thinking??? It is just more of the same.

These boards have helped me so much this past year. since I was diagnosed.  I asked questions and got answers and support from so very many of you. Lovie, Hillhoney, Crunchy, Fiona, Roxy etc.Thank you from the bottom of my heart.

I however think I need to take a break from the boards and the negative karma. The boards with moderators just don't seem to get as many hits or I am not a member of the "club". I always come back to this one.

Anyway....sorry I continued the ranting and hatred spewing....it is not usually in my character.

Gena

 

Thanks, Lovie.  You're sweet.

Not sure what the problem is.  I said "please", didn't I, now?  What more could one ask? 

Love you guys.

Sara G39012.2814699074

GeneRogers~

You are very much part of a club here. Don't let people like something like this take that away.

We don't want you to leave.....stay and avoid these topics. It's that easy. This type of conversation is not going on with the other threads.....we are a very loving and supportive group and you know that. Don't let something like this take away the support you want and need.

I hope you won't leave; but it's par for the course. Everytime something stupid like this goes on we beg the person in question to "GET LOST" but the only people it seems to run off is the much loved members of our group that tired of the foolishness. I really hope that's not what happens this time.

All I can say is Please don't go. Beyond that we honestly can't control what others do here.

Gena,  Please stay.  To have your presence, we will make a concerted effort to avoid Kokako.  Many reasons to avoid him and his insults.  I love your input Gena and I would be very sad if you did not continue to be a integral part of our AI Family.  Lovie, it is always great to see your posts.  I have missed all of you.  Gena, PLEASE STAY. 

All the slanderings and abuses come from this group that pretends to be innocent, caring and sharing. Under the microscope I can see clearly their hidden intentions.  

God has guided and led me out of the tunnel to freedom of suffering. I have choosen the basics and natural foods that God's has created. The disease that causes the metabolic disorders, is no match to nature. What I get? A basket full of colourful adjectives, words and sentences from many bad and poisonous mouths. This group also threaten, use all avenues to achieve their stupid agendas. A group of hypocrates and cynics.

They will repay what they have done in karma! I will continue to defend and let the world at large know the truth and facts of life.  I will not be easily threatened and intimidated.

God is great and I believe in nature I get well. If you don't then you have to figure out yourself Please stay Gena!  You are a very valued member here with insights to share to help us all! [QUOTE=kokako88]

Lovie, all these nonsenses come from a group of "piranhas" attacking someone who belief and treatment differs.

All the slanderings and abuses come from this group that pretends to be innocent, caring and sharing. Under the microscope I can see clearly their hidden intentions.  

God has guided and led me out of the tunnel to freedom of suffering. I have choosen the basics and natural foods that God's has created. The disease that causes the metabolic disorders, is no match to nature. What I get? A basket full of colourful adjectives, words and sentences from many bad and poisonous mouths. This group also threaten, use all avenues to achieve their stupid agendas. A group of hypocrates and cynics.

They will repay what they have done in karma! I will continue to defend and let the world at large know the truth and facts of life.  I will not be easily threatened and intimidated.

God is great and I believe in nature I get well. If you don't then you have to figure out yourself

[/QUOTE]

yawn

Otherwise I love peace, harmony, fresh air and greenery. I discover herbal formula to dispel arthritis. I have no fear and dislike aggression. I alway tell arthrictics that there is hope to reverse and probably a cure for arthritis. There is rainbow to go after.

Only unreasonable arthritics who always like to poke stupid cunning and bias remarks, have fear, moods swing, aggressive, temperamental, jeolous and characteristics that are full of hatred. They think there is no cure and always under cloudy sky. They are disorientated, have no direction, despair and compaint about pains and sufferings. They are annoyed and angry when others' treatment/s does/do not conform to theirs. Other treatments are fraud, their are acceptable.

I repeat there is fresh hope and work for it!  

Don't pretend to be a good person and hide in a sheep's skin. If your intention is bad and character is like a wolf, you can't hide for long.

kokako8839014.3024421296
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