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I had an interesting appointment today. It was MUCH more detailed of an exam than the first Rheumatologist I saw did. They actually took xrays of my joints.

However, the new Rheumy isn't convinced that RA is the correct diagnosis. Simply because I don't have any swollen joints, nor did I have an RA factor in my bloodwork. However, the lack of swelling could be due to the prednisone I have been taking for the past 2 months, so I'm on a slow weaning process over the next 4 weeks, then I see him 4 days after I'm completely off the prednisone. (not like the pred helps with the pain anyways, heh)

He thinks I have fibromyalgia....however he did say he was going with that right NOW, but wants to see what I'm like without the prednisone, and how my bloodwork comes back (it's been 2 months since I've had labwork...my initial labwork was done 5wks into the joint pain...so very early). He's not ruling RA out, but since I've had alot of trouble sleeping, thats what tipped him off to fibro. I'm not convinced, because part of my sleeping problems are also due to the fact that the baby is us 2-3 times a night.

So, weaning off the prednisone, he's upping my Zoloft to 50mg instead of 25mg. He thinks that upping the zoloft will help the pain, and help me sleep. Not convinced, since I WAS on 50mg of zoloft when all this started, but hey, I'll try it again. (I went back down to 25mg, because I'm not mad at my mother at 25mg, which means it's doing it's job. lol. I was put on Zoloft for PPD....and am now just staying on becauase SSRI's are supposed to be good for chronic pain patients) He also gave be a script for Relafen. I'm allowed to have any NSAID my little heart desires (his exact words, I thought that was cute). I can't take Celebrex though because I'm allergic to Sulfa. *sigh*

So, who's got experience with Relafen?? I'm dying, so I ate something, and just took one for today. Being out and about all day really wiped me out.

All in all, it was a good appointment. He knows the other Dr I saw, and says his (the other doc) treatment style is very normal of the younger Rheumatologists, which is "treat now, ask questions later", whereas, he prefers to sit back and see whats going to happen with a patient like me for a few months before pushing heavy duty drugs like MTX and the biologics. Which I respect that decision. I actually prefer it...I still hold out hope this is just post-partum hormonal induced, and it'll go away soon (hey, a girl can dream, right???)

He's also a good friend of my uncle who's on staff at the same hospital. So, I think that helps a little bit. (it's actually DH's uncle....but still family.)

I feel a little better. I just hope this relafen works. I hardly slept a wink last night, I was in so much pain. I just couldn't get comfortable.

*crosses fingers*  

It sounds like you'll make progress with this doc. He seems very open to the idea of just finding out what wrong with you, and not sticking with one diagnosis permanantly.

I can't BELIEVE other docs didnt do x-rays on you! I have had so many x-rays I should glow. :|

As far as the RA Factor, well, I've had this since damn near birth, and I've NEVER tested positive. Not to burst your bubble, but blood work isn't everything.

I can see you having Fibro. It's good that doctors are start to actually diag. people with it, not too long ago it was thought to be "all in your head" So at least what you have is a start, and that's better than anything at this point!

Good luck and keep us posted!

Katie

Katie...

     Oh, I know the RA factor doesn't mean a thing. Both my cousins have RA (one was diagnosed at 20, the other at 16...sisters!!), and niether have the factor in their blood, but they have joint damage. He's not ruling it out, nor am I.

     BUT, I am SO happy he is willing to look into more than just ONE idea, and ONE drug, KWIM? He said that alot of the younger Drs are highly influenced by the pharmacutical companies, and with a patient like me, where there's not a clear cut diagnosis, that can be a bad thing.

     Nope, the only x-ray the old Dr took was off my lungs, when they were pushing Humira on me (5wks into this mess....). I was suprised the more I read about RA, the symptoms and everything else that no one took xrays of my joints!!!!!!

    At least I feel more informed now, and am comfortable with the dr. I think it helps too that I am completely weaned, so there's no hesitation with meds. (even though I'm not sure this relafen is gonna work. I took it about an hour ago...still waiting for something to happen)
Did the doc check to see if you had enough tender points for
fibro? Although the sleep disturbance is a factor for most fibro
patients, it's not diagnostic for it. It's great that you found a
doctor who has the same treatment philosophies as you. In the
beginning it can be crazy, trying to take everything in. It's good
that the doc respects your input in all of this. Good luck, and let
us know if the relafen works for you!
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