Hi I have a rare antibody on my immune system called a jo1 antibody. It indicates that I will be open to polymyositis, polyarthritis, institual lung disease, as well as other mixed connective tissue illnesses. My story and tips on how I learned to cope with it and my misdiagnosises are on my website. http://jo1antibodies.zoomshare.com I hope that this website may be of help to others. I have read your story on your website, and it is an amazing and terrifying journey. I am going to research JO-1 antibodies as soon as I sign off here. I so hope you continue to improve. I have scleroderma with early lung involvement, so I can definitely relate. I have started treatment with an antibiotic protocol (AP for short). If you would like to know more about this, there are two good websites, roadback.org and rheumaticsupport.net. I also have Jo-1 antibody, positive ANA, and a 7 year history of doctors, symptoms, diagnoses, and frustration. My current diagnosis is fibromyalgia, autoimmune connective tissue disease (undifferentiated), hyperparathyroidism, carpal tunnel ( both have been surgically corrected), polyarthritis, osteoarthritis, and the list continues. I currently take Advil. Have refused to continue plaquenil, neurontin, and prednisone, stopping them in March of this year. I weigh 170 lbs. (from normal 137 lbs. 7 years ago.) I recently retired from nursing because I am too fatigued to continue. I could write a book about my doctors visits and how the negative effect catapulted me into self awareness and research.
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