I know it is hard to see your daughter like that. Making she is shaking because the pain is so bad.
What does you doctor say?
sambo you may want to search for " SPONDYLITIS ASSCIATION OF AMERICA' message board. It's very important to educate yourself, AS is very serious. sorry to hear your baby is going through so much pain at such an early age. I'm a 49 years old male had symptons since 90's I've been taken enbrel for 13 months now and never had a reaction like that. I visit both of this boards. Hope this will help.hey
I have been having spasms like that for a couple of days. For me what i think caused it was for one being super scared because just before that i went throught the worst pain of my life and it lasted over 30 seconds, and also still being very sore in general. Right i am so scared to stop moving for over like 10 mintes because i am going to become stiff and not move at all and go through the pain again. Also being scared for you daughter i believe is compeltly normal. I am 16 and my mom almost starts ir does cry when she see me like that. I hate seeing her like that and it almost makes me feel bad for her. Right now i am in B.C. visting relitives by myself, and when i was going through the pain mentioned above last night i was able to phone my mom in Alberta at 4 in the moring to ask what to do, i was so out of it being scared i was frozen stiff and was scared to move anywhere of corase i was screaming as loud as i could and swearing. when she heard me like this see felt so bad and she felt so helpless because there was nothing she could do because she was in another province, she started to cry, even though she did see help me for a whole hour and was able to calm me down to sit up So you are not the only one upset about seeing the ones you love like this. And the only thing i could say for you daughter which i am sure you do is just confort her, at 11 thats alot of pain to deal as i remeber how it was like back then and she might become scared. I am still scared when it happens and need someone to talk to at times like this.
I wish her and you the best
hi, i have psoriatic arthritis and AS the pain I get in my lower spine( the sacroilliacs) is so extreme at times that i am screaming in pain and also vomiting from the pain. I know how your daughter must feel.but being a child it would be so hard for her to anderstand her feelings. I am about to start on embrel and i am putting all my faith in the medication. life is so hard when in constant pain.