I've been hearing a lot of anecdotal stories online and in real life of
the benefits of fish oil to help RA and I'm convinced to try it. This
article from the arthritis foundation says the amount taken must be
large:
"How it’s used: Fish oil comes as a liquid and in softgel capsules. The
usual dose is about three grams, or 3,000 milligrams (mg), total of EPA/DHA (the key
ingredient in fish oil) per day. Be sure to check the labels: the capsules may say
"1,000 mg of fish oil," but will have varying percentages of EPA and DHA. If
they contain 300 mg, you’ll need to take 10 capsules a day. Look for high potency
capsules so you don’t have to take so many. A month’s supply costs about ."
Does anybody know it it's safe to take that much fish oil? The capsules
I have have 300mg total of EPA/DHA, so I would have to take 10 to 20 a
day every day.
I am currently taking 20mg/week of mtx, 400mg hydroxyquine (plaquenil)/day and 5ml folic acid.
My next rheumy appointment isn't for 2 months and I'd rather not wait that long to discuss it with her if I don't have to.
Any other information, cautions or advice would be also welcome. Thanks in advance.
Whoa, that's a lot of fish oil! I only take 3 capsules a day. I started it for the cardiovascular benefits, but later found out about its anti-inflammatory properties. I can't imagine taking that much though. As it is I worry about mercury in the fish oil, but I hope the benefits outweigh any risk.
I would do further research on that dosage!
October 2005
SURVEY OF MERCURY IN FISH OIL SUPPLEMENTS
Summary
The Food Standards Agency (FSA) has conducted a survey to establish the
concentrations of mercury in a range of commercial fish oil dietary supplements.
This work follows a previous survey by the FSA of in imported fish and shellfish,
UK farmed fish and their products, which highlighted that some larger predatory
fish accumulate higher levels of mercury.
Key Facts
• Total mercury was measured in 100 samples of fish oil dietary supplements,
including cod liver oil, halibut oil, tuna oil, salmon oil and shark oil.
• Only nine samples in the survey contained detectable levels of mercury. There is
no regulatory limit for mercury in dietary supplements or fish oils.
• Dietary exposure estimates based on the levels found showed over 500 capsules
would need to be consumed per adult per day, in addition to the rest of the diet,
before the safety guideline for mercury intake is exceeded.
• The levels of mercury found in this survey do not pose a risk to consumer safety.
It's true I have only begun to research it, but that's good advice,
Marian. I always try to back up anecdotal iformation with hard core
research if I can. I will share all the info I find, if people are
interested.
Gimpy - I stumbled on a fish oil 'semi' recommendation on the website for the CDC!
I bought 1000mg caps from Costco that would be only 3 a day.( I think if you take too much fish oil you will get heartburn and the trots. You can just cut it out and you will be ok.) I quit taking 1000mg because I could taste and smell 'fishiness' constantly... I don't like fish very much especially the 'stinky' ones.
Maybe I'll try again.
Recent research indicates fish oil may really be helpful for RA patients. summary of the research at: http://arthritis.about.com/b/a/257431.htm I"ve been taking fish oil for several months and have been able to cut back on NSAIDs at the same time. I hated the fishy smell too! Found some that are "odorless" and they really are!
I just bought a new bottle of fish oil softgels. They are 2400 mg. and the recommended dosage is 2 per day. There are 200 in the bottle and it only cost me .99. So that's a 100 day supply.Hey, just wondering, how does the Sweet Mary Jane help you? I have had RA for 10 years at least and I am very tired of being in pain every day of my life. don't wish to try the toxic crap the tradional MDs are pushing, and fish oil, glucosamine, etc. dont' cut it anymore, if they ever did (placebo, anyone? except Steve Martin. oops, dating myself
I don't think the improvement from taking fish oil is a placebo effect, since several double blind studies have shown significant evidence that the benefits of taking it are clinical. The omega 3s inhibit the production of the harmful white blood cells sort of like a lot of RA medications do. (I never understood why people poo-poo the placebo effect anyway---isn't getting better just through the power of your mind a good thing?).
Hi,
I am allergic to seafood so I take flaxseed oil capsules that contain the same kind of omega-3 oils as most fish oils, they don't taste or repeat on me but I got the one a day capsules and they are huge! Next time I'm going for the two a day ones because I take drugs morning and night anyway... Just a thought if you can't take the fishy stuff!
Hi KT297, Unfortunately it has been found that flaxseed does not provide the equivalent in omega3 fatty acids as once believed. Flaxseed oill contains a different kind of omega 3 called ALA, which the body converts to the helpful EPA/DHA, but only at a rate of about 10%, so if you are using flaxseed oil as a fish oil substitute you are only getting 1/10th of it's benefits. It goes something like this:
Fish oil versus
Flaxseed oil
Q. What is
your opinion on fish oil supplements, and why not just take flaxseed oil
since it has omega 3s? How much is needed to take daily?
A. There are several Omega 3 fatty acids. They are named ALA (alpha linolenic
acid ), EPA (eicosapentanoic acid) and DHA (docosahexanoic acid).
ALA is found in flaxseed oil
whereas EPA and DHA are found in fish oils. ALA is able to convert into EPA and
then into DHA, but this takes several enzymatic steps in the body, and not
everyone efficiently converts ALA into EPA and DHA, particularly with
aging. So, the bottom line, I prefer fish oils to flaxseed oil, although a
small amount of flaxseed oil is also good to take.
(I got this Q and A on a random site, but I've read this information
on multiple sites, some scientific, some not). It's a real bummer if
you are allergic to seafood. I am not a vegetarian but I do try to
limit my intake of animal food products, so I am always on the lookout
for a vegetarian fish oil equivalent, but so far I have been unable to
find one.
I don't have any suggestions about the size of the tablets, except
to investigate if there is a fish oil product which is not packaged in
gel caps. Perhaps a liquid form?
Hi,
I know flaxseed isn't as efficient as fish oils but it is an alternative...I can't have any fish or fish oils, last time I ate fish I had anaphylaxis and ended up in hospital overnight so I was recommended to take flaxseed oil instead. The reason the capsules are big is because you have to take a bigger volume of flaxseed oil to get the benefit you would have from fish oils. NB some fish oils you take give you less omega-3 than flaxseed oil so I think it's a tricky one! Also make sure that your capsules (whichever you take) have been manufactured without exposing the oil to oxygen, it might say on the packaging that they're manufactured under a nitrogen blanket or something like that. Apparently exposure to oxygen can affect the omega-3's...
KTb
Hi,lol there are times i wish mj was proscribed for arthritis...
a good fish oil brand is Carlsons.. get mine at the vitamin shopee
they also have a liquid version which is delicious
Mark, I don't know where you live but it's worthwhile to investigate whether there is a Compassion Club in your area. I don't know what they're called in the States, but they are MJ dispensaries for people with medical MJ needs (you get a perscription thingy from your doctor). At a low cost they provide you with MJ, and MJ cookies and stuff. The one in Vancouver has won awards!
no , unfortunatly the states are way behind canada as far as the medical mj goes but It would help I am sure.. I hate arthritis...
I am trying to take one day at a time and not get filled with fear.
Do ya'll rub the fish oil on your feet or the parts that hurt? I think, I use to talk to someone with RA that done that, but says the relief did not out weigh the smell Hi - hemp seed oil is not marijuana - it is legal in many countries & I am wondering if anyone has tried it.Hi y'all,
I can't take most meds for RA and have been taking fish oil for a couple years. It really does help. Carlson's and Barleans seem to be the brands most recommended. I take the liquid instead of the caps due to having trouble swallowing so many large caps. Also, one should switch from just fish oil to cod liver oil in the winter, related to the vitamin D needed for the shorter days. I also grind flaxseed fresh in a coffee grinder and add to many foods. I have to use natural and alternative therapies to control RA. If anyone is interested I'd be glad to tell you what supplements I take. auntiannie
Hi Auntiannie - I would be most interested to hear about your natural treatment for RA - I feel these these things are worth trying and for some people they can bring about some improvement and would be interested to hear your story.I would totally be interested in what you use. I posted a thread here about CAM (complimentary and alternative medicine) but I didn't get much bites.Gimpy - I stumbled on a fish oil 'semi' recommendation
on the website for the CDC!
I bought 1000mg caps from Costco that would be only 3 a day.( I think if
you take too much fish oil you will get heartburn and the trots. You can just
cut it out and you will be ok.) I quit taking 1000mg because I could taste
and smell 'fishiness' constantly... I don't like fish very much especially the
'stinky' ones.
Maybe I'll try again.
[/QUOTE]any one take emu oil caps?
I have never heard of these. Can you tell me more about them?
I too take fish oil for my RA. My doctor recommened that I freeze it. This would stop any burping or after taste. It works great for me and I don't have the after taste or the burping. I take 1000mg 3 times a day.
Here is another article expounding the use of fish oil vs. nsaids for RA from the Health Sentinel:
Hey Go-Go!
(you never said what to call you
You mentioned the ADHD - I have a theory on this. :-) Chronically ill people are almost always low on glutethione - the body's master detoxifier. Glutathione is the stuff they give you in hospitals when you have an adverse reaction to drugs and they want your kidneys and liver to function again. There is some Nobel Prize nominated research linking esential fatty acids with a sulferated protein to help build glutethoine in the brian. The EFA that works the best for this is Flaxseed oil.
I have a 'recipe' for this that I swear helped me.
Pip
http://www.arthritistrust.org/Articles/Essential%20Fatty%20A cids%20are%20Essential!.pdf
I just grind my own flaxseeds and put it in bread and on my oatmeal and hot
According to the research it has to be combined with the protein to get the benefits of building glutathione. This prize winning research says that this can even reverse cancer. I was skeptical, but one lady on the RB says she has Xrays that show bone lesions reversing. Normally I would take a post like that with a grain of salt, but I've been watching her for a while and she seems straight up and reasonable at all times. I believe her.
The 'recipe' which is in that link was a bit modified by the lady I told you about.
I've read that you are not supposed to go over 3 Tlbs of ground flax a day, but only on one site so I don't know for sure that the last part is true.
Hope this helps,
Pip
I recently read about a study done at Johns Hopkins that said that large ammounts of Omega-3 used in combination with NSAIDs could actuallly cause clotting problems and increase the risk of stroke. Has anyone else come across this kind of information from any other sources besides Johns Hopkins?Mayo Clinic has a substantial page on fish oil/omega 3. http://www.mayoclinic.com/health/fish-oil/NS_patient-fishoil
This bit discusses the risk of high dose fish oil: "Several large studies of populations ("epidemiologic" studies) have examined the effects of omega-3 fatty acid intake on stroke risk. Some studies suggests benefits (86-88), while others do not (80;89-91). Effects are likely on ischemic or thrombotic stroke risk, and very large intakes of omega-3 fatty acids ("Eskimo" amounts) may actually increase the risk of hemorrhagic (bleeding) stroke (92). At this time, it is unclear if there are benefits in people with or without a history of stroke, or if effects of fish oil are comparable to other treatment strategies."
"Eskimo amounts", LOL. I think I'm safe, no seal blubber where I shop.
This from Univ. of Maryland's Alternative/Complementary Medicine reference pages: "Omega-3 fatty acids should be used cautiously by people who bruise easily, have a bleeding disorder, or take blood-thinning medications because excessive amounts of omega-3 fatty acids may lead to bleeding. In fact, people who eat more than three grams of omega-3 fatty acids per day (equivalent to 3 servings of fish per day) may be at an increased risk for hemorrhagic stroke, a potentially fatal condition in which an artery in the brain leaks or ruptures." Excellent reference site. http://www.umm.edu/altmed/ConsSupplements/Omega3FattyAcidscs .html
It's hard to search, NSAIDs + omega3 brings up a ton of articles on people lowering their NSAID dosage due to the anti-inflammatory props of O3 but nothing about taking them both at the same time. I looked on my NSAID (Lodine) PI sheet to check for interactions but found none.
well...it sounds valid then....if one is taking alot of nsaids and alot of omega-3s...it could very well be problematic...It is something to think about..
Maybe it is something to mention at the doctors office..at least ask what the safe doseage ranges are for the two when used concurrently...
good links...lynk..I have tried OmegaXL for my neck pain, which I have had for years, from old football injury. This product is the most potent Omega 3 blend on the planet! 1 capsuel = between 200 to 300 Omega 3 fish Oil capsules. Reduces & Elimintes Pain, Disomfort and Inflammation! Arthritis, Asthma, Diabietes, Cardiovascular Disease, and many many more. You can get a FREE BOTTLE just pay for shipping.
www.painfree4u.com This product really worked for me. I use OmegaXL - the most powerful Anti-inflammatory Available. 1 capsule = between 200 to 300 Omega 3 fish Oil capsules. I know 100's who are getting great results with this product. You can order FREE BOTTLE, just pay for shipping. www.painfree4u.com
I haven't had time to read through all the posts for this topic so please forgive me if I repeat what's already been said. I've been taking and researching fish oil for years. I've found what works best for me is 10,000 mg of Carlson's or Nordic Naturals. The liquid Carlson's is probably the best but I can't handle the taste so I take the capsules. Freezing them helps with the fish smell and after taste. I also rotate back and forth between brands because it seems like they lose their effectiveness if I stick with one brand for too long (probably my imagination). I know a someone with RA and this fish oil product helped reduce and eliminate pain and inflammation of RA. If you would like to talk with this peraon you can email me. mectrade3@yahoo.com
Hey RA Peops,
This is my 3 month follow up of taking massive amounts of fish oil
daily, along with my plaquenil and weekly mtx. I think it's working! Of
course, it's hard to know what exactly is making a difference, but when
I went to physiotherapy this week my therapist was amazed
at how the swelling had all gone from my knee after only seeing me a
week before. It had been subsiding for months but the last stubborn bit
just went *poof*.
Also, today I was at RA self management school and there was a women
there with pretty bad established RA that nothing was working for
(except remicade worked for 16 months and then she had a really bad
reaction to it). In the bathroom she told me the only thing that works
for her is fish oil. She takes four "big" pills a day and notices if she
forgets to take them. I'm not sure how much EPA/DHA is in a "big" pill,
so I can't tell you that.
So I guess, IMO, fish oil is worth the money and hassle as a complement to conventional RA meds. Go fish oil!
Copyright ArthritisInsight.com