We’re a real pair | Arthritis Information

Hi all,

Rough weekend! My inlaws came for the day yesterday and I think I'm just overdone. Hurting and tired

Also, I wanted to ask, my knee has been hurting alot the past few days and when I woke up yesteday it actually had a bruise coming to the surface ( one of those bruises that looks like it comes from very deep) I know I have not bumped or hurt it, anybody know what's up with that?? I have pain in pretty much all of my joints at different times, but have never had a bruise show up like this.

Anyway, hate to complain, but it's hard when we're both feeling awful at the same time (we're a real pair)

Thanks for being here,

Dear Pam, I'm sorry to hear that you and Oscar are having such a hard time. I hope that you are both feeling better soon. My heart goes out to you. Love and gentle hugs, JuliahWell...Pam, sorry to reply so late! I've been running like crazy. Will explain in a separate post. I did not get a lot of stomach aches except in response to meds. Bu,t I did get a ton of sore throats. And even now, I suddenly loose my voice when a really nasty flare is coming on. They explained that by saying that the larynx is a type of joint therefore it can be affected by RA. Sucked when I worked in the hotel answering phones. I can be fine one minute and then start with a scratchy voice and loose it within 5 min.
And brusing...that's a big one for me. I used to bruise my legs so badly, I was afraid to wear shorts for fear someone would think my mom did it to me. And after I married so no one thought my hubby did. I have noticed Bastian's legs also bruise easily, but chalk that up to being a 3 yr old boy.
hugs, wayney

Hi Wayney,

I hope you had a great visit with your friend.

Thanks for your reply, today is a little better. Oscar also suffers alot of sore throats, usually one of the first signs that he's about to get sick. I'm worried about him at the moment, he is always such a happy kid but seems to be depressed. It has become hard for him to keep up in school and Tae Kwon Do (his love) has become a struggle too.

I had a co-worker tell me yesterday that I should just force him to go to school when he is feeling bad. I felt like such a terrible mom, she said it was bad for his character to miss school because he is "too tired and his thumbs and ankles are hurting". Last friday he came in my room at 4 am and told me his eyes hurt and he did'nt feel well. I decided to let him sleep in the morning and he slept hard until 11 am. She told me he obviously is'nt getting enough sleep. "My son had asthma and never missed school" UGH!!

Gotta get Oscar to school now. Thanks for the support, 1 more week until he sees the RD.

Thanks for the hugs,

Do not let your co-worker make you feel bad. I missed school quite frequently and wasn't hurt by it character wise or otherwise. Because it was due to a well documented illness, I was not punished in any way for missing. I know lots of school systems now hold parents responsible for missed days. But, I'd guess it was covered under an IEP. Pam, if it turns out Oscar does have JRA meet with the school about an IEP. I've got a few articles that had been posted years ago on AI about IEPs on my website. If you'd like the link, just let me know. I don't remember all of what may have been in mine. I do know that I had an extra set of books, an elevator key, no participation in gym class (drs order), and if needed extra time for tests that required writing. This was all in middle school. They were also supposed to provide a physical therapist. But, they seldom did. In high school, I don't know that it was actually a formal thing because I was hurting less and less. I still had the ability to get the elevator key, and no gym classes. And I was given a low locker because reaching up hurt too much.
As for not getting enough sleep...duh...JRA will do that. I don't recall seeing anything actually written about it. But, I know I always had bad sleep. Wait, still do. And with Bastian showing symptoms..and his sleep issues...it scares me still. He woke up the other night with his face looking like he was hurting. But, he refused meds. Just wanted me to hold him and rub his legs. Then he said the rubbing hurt too.
Now, without sounding too bossy, you may want to consider an counseling for Oscar. If he is sounding depressed to you...well depression is common with chronic pain even in kids. I know I went through a stint of talking to a therapist alone and in a group setting. I didn't think it helped me at all. But, this last time, I went to a mental health person I didn't feel it helped. And he actually agreed with me to the point that he said I knew when I was getting depressed and seemed to handle it correctly.
Sorry this has morphed into a long post.
hugs, wayney
ps..also feel free to email or pm me! i know sometimes its easier talking one on one than all out in the open.

I really do love this sight, you guys are such a big help, noone ever told me about the throat part, i used to have singing lessons and sang in public a couple of times, but now i can't 'belt' for too long before i get croaky and sometimes i get croaky for no reason at all just out of the blue. And billy gets croaky too.

And he also bruises easily, legs especially it never ceases to amaze when he has his shower or gets dressed, theres always loads but like you say i just thought it was his age and nothing to do with the other stuff. He either sleeps like a log and i have to wake him or he can wake 2/3 times in the night. We've been there with the leg rubbing, it breaks my heart to know i can't do anything, especially if meds refused.