Hey Guys!
How are you all? no ones has said anything in a couple days. Im great today! I dont feel anybetter joint wise but im so happy so that makes a big differnce, its the first day in awhile were is wasnt raining and today it was warm enough to wear a skirt! YAY PLUS i had my last chem lab of the semester, thats so exciting, lab is interesting but it takes up 4 hours of my Wednesdays and its very tiring for me. its such a relief to be done :) haha im also looking forard to sat cause its enbrel day whcih means im once again on my way to feeling better, i just had a 2 week break soo im really hoping to feel goood again. Tomorrow Is bloodwork day, in going at school as long as everything is good ill go up to 8 pills of MTX fun fun. Im not sure i want to though since going to 7 i have been feeling nauseus and not hungry the day after mtx...not sure if its related its only been 2 weeks but its possile. Plus today my mouth errupted with sores, even though ive been very dilligint about my folic acid-the dose just got moved up as well...but yeah. Today ive been able to forget about my joints they still hurt, but I skipped to dinner with only moderate pain, not enough to stop lol one thing i shouldnt have jump is hop into puddles and jump up and down-does anyone else get that awfull pain like they just jumped 3 stories onto concrete when they do somthing that is just a little impact on your legs? I do its a pain lol literelly. SO yeah hope everyone is going ok, let me know! It makes me sad when no one writes on the JRA board.......
Hey!
It makes me happy that you are so happy! I go in for my remicade tommrow, so hopefully I will be feeling better too!! Congrats on your chem. lab.
I have a question for you. I took a crutch into school today to help my one hip and knee. I think people were making me fun of me in the halls. I got so mad, I dont know, maybe I was overreacting, but it sure seemed like they were laughing at me. I walked past some kids in the halland they went from being really loud to really quiet, and I turned around a second later, and they were whispering and laughing. I was hoping you could give me some advice. I am always afraid of being made fun of because I need to use crutches sometimes, and when I limp. On days like this, I dont want to be in school, just because of some stupid kidsNot a problem! I would be whining too if I needed crutches! my advice, well i know its hard but try to ignore them! I mean if they ARE making fun of you, which it sounds like, then they obviusly arent your friends, so who cares that they think!!! So just walk by them walking as proud as you can, maybe they will stop when they see you dont care!
Actually today in ballet class-its my pe class, i love it, somtimes its extra hard cause of my joints but it makes me feel better at least while im dancing..anyway in ballet class today I had my arthritis walk t shirt over my leotard, after class somone came up to me and said arthritis walk, thats ironic, people with arthritis cant walk! you know what i said? UM YEAH so people with Arthritis can walk, and some can even do BALLET! lol i felt good after that, and then I explained to him that the walkis for people supporting the arthritis foundation and the people they know with arthritis in addidtion to people who have it, i also let him know that there is yoga for the people who dont feel up to walking.....so yeah try not to let it bother you!!!!
if you have to explain to your friends about the crutches I would make a joke. THats how i deal with explaining things to some people that i dont know that well...i tell them my joints hurt today thats why im walking like an old lady-my joints are being mean to me today....you get the idea,
Feel better, keep smiling :)Were they girls??? If they were girls whatcha gotta do is - before you leave class you gotta sweet talk your way into getting a cute guy to carry your stuff for you to your next class. LOL Then the only thing they'll be whispering about is how they want crutches too. Just take it with a grain of salt. I know you've probably heard that before. Hehehe 5 years from now you won't even be able to remember their faces or names, and that's if you even remember the incident! *hugs*hey I've been there too, It really bites when people start making fun of you. I know it hurts to be made fun of believe me.. but look at it this way, if they had to go through one day of the pain you feel everyday they wouldn't even be able to walk at all. I went through the same thing last year at school with this one girl who made fun of the way I walk everyday, i finally got in her face about it and she didnt say another word to me the rest of the year. But yea i know the feeling your talking about when your having a bad flare and your limping really bad and it just feels like everyone is staring and laughing. But I've finally learnt to look past them and realized that because if they want to make fun of me let them cause I know that I'm a better person than that. But I hope everything works out for you. I'll keep you in my prayers
My crutches are leaned up by the front door, covered in several layers of dust. I hate using them, especially around school. i remeber this one girl when i was young and in my wheelchair; she used to wheel me in the boys loos and shut the door so i couldnt get out. she was quite evil, she always had a really nasty comment- but she moved away a few years ago. the week before she went, she came to me, and said that she's sorry for all the years of being nasty to me, and that she admires the way i delat with everything. you realise that these people are nothing.
Anyone that feels the need to take the mickey out of someone with a disability isnt worth your headspace. So hold your head up high, and remember that they are too ignorant to understand what we go through and what we deal with. they arent strong enough to understand it; no way in hell could they deal with it like we have to. they arent worth the worry, honestly.
(If feeling dignified doesn't work for you, why not bash them on the shin with your crutches!? Aren't they just metal sticks anyway!?)
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