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DH and I go to the Dr. (he's going with me) Anything specific we should bring up?? Here are some of my thoughts....

If he's (the Doc) is convinced I have Fibro and NOT RA, why is he so hell-bent on prescribing NSAIDs?

Why do my hands shake?

The knucke on my right hand, middle finger has been red since friday. (of course right now it's not...but it WAS red, and painful to the touch/movement)

I constantly drop things. Yesterday I was at the mall and dropped a ceramic do-dad in a store. Yup, it shattered. They were cool about it, but what if it had been something priceless???

Ummm, I'm sleeping fine, except the baby's up 2-3 times a night. Can't do anything about that. Still in tons of pain. Have moments where I am insanely frustrated because of all the pain.

I''ve been doing TOO much to try and get my mind off the pain. Hence, today I'm EXHAUSTED. Friday and yesterday I really overdid it. But I had to do something, otherwise the pain will consume me and I'll go insane.

My jaw hurts.

Yesterday and today I will be FREEZING cold one minute, and hot and achy the next. Nearly instantly. Really wierd. Side effect of the prednisone weaning?? (i'm done to 5mg a day, and OMG, I can tell the difference)

Can't think of much else. Ideas???? DH's going to push for painkillers, and NOT more NSAIDs. I don't like the long-term side effects of them...and so far they haven't given me enough pain relief to offset the stomach pains that they give me. So, even the small amount of relief I get (which is not much) doesn't matter, because my stomach hurts so bad, and I have such hideous issues in the bathroom (if you know what I m ean), it all evens out, and I'm jsut as miserable as I am without taking them. *shrugs*

Okay, off to take a nap. I hurt too much to do much else, and both kiddos are napping.

Thanks everyone. :) (sorry I haven't been around much the past few days....I just hurt too much to spend much time typing.
Print out this post Midge and make sure you address every issue.  You  have done a good job of making a list of concerns.  Let us know how it goes and I am glad you have DH to support you. 

By the way, I also had horrible pain in my jaw.  I have always had a touch of TMJ, but this got so bad that at certain times of the day my teeth didn't even line up with each other correctly anymore.  The lessening of pain in my jaw was the way that I could tell the Plaquenil was taking affect.

I do the same thing trying to distract myself from my current pain.  I did this on Saturday, went on a big shopping trip to a mall about 1&1/2 hours away from our house.  Wasn't feeling well before I left, and hubby said "Are you sure?", but I just wanted to get out and pretend things were normal I guess.  Didn't work out that way, so it was not a good day, and it was a looooong trip home.

Hope your appointment goes well, and you get the meds you need.

So glad hubby is going to go with you to the doc.  I have taken mine with me before and have gotten much farther with the doc than if I had gone myself. 

Make sure you let the doc know what the NSAIDS are doing to your stomach, they don't touch the pain, and for you, they just aren't worth taking. 

When I flare, I go from hot to cold and back at the drop of a hat.  I wonder if it is our body trying to fight off the inflammation.

Hopefully all will work out today.  If you and hubby still aren't satisfied it really might be time to find a new doc. 

 


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