Hey everyone....I've been meaning to post, but the kids have been sick, and I'm just exhausted. *sigh*
Anyway....Drs visit went well. I have good news and bad news.
Good News
99% sure it's NOT Fibro
90% sure it's NOT RA (however, he's not going to rule it out completely
until I'm 100% off prednisone...which I will be a week from today.)
Gave me a script for painkillers (DH told him to either write one, or
he was going to look into alternate, perhaps not so "legal" ways to
help me with the pain. hahahaha. Dr got the pad out ASAP on that one)
X-rays of my hands look perfect.
MOST of my bloodwork looks great.
Bad news
I have a low platelet count.
He has NO idea whats wrong with me.
So, he took chest x-rays, and they took about
6 vials of blood and are going to run some more tests. He didn't get
specific about what the low platelet count means, but I have an idea.
Especially when I got home, googled "low platelet count" and
"hemotologist" (because I had NO idea what THEY do). Yeah, thats
probably the next step if my platelets come back low again...send me to
a hemotologist, and then we will "go from there" (his words). He did
look a little worried...but could be because he's frustrated at not
being able to figure out WHAT the heck is wrong with me. I did have
less sore spots this time, but the spots that are sore are MUCH more
sore than they were when I saw him 3wks ago. (at least he seemed to
think so) My fingers were a little swollen, but he didn't think it was
enough to really pay attention too...especially since i'm having "cold
one minute, BLAZING hot the next" issues right now (pred weaning
maybe??)
So yeah. We have NO idea what is going
on. I have decided I hate google and the internet a little...because
alot of my symptoms are symptoms of bad things. *bites nails* but
seriously....you just don't have AWFUL bone pain overnight with
something like, Lukemia, do you???? *hopes not*
Poor DH.....he's just trying to not think
about it. He's REALLY kinda flipping out though. His GF in college was
pre-med...so he knew right away what the Dr was kinda hinting at, but
didn't want to say yet.
I go back on Dec 5th. He will have all the
tests he's running back by then, and we'll go from there. God I hope
it's nothing bad. I can handle it, but I don't think DH can. All he can
say when we talk about it is "I can't lose you....I can't even think
about it....I NEED YOU" Thank god for modern medicine....I have to have
a positive outlook, one of us does!!! If it IS something bad...well,
we'll work through it. DH's uncle is a surgeon who specializes in
cancer....and he's well connected, so I know I will be in good hands if
thats the case. We're actually going to his house tomorrow for T-Day, I
think DH wants to sit down and talk to him about it.....although I'm
trying to get him to wait.
Ohhh, gotta run, dangit....kids are up. I'll be on later. I'll keep
everyone posted! I hope y'all don't mind if I stick around!!! :)
Your news is so distressing. I hope it is not what you are afraid of. But even so, hang around. We don't all become friends because of RA itself, but because we are all suffering and we needs friends to help us through.
Really hope it is a smaller problem than what you fear. Will be thinking about you so please keep us up-to-date.
I will be thinking good thoughts for you and your family. Please keep us posted on what is going on.
Glad you finally got something to relieve the pain. Hope the kids are feeling better soon and you can get some rest.
Waiting for test results has to be the hardest dang thing to do in life sometimes. So, in the meantime, we are all still here for you and wishing you the best!
MsMidge,
Check out this link. I don't know if you will find it more reassuring or not.
http://www.medicinenet.com/script/main/ques.asp?qakey=11273
Also, your husband was really clever in getting you the pain medications.
[QUOTE=Deanna]MsMidge,
Check out this link. I don't know if you will find it more reassuring or not.
http://www.medicinenet.com/script/main/ques.asp?qakey=11273
Also, your husband was really clever in getting you the pain medications.
[/QUOTE]Basically, it is saying low platelet counts can occur from RA which would mean it might not be the big C.
I'm sorry you're not feeling well today. I'm in the same state. I think it is all the activity of Thanksgiving.
I'm glad your Uncle was reassuring. Now, if your doctor can do the same, that would be great.
For almost 2 yrs I was given good news, labs and x-rays all negative but was in constant joint pain. Finally I started to show symptoms, swelling, redness etc. and though we are waiting on new labs doc says it is either RA/PA.
Just trying to say that negative labs and x-rays are not necessarily an absolute indication of no RA. Not that I want you to turn out having RA but the big C is scarier I think. I know that I felt better finally knowing what I have as I cannot fight what I don't know.
Take care,
I have blood probs too, but not too bad I guess. I sure hope you get to the root of the problem so that you can get some relief.
Try not to stress too much(easier said than done I know) and try to look at the test results as information which is a good thing.It sounds as though your hubby's uncle will make sure you get the best of care and that has to be a huge relief in itself.
Welcome to my world! I feel for you I truly do. We are here for you.
It has been absolutely beautiful weather but I am sure the cold and snow and all the weather changes will come soon; it was nice to get some yard work done today and clean the garage up a bit but I am paying for it now...........oh the pain! Why is it the pain is so darned difficult to get used to?