Hello everyone. I finally got diagnosed with PMR today. A little scary, but I'm so happy to have it nailed down. I fired my last rheumy. He insisted that I had fibromyalgia and took me off the prednisone that my gp gave me. Of course that left me in a lot of pain, and basically his attitude was ... too bad. That's fibro. Come back in a month.
My new rheumy (a lovely woman) has me on a declining dose of prednisone until after Christmas. She said us women get a lot of stress during the holidays and we don't need to be starting anything new until January. I think I'm in love.
Hi Stitchy!
I had my diagnose in June 2005 after having contacted the doctor in April that year. I remember that even if I didnīt like the illness, it felt good to know what it was and to start to "fight" it. I am 69 and male and before takiong Prednisol, I felt tired and had night sweats. Even if I had to go back up from 2.5 mg last month to 5 mg, I feel I am on my way to get well. My wife and I were in Rome two weeks ago, and thanks to the medicine I could walk and walk as you do in a city like that. I am lucky not to have had any pain as I see most PMR patients on the board have.
It seems as if most PMR patients take it easy when tapering down from the initial dose, so I think it is a good idea to wait after Christmas.
Greetings from rainy Sweden
Ragnar
Hello Stichy
Welcome! I know what you mean to have a "name" for the disease. I'm newly diagnosed, too. Generally I'm a lot better than a few weeks ago but now I'm tapering down on the meds I'm beginning to get the pain again. Will have a review with my doc week after next. I'm so much better that I went Christmas shopping with my husband today and walked out and about for 6 hours without my walking stick. The first time this year!!!
Hope you are having a good weekend.
Love Judi
Ah, the pain. Even with the relatively high dose of pred I am currently taking (starting to decrease as of today), I have some pain. But after the hell of the last two months, it feels pretty mild. Something that I don't like much, but certainly can tolerate. I was getting so depressed thinking that I was going to have to live with such severe pain for the rest of my life. And at only 60 years old, it should be a very long time. The old rheumy was so arrogant, condescending and unsympathetic (not to mention WRONG!).