Joonie? | Arthritis Information

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Hey Joonie, where have you been lately? Maybe I was
sleeping and you did tell us you would be gone, but I don't
remember seeing one. Hope everything is ok!Yeah......I was thinking "where's joonie?" last night :( Where'd you go woman? I hope everything's alright!

I am around ... somewhere.

Just been stumbling into the potholes along my "road".

I cut my pred down from 10mg to 5mg so I would not have to call in for a refill, as I am going to see RD wed. And I done that the beginning of the week, I think. And I have had a lot of pain, stiffness, & swelling and then my arm hurts in the bone where my pin & screws get cold, that is very unpleasent. And I have been extra grouchy, so hubby & I have been arguing, because I forget things he tells me and just forget things. I get like that more when I have inflammation in my body.

I have not made it to PT this week and probably will not go back. I have a hard time keeping my appointments because I do not have a ride to get to PT or something comes up to where I have to cancel so someone can be home when daughter gets home from school, and the day I could keep my appointment, I had to cancel because I could not find none of my 3 bras I own. I do not like going out in public without a bra on. Me boobies are saggy and flop around like there is no tomorrow, because I have a very bad limp. At least when me boobies are in a bra they just bounce up & down and that to me looks better then looking like they are wobbling to & fro

And then I still have not took my Humira, has been almost 2 months. I can feel it even more now that I dropped down to 5mg of pred. 10mg of pred was keeping me semi-comfortable. But I still was not like when I had my Humira.

I have been putting off taking Humira as one of my toes on the left foot got the nail pulled up and it looked like it might fall off and then it did not, and then I kept having green puss come out of it. The last couple of weeks it looks like it might fall off and no more green puss. The nail turned white all the way down, so maybe it will fall off. It does not hurt anymore when I try to raise the nail, just creeps me out

well... I am around, just not feeling like posting, and been in a grouchy mood, would hate to snap at someone Well, we miss you. Hope you feel better soon. Know what it is like.I just wanted to make sure you were still alive. I thought maybe
you got a really bad paper cut from your Christmas tree
You'd better make sure you make it to your appointment on
Wednesday, cuz it sounds like you need it. Did you find your
bra, by the way? You wouldn't want to knock your RD out
before you get some more meds! Also, coming off the pred usually makes me cranky, so that
might be the prob. well you still have a good sense of humor. Sorry you are feeling so rotten.  Coming off the pred can make you cranky.  I am weaning also and will be done tomorrow.  I haven't been the nicest person to be around lately lol. 

I feel the ache also with the plate and pins in my knee and tibia.  Drives me bonkers.  And then of course the dog or kid or hubby has to bump me right there lol. 

You may need an antibiotic to heal up that toe.  Don't forget you have been on pred which lowers your immune system and ability to fight infection. 

I hate wearing a bra.  But I have to in public too.  I really don't care about at home.  The kids can deal with it lol.

RASara - No, no bad paper cut from the paper Christmas tree, because hubby & MIL will not let me and daughter make one. I had it all planned out too. and in my head it look fantastic!

But no, paper christmas tree. You should build it in a closet where no one goes. Just take a
little bit at a time to build your tree. If you want a paper tree,
damn it you should have a paper tree!

Joonie, sorry it's so bad for you right now.

Are you supposed to but your prednisone so dramatically? I'm not the nurse as a lot of you guys are, but I thought pred weaning was supposed to be really gradual or you risk permanent damage to your adrenal system?

 

 

Dr's will usually tell you when you are going down on pred to go down buy either 2.5-5mg.  Or thats why my dr has done.  But its risky to go from taking pred to not taking it at all kelsaysmommy39063.4402777778

That is why I done 5mg as I know that taking none at all is way worse than just dropping 5mg. 

PLUS, I know I can go from 10mg to 5mg without any problem have done it before when I realize I have no refills left and it is a weekend. I also know when my RD weans me he will do it by 5mg. He done that when he put me down from 15mg to 10mg. I am hoping when I go back to RD tomorrow he will put me back on 5mg and then hopefully by the beginning of the year none.

No worries!

joonie39063.8051157407

heres  to no prednisone.....

hope  you  can get  off  it...  It  is   just  nasty  stuff.

 

 

Thanks, Mark!

Well, I am one of the few people who actually just LOVES pred. I would take pred all the time, but I know it is not good for me and I have been on it since March of this year. So... it is time to get off.

 

joonie39063.851087963
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