well all my blood work keeps stumping my doc but I know what i feel....
at least I am starting the ap well not fully yet got to keep working on him but he did not say NO...
this morning was hell....
this damn disease wants to beat me bad... toke more fish oil,'
and whatever I can till I see the damn RD in jan...
I admitt i am scared how the hell will i work with this damn thing?
I am afraid for my knee ect... yes I know they can replace joints but I hope thats not needed for a long time....
The technology can only get better
for those of you who pray please keep me in prayer...
this is hard on me... I was in school and you see everyone so healthy it can get ya down .
I also got a few vicodens from the doc but just like 4 lol
he said use the prednisone that should help... well thats nice but ummm it does not always... 10 mgs...
I hate prednisone anyways
please GOD let them invent something better than prednisone...
he said if the pain keeps getting worse he will have to up the prednisone..... I wish he could just put me on something but I have to apply for medicaid i think.... lol
my cobra is 300 a month... ugggs.
I have a new car that was a good idea before I got sick..
The vicodens are making me wooozy but I really needed some pain relief.
I have a gf who loves me alot but I am fearful she will leave me because of this....... I hope not having someone care is very important..
Mark, just keep hanging in there. It's hard for doctors figure out how best to treat you and unfortunately even with the best docs, it does take time. But you have the right idea going.
It is also hard to handle when we lose our closest friends and lovers. I lost two boyfriends through this process. Although, I still talk often to the last one.
Mostly, I think it just takes time for others to accept. Except for my kids, my whole family pretty much didn't get it and treated me really bad. Now, four years later, they are starting to understand. My parents really let me down in the beginning. Now, they are very supportive.
Fear is the worst thing in all this. It can choke you. It can stir up flares. You must build you a support system. You tell from all of my posts that I find this very hard to do. It is the people here and my daughter that give me the best support.
But a few weeks ago, you were so depressed that you were having awful thoughts. You sound more level now and that is quite an accomplishment.
You're in my prayers. By the way, they can do a lot for a knee. Make a separate post on it so lots of people can share their experiences.
Mark you will be in my prayers as well. My blood work is all neg. the last time it was checked (last April) but a good doc will recognize RA from a physical exam.
My life was over as I knew it then but now I have a good new life which includes RA etc. I must admit that I am a better person having to deal with chronic pain and fatigue so there is always some good we can get out of all things.
I do disagree with your doc regarding the prednisone and raising it. I use narcotic pain meds and maybe you might like to find a pain control clinic depending on what country you live in. I had only 1 shot of prednisone and gained a lot of weight which my knees and ankles do not need.
Take care and you will overcome
I am glad that you were able to start the AP therapy and hope that it works for you. I hate pred too and I agree with Bonny about trying to find a pain clinic. You have the right to control your pain and upping pred doesn't do it. There are times you need a narcotic pain killer. Fight for your right to control that pain.
Apply for the medicaid. You deserve it. I just hope you don't have the struggle that Deanna has had trying to get it. I just want to go to AZ and wring those peoples necks and steal their APPROVED stamp and stamp it all over her paperwork lol. I would like to do that for EVERYONE!
As far as your knee goes...you will know when it is the right time to replace it. I am doing mine after the 1st of the year because I have waited long enough and there is nothing more to be done with it to keep me out of pain and more damage from happening.
Everyone goes through I hope my spouse or significant other doesn't leave because of this ridiculous disease. Unfortunately, some do. I wish it weren't the case and people were stronger than that. I have been with my husband for 19 years and still worry about that but I know he isn't going anywhere. Talking a lot about how I feel, the RA, and educating him on what to expect (or in some cases what not expect) has helped both of us a lot. I feel you have more of a chance of losing her because of depression and not because of the disease. For us, the depression bothers my husband the most. So I went and resolved that with some Prozac
There is so much to sort out when you are newly diagnosed. I am glad you found us and that you post.
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