Went to RD, teaching hospital. She was part of the AP trials. She said my RA was too severe and I had had it too long to be a candidate for AP therapy
Back to square one with Brett. We have decided most of our issues right now are financial. We are going to significantly lower the price on our property in CA and go to marriage counseling and he is getting on antibuse which I get to give him to be sure he is taking it. He is also attending AA daily and I am attending Al-a-non weekly. When he gets fired, which is taking forever - which I suppose is good since we still get insurance - he is going out of country to get that Ibogaine shot for his alcoholism. So - sorry for all the drama around Brett's alcoholism. I guess he is going to do what he needs to do.
I was so excited about seeing this doctor and her only solution is more pain meds. I don't like pain meds, they don't enable me to do the things I used to do and they make me tired and I have NO memory. I mean it is bad.
So, one more rotten rd appt. for the board. How depressing but the good news is I am happy to not give up on my marriage. He treated me really well today and I miss that.
My hands are so swollen I cannot write and typing is a challenge. Abby went bathroom in the house again and Brett is losing patience. I think we are going to take her to the vet and see if they can give her something that helps her hold it longer. Like Kelsey for her incontinence. We will seeeeeeeeeeeeeeeeee..............but I know one thing - if there were an intruder - man - she could hurt them
Oh one more thing, the RD said I should not consider going off of pred. GRRRRRRRRR I don't agree.
Muscle relaxers are also used to treat fibro. The fog we walk around in all day really sucks. Sometimes even Danny loses his patience with it and he is awesome with me and to me.
As I have learned today, things will work out the way they are supposed to. I just can't let myself stress over it anymore.
Roxy, I responded on the other thread about fibro. The painRoxy,
I'm sorry your appt went so bad. I can't comment on the Fibro side of things, but if your brain fog is anything like mine...look out. I feel completely stupid some days.
Lori
Hi Roxy - I sure wish your appt had gone better. From your signature you have had RA since May 2005, wonder why the RD thought that was a long time? It does sound severe, though, and pain management can be very helpful, but . . . I still wonder why she did not at least agree to try you on the AP. Maybe because the herx added to the pain you already have would be too much. I hope that someday, if pain management is successful, you will try again. Like my RD said, "it certainly can't do any harm". All the best, PatI thought her answer was strange to roxy since on roadback they have people who had RA for 10 years start AP..
I thought that too but my "paperwork" defines my RA severe and she said that she does not know an rd that will treat RA with antibiotics with severe RA. She was really emotionless. I sure miss my other doctors. I was dx in May 2005 but was hospitalized Sept. 2004 for RA but my seasonal insurance ran out, so I could not do the tests. I spent the winter being a pred. and darvocet junkie If I were you I would consider looking for another AP doctor. That one sounded awful and a second opinion never hurt anybody.
I was thinking same thing. The relationship between you and your Rheumy is too important. Go ahead and try to schedule with someone else before you completely cancel with her. Make a list of questions and see if you can get any answers before you waste your time.
She may work out, but you just haven't had RA that long and if this therapy is going to work I don't see how you cannot be in the timeframe. Just check your facts with other doctors, web sites, etc. You may be able to force her hand in trying this if you can point out other doctors who have had successful with longer term patients. Sounds like she is not well-estalibished and doesn't want to risk her reputation.
Roxy,Roxy there have been people totally unable to get out of bed anymore and dying who responded to AP. I got it from my PCP as it is at least worth a try. There are also testimonies that AP helped Fibro as well which is an AI.
Take care and don't give up trying AP.
Bonny, I am going back to that website and trying to find a new referral. Thanks.Hi Roxy - I really would get a second opinion if I was you. My RA is diagnosed as severe/aggressive. I just can't take the other meds is why my rheumy decided to try this approach. I am feeling better than I have for months so I would have to argue with her personally. I realize not all meds work for all people which is why I can't see them telling us it won't work - one of those things you just don't know (and neither do they) until you try it. Just my opinion of course. Hugs and good vibes.It did not exactly make me feel optimistic when she said the Enbrel has my RA under control and all this pain is fibro which we cannot do much for except for lifestyle changes. At least RA they give some legitimacy - fibro I feel like gets no respect