Hello. If you have Reynauds, have you ever taken Procardia? I tried for a stint, but it gave me headaches. I live in Boston and for the last two years I have gotten frostbite on my toes and fingers, from literally just being outside with my kids. I thought I was good a bundling up, but my reynauds has gotten worse. Well even though it has been mild weather, damage is done and my feet are starting in again. I have also thought about just going to Whole Foods and getting something but I have no idea of what. Any thoughts???
Thanks, Suzi
I have severe Raynoud's and ironically live in Florida. I am on Revatio and do well with it. I am on the verge of losing my big toe (constantly blue) and the Revatio seems to be holding it at bay. Have you tried any hyperbaric treatments yet? Also there is a product called "Toastie Toes". It's a warmer that you put on your sock and it actually stays warm for 10 hours. It has done amazing things for me!!! |
I'm so sorry. I am a Newbie. I have moderate RA. I have been a "lurker" I suppose. I am not doing well physically. I take Humira, Methotextrate, Topamax, Lexapro, Roxycodone, and Dilaudid. I have torn tendons in my ankle due to RA, they won't operate because I could lose my foot/toe due to the severe Raynaoud's. I go to the Rheumy tomorrow. I think I will speak with him about injecting weekly until I feel better. Thank you everyone for allowing me to lurk as you have been a plethura of information for me!!! Ellen Nina |