We haven't heard from Roxy and Deanna since Xmas. They say that no news is good news and I am hoping that is the case here. Roxy? Deanna? Not the same without you two. Have been wondering the same - hopefully Roxy is enjoying family life & Deanna is so busy putting her paperwork in order for Senator McCain they just have not had time to post. Where are you the bright lights of this site?
Yes, I'm hiding (actually been lurking some). Roxy's laptop is busted and it hurts for her to use the desktop. It should be fixed soon. Generally, she is doing better. Colton and Kelsey had a great Christmas. All other things are status quo besides it's much more interesting to hear her comments. But she is ok. I talked to her last night.
I had three wonderful days in a row because no doctors could see me. My dear friend, orginally from India, brought me gifts and money 3 days before Christmas. My girlfriend and her daughter brough gifts and pay for a job I did when I quit working. They were delightful visits. I cried all through the first one, and laughed all through the second one. Then, Christmas eve, my son brought over one of those easy to fix, fully-cooked, already slice with its own glaze hams. I have been in hog heaven with that one. He also bought me a wireless keyboard and mouse with was exceptionally thoughtful. Then we went to see the movie, Night in a Musuem. I highly recommend it.
The doctors have been running me crazy though. The Opthamologist found too much pressure in my right eye and we had to get a optic nerve test done on it today. Yeah, it checked out okay. I'm not going blind afterall. I wish they wouldn't scare me like that. With Sjogren's, Glaucoma, being on Prednisone and Plaquenil and my materal grandparents going blind with macular degeneration --- I get a little paranoild when the doctor gets all sad and says, "We have problems here."
But we missed that bullet.
Also, Primary insisted on putting on the morphine. Bad idea. Doesn't want me to have the electrial wheelchair because he's afraid I won't move. Well, the morphine turned me into a complete zombie and I refuse take it especially when it makes me itch and I cannot do anything but sleep. So much for keeping the joints active.
However, I called my surgeon and have the script for an electric wheelchair in my hot, little hand. Key is one specialist trumps a primary doctor. Keep it in mind, folks. You too may have to resort to low-life tactics like this.
Still haven't written John McCain because I've been higher than a kite and sleeping constantly. I would at least like to make sense when I make my response.
Cardiologist gave me clean bill of health for my upcoming three surgeries. We once again parted on congenial terms. But my heart has been doing good. Glad he doesn't want to mess with that.
Met my new PT. Much, much better than the previous one. He really gave me a full exam and next week I start the water therapy. Happy! Happy! Happy!
Bad news is that Christmas night my daughter tells me she's been overtaking her pain meds. This is where you might want to listen up if you are planning on using a pain management clinic. She tried calling the clinic, asking to be put in detox or something to just get out of this cycle. Oh, we'll see you in 2 weeks. She tries calling her Primary. We are still waiting for a call back from yesterday on that one. Obviously they are real concerned which is strange since they said she could die from a forced withdrawal. Tried talking to the people that manage her mental health case. Useless. They just sent me in circles. I had to tell Julie that I couldn't go to the hospital with her again because my immune system is too damaged.
She's getting worse and it is obvious to me that she doesn't want to call the paramedics. Besides that wouldn't take her one time before. So, I called the crisis number because I can't stand being put in this position again.
Out come the paramedics who act like I'm inhuman for not taking her to the hospital. I stil lhave morphine in my system. They whole idea was to have Julie be checked out medically then go into a detox progaram. Well, the hospital released her with some meds, not enough to get through the weekend of course. And no, they don't think she should go into a detox program because of her medical issuses.
Moral of the story if you are looking for a pain specialist be sure that you find out how they are going handle you if you have any problems with the meds. This includes other health problems, like when she had to have her gall bladder out, to taking too much medication. They make the person sign all kinds of legal contracts and certainly no one wants them overprescribing pain meds But they also have a moral obligation to make sure that they get proper care if there is a problem. This pain specialist won't do this.
I'm on the hunt for someone who will treat pain with other things besides opiates. This seems to be the only thing that is being offered us on our health plan.
I did have lots happening and I didn't want to bring up troubles over Christmas.
I think we chalk this season up to a survival.
Deanna,
My thoughts are with you...I hope everything works out.
Lori
Things have to work out. In fact, some things are working out. Certainly I feel like I have reached more progress than I did a few weeks ago. At least it is not all banging my head against the wall now. Some things are actually falling into place. I just don't understand why I've had to fight on every single thing.
But keep encourgaging me because I get down about it all especially the things in my daughter's life which seem so uncontrollable.
I keep believing that a bright side is ahead of me.
I am here. I just need my laptop back. Miss you guys.