I spent five hours at the hospital. I was hurting so bad after the first two, they had to put me in a wheelchair. They made me flex every part of my body and it HURT. Doctor and therapist were nice. Sure seems like they did not think I could do much. I took my meds before I went, thank God, I wasn't going to, but I had to get up at 6 am and it hurt too bad. So it is in their hands. To be honest I will shocked if I get turned down. The rd who I would like for a rheumy but he doesn't practice, just SS, explained everything that was going on with me, butt pain etc. that other doctors minimized. I had all this stuff I was going to talk about but I was so sore and exhausted I did not talk a lot. They asked me a typical day and I told them I do things in 15 min. intervals, have to sit in recliner, heating pad, nap daily, pain pills necessary. I did not exaggerate anything. They did talk about what a good education I have which may be a drawback. I had no inflammation but plenty of stiffness and redness. The whole day sucked. Really made me realize how bad this RA has me. I got to look at hand xrays. I definitely have swan fingers, my toes just look all mangled. So I don't know how long for the results.
Deanna, I am sorry I did not call you yesterday. I have been in the dumps for some reason. I went to the pet store and Brett let me get some fish which cheered me up. My sis in law, I love her, made me the most beautiful shawl for Christmas. I can't really wear it around house but it has all different texture threads, it is fuzzy in some places, the threads dangle in some places - it is amazningly beautiful. I got compliments all day on it. Now I need a ratty tatty one for around the house.
KIds made out like bandits on Christmas. My brother and sis in law gave them tons of presents. Colton got this really cool remote control "mosquito" that is hilarious, Kelsey got tons of make up, clothes, smelly things. They were both very happy.
My computer crashed, should not have let Colton use it for all the stuff he downloaded. I lost everything including wedding pics. I am grieving that right now.
Until I get lap top back, I just cannot handle sitting in this chair and typing sitting upright. Thinking of you all and as soon as laptop is fixed, I will be around more.
House is getting straightened out and found out I will be getting more money on SS if I get it. One day at a time. My back and shoulders hurt so i will check in again soon. Love you alll. Deanna, I did read your posts. It sounds like you are taking control of your situation. You always make me proud to be your friend.
I'm so glad it is over with. It sounds like pure torture, especially since you told me more on the phone. Isn't that something related to the time of the Inquistion and isn't cruel and inhumane treatment outlawed in this country? I know, I know, I'm still on a rampage.
I still don't understand why they have one person see a Rheumatologist, another a physciatrist and you an occupational therapist? Is there any rhyme or reason for what they do? And, why is it a big secret?
Why isn't all the money we shell out for doctors and tests valid as we struggle for years for a diagnosis, as our work performance fails, we inherit things like walkers, braces and wheelchairs? How much proof do they need?
But so glad you are through this and I hope you hear very, very soon that you got it.
On your laptop, sometimes they can restore your files if you ask. It depends on what the damage was.
SS is crazy. I had to see a GP Doc that could have been my kid. All he did was try to get me to push pull and walk then said "why do you walk like that?" I said duh it's called RA. That was a year ago and of course things are much worse. Then they had my reg Doc evaluate me giving me a percentage of disability last summer. When she said to tap my feet I was really scared because I couldn't. Try just tapping your feet gently on the floor while sitting as I was shocked when I tried it and could not do it smoothly. I also could not grip and hold her fingers. At least I like my own Doc and she wrote things up good.
I took myself to a Psycologist a yr ago in an effort to get a handle on things and he wrote a great letter explaining the cognitive problems that come with FMS/RA and tons of meds.
I keep hearing that it comes down to if I can be "gainfully employed" which means can I make the lowest amount that SSDI pays which is 0 per month even though that is no where near what I get if I win SSDI and it is certainly no where near what I made prior to getting sick. What a ridiculous formula.
When we were working and paying into FICA they sure did not tell us what rotten Disability Insurance it is.
hi roxy, ss sent me to a chiropractor, to be checked out, he had me sit for 5 minutes checked what drugs i was on and had me stand. he told them even though i had servere ra i could walk normal, even though i hobbled in there. he also said i should be able to stand or sit 6 out of 8 hours a day too,even though i only get up about an hour a day and lay the rest. when the judge saw me and my rheumy's records he tossed out the states report.i think if they would have sent me to someone different i might have had ssd over a year ago.good luck with ssd and hope u and deanna get some much needed help soon.i tried montel williams but never got a reply from them.