Hi,
Haven't been around for awhile, since the leaky-gut post. Am doing O.K., and have moved on to do the The Maker's Diet, by Jordan Rubin. You can google it.
Would like to share this true story with you. Maybe it will help some other small child with JRA. A lady at my place of work told me that her small daughter had JRA. The doctor had my friend, to give her daughter, 1 Ecotrin (an orange coated aspirin) a day. No oranges or tomatoes. And pick an exercise of horseback riding or swimming for her everyday. The daughter picked horeback riding since they lived in the country. And she abided by what the doctor prescribed above. And, has been in total remission and is a adult now. Happy Ending True Story
Thanks for letting me share.
Any time carly. Thanks for the insight! Glad she went into remission.
Did the Leaky Gut Diet not work?
Hi jooniper,
I was very happy with the leaky-gut diet, as far as I went with it, around 3 or 4 weeks. Then I stumbled on The Maker's Diet, and believed it to be just what I was looking for. Very organic, it's alot about how to begin taking real good care of myself, for life. I was so into putting myself last, and fast foods. I am a changed gal. Still on almost no meds, a mobic now and then., 1 a week. Hoping to keep seeing good results. I have to be VERY serious about taking this kind of care, because I am not seeing the docs for right now. And by the way, I had a good blood pressure reading last weekend. 120 instead of 150 to 160 when on the Methotrexate. Also, am sleeping much better. And have lost weight. The goal is: no more pain And I pray daily for this to happen.
RA for 4 years.
Great news Carly. Thanks for sharing the story, and glad to hear you're feeling better too.
Cris
I'm sorry, I can't say this story about JRA is some big miracle. Many JRA patients go into remission in their late childhood/early teen years. And not taking it seriously and only using aspirin can cause needless damage in children. And before anyone blasts me for saying this, I do know what I'm talking about. I went through it. I never took anything stronger than ibuprofen or naprosyn and gee my JRA went into remission too. But, guess what, there's lots of damage because when I was diagnosed, they didn't think JRA needed aggressive treatment so I was caused needless joint damage that can't be prepared. So, was it a miracle that my JRA went into remission? I hardly think so. I'm not saying it's not great for this child. I'm just saying that like adults, asiprin doesn't always cut the pain. Nor does cutting out certain foods. I tried cutting many things...didn't make a difference. My RA was considered in complete remission until I had a child. Then it came back with a vengence.I was anxious to hear your response on this matter Wayney.
I tend to agree with you. Too many people just don't realize the long term effects that joint damage can cause. You're living proof. It's not just the pain we need to be afraid of.
I don't think enough is known still to this day about JRA; I've come to the realization lately that there are many of us that were diagnosised in their early 20ties that should have probable been diagnosised in their early teens or earlier; but were dismissed by doctors.
I can say with all certainty that if it were my child; knowing all I know today I would not let it go that easily.
Lovie
I didn't even go into that part of this Lovie because it's a bit too close to me right now. Hard to hold on until next week knowing there might be something wrong with Bastian. I personally can't see not fully addressing all of the issues of what can happen with JRA if it isn't properly treated. And as a parent, I want the best treatment possible while balancingthe toxicity. Which also reminds me...I read an aspirin bottle warning after my son's pediatrician also told me that aspirin is no longer recommended for children with arthritis. Bayer Aspirin does not have this warning though. I'm looking for things to support this statement by Bastian's ped. But so far, everything I'm finding says not to use aspirin without contacting your doctor due to the risk of Reye's syndrome.RA left untreated in children can cause growth deformaties. This is of a major concern.
I had major surgery to correct a growth problem in my leg when I was 12. I was never diagnosed with RA until I was 23 despite the fact that my mother complained to my doctor for years about the pain in my legs. Those were considered "Growing Pains". Well I guess it was indeed "Growing Pains" considering I had one leg growing longer than the other!!
We're glad your back Wayney. I hope you enjoyed your time with your best friend.
I am living proof that without aggressive treatment there will be joint deformaties and unpredictable growth loss.
I was diagnosed when I was 3 but was sick from the time I was a year and a half years right after my MMR vaccination. I took a daily baby aspirin and later received gold shots til my early teens. Then it was this and that over the years. You name it - I tried it. I'm currently on enbrel and doing fabulous.
I had my first surgery when I was 10 to remove nodules and bunions from both of my feet. I lost so much blood during the surgery I had to have an infusion. I would have 10 more surgeries in the years to come - just on my feet. I had one ankle fused and the other replaced (only to be removed after I broke it and had it fused last year), my left wrist fused, numerous finger joints replaced, elbow synovectomy and nodule removal and spine surgery. I think that's it - I have lost count over the years.
It's a miracle I'm not in a wheelchair. My doctors have told me that other kids with JRA as bad as mine ended up wheelchair bound and house bound. It probably explains why I never saw kids who looked like me growing up.
I was a young person essentially living in an old person's body. There wasn't a summer that went by that didn't involve a cast, a splint or a torture device of some kind.
I cringe when I hear that someone with JRA is being treated with mere aspirin. It boggles my mind.
Though I'm very glad it worked for your friend.
Edited to add: Looking abck (I'm 35 now) I was in a ton of pain when I was a kid. Just standing was agaony. But being a kid and wanting to be just like my sister and friends I withstood this pain. I didn't know that it wasn't normal not to have pain. I just think about what I might have accomplished and how much taller or how many pairs of normal sized shoes I'd have if I had medications that are available now.
kayobe,
Probably everybody's RA is a different. But, truely sorry that yours was this way, thank God for surgery. But just yesterday I talked to another lady, that her daughter was dx with RA at 18, And she is in total remission thru aspirin. I agree, that children with a cold or such, shoudn't be on aspirin. You have to know your own circumstances.
And yes, I remember when I was 5 years old, and after a baby shot, I layed in bed that night and my whole side felt paralized. Being little, I did not tell my parents, I wonder if they would have done or could have done anything about it anyway. When I woke up in the morning the complete mumbness was gone. Those baby shots we all got probably does have something to do with this.
Thanks, gotta run
koyobe,