So my RD has added FM to my RA diagnosis. Whoofreakinghoo! So now my question (which he talked around, over and thru,but never really answered) is how do you separate FM pain from RA pain? How can you tell if the MTX or whatever is working if you still have pain, you just don't know from what? And even more so if your labs stay exactly the same....I am frustrated frustrated frustrated.
For those of you with FM and RA what works for you?
Thanks for letting me blow off some steam! Laura T
I don't know how you can tell. Whenever something starts to hurt I always chalk it up to my RA. Sometimes I worry that I might be misreading the pain and it is actually a symptom of something else.Hi Laurat, I have RA, fibro, Sjogren's syndrome and OA. What I'm finding is that if you have one autoimmune disease, you're very likely to have more than one. My original diagnosis was OA. Next they added fibromyalgia. I was experiencing a lot of stiffness and muscle pain along with chronic fatigue but at that point all the blood work was normal. It was only when my blood work showed a positive rheumatoid factor that they added RA to the mix. Then Sjogren's once the blood work showed RA. I had had a sore throat with absesses and dry nose and eyes for years.
To me, the most trouble is caused by the fibro even though the doctors don't give it much attention. The constant fatigue and body aches can really get you down. Getting a good night's sleep is extremely imortant so a hot bath before bed along with 3 extra strength tylenol usually at least puts me to sleep. I give myself plenty of down time to rest during the day. This year I switched from full time to half time as a teacher so I can rest more. It's really made a difference. Exercise helps too but in slow increments. I had a physical therapist work out a program for me and if I do my exercises at least 3 times a week, I function. If I stop, I stiffen up really fast. Sometimes I have to do less if I'm having a bad day. Warm water exercise is a must for fibro. You can do exercises in the water that you wouldn't be able to do without damage on land. Good luck and hang in there.
Hi Laurat - I also have fibro as well as RA - just what we need. I have fibro in my jaw & recently posted here myself trying to differentiate between RA & fibro in myMy PCP has Fibro and she said that the Fibro pain is more like the aching during a bad flu and the RA pain is hot and sharper.
I have both and if I listen to the doctors, I am totally confused. This Rheumy (that I now hate) put down that I had 18/18 trigger points for Fibromylagia. He will not treat me for RA because my bloodwork is fine right now. But he is doing nothing for the FM.
Is there really a treatment other than painkillers, exercise and antidepressants? It seemed like a couple of years ago that I was hearing about real treatments. But I'm not being offered anything but painkillers and strong ones like morphine and oxycotin which I won't do.
But if any of you are really being treated I be interested.
As for how I feel about it, RA seems to make me feel sick all over and my joints feel swollen and hurt. FM seems to affect my muscles.
But the doctors can't seem to agree on what is causing me the most problems. And, frankly, they are driving me nuts.
http://en.wikipedia.org/wiki/Fibromyalgia