The last couple of weeks I have not been doing so well, even with my Humira. I have swelling like when I was not on Humira and just pred.
Anyways... to the point...
The last couple of nights I have been woke up by my right knee jerking. My right knee is very swollen and hurts non-stop and will not bend nor straignten, it is stuck in the sitting position. I will finally fall asleep around 4:30am-5am and then rudely woken by my right leg jerking, and then the pain associated after the jerk. It feels like someone pulled my leg. Or you know when you fall asleep and you dream you are falling and then you jerk? Well... I am not dreaming I am falling, but that is what the jerking in my leg is like.
I think it is from possibly inflammtion? The swelling on my knee?
My right thigh before going back on Humira, it would do like a twitching from my right knee up to mid thigh or to my hip and then it would go the other way... from my knee to the middle of my calf.
I have had this in the past, the jerking, but did not think much about it as when I got on Humira it went away, and only happened a couple of times.
Has anyone else experienced this?
My problem was similar to yours. I thought i had a bakers cyst but it was just inflamation and i ended up having to have a steroid injected into the joint.I am also on Humira,not sure if the twitching is a side effect though.I hope you feel better soonI think you need to get back into a doctor and see what they think might be going on. Certainly don't just keep living with it. I do believe that there are quite a few options and not getting in there can really cause you some long term damage as well as the ongoing pain.
Now, pick up the phone and make that call. Pretty-please?
Last night and this morning while sleeping was much better! My leg did not jerk any, as I called RD yesterday and told them I could not take it anymore and he RXed me a pred dose pak. I took my first day all 6 pills early this morning around 3am and I slept so much better!
I can bend & straighten my right knee there is no swelling nor inflammation on it. I was actually able to walk and not hunched over and limp and in pain. I felt kinda normal. I LOVE PRED DOSE PAKs!!! Oh and my elbows... WOOHOO!!... they feel so much better!! Fingers not swollen and I can make my semi-closed fist again!! My feet did not hurt nor my ankles! And today, today... I got up off the couch all by myself and without having to rock back and forth 4+ times before having to ask for help to get up.
But all of this will be short lived. I will call monday for another appt with my current RD. Maybe if I actually talk to him more, instead of just sitting there, he can give me soemthing for inflammation and swelling.
I did not even have to take any IBU today! I usually have to take it 3-4 or even 5 times a day to keep the pain and some of the swelling down.
My mommy even wants me to go see that RD that is almost an hour away. I seen my mommy today... and she knows I am not doing good when I forget she is visiting my sister and do not go over to visit while she is in town, plus when I do not call her for almost a whole week. I might call that RD and see how long of a wait I will have if I make an appt myself vs a Dr referring me.