Saw my PCP and told her I had been diagnosed with this disease.
Most of my findings as far as labs were low. Low sed and CRP but...what was it for the three months I complained with nothing being done, I wonder?
Anyways, I asked her if two summers ago when my legs were bothering so much if that episode I had with loss of vision in one eye, like a shade dropping half way, could have been PMR? Yes she said without hesitation.
Said maybe should come off Pred. and have a blood vessel biopsy. I doubt however after being on this therapy if a biopsy would be worthwhile? This would be for my GCA symptoms that I told her I feel 90% confident that I have. Said she'd ask some surgeons.
I had such pains in my head and could only sleep on one side until the prednisone. Jaw on same side can bother when I eat and have a twitching eye same side among just some things that make me so confident I have it.
Oh yes the sore spots when brushing your hair. Aha.
Hi Kew, bless your heart. The pains in the head sound horrible! I hope they do something for you soon.
I also went to the doc today. Rheumatologist about low red count, high white, and out of sight platlette count. He said I have to have a colonoscopy and stomach thing to try and determine where the hemaglobin is going. Don't ask me what happened to the leukemia. I dont have a clue. All I know is now my completley innocent. unsuspecting colon that has lain there unmolested for all these years is about to be defiled by one Dr. Ojo. Well, that's just great. Maybe he'll do my nails while I'm there.
Ojo is pronounced just like it looks, like GOJO. I know I'm being cynical and ungreatful, and I know they have to do these things to find out whats wrong, but my colon is the only thing I have that's doesn't hurt. It doesn't know about pain.l I'd just as soon not expose it to the unpleasantness of the world.
In the middle of all that yesterday, the cardiologist called and said my appointment is on the same day that the medical sodomy is scheduled occur. I told her "No deal, pick another day." Oh, if only I had a broken leg like poor Barbaro instead of all this other stuff!!!!!! Then, maybe they would put me out of my misery.
This started out to be informative, but somehow it turned pshcho. Sorry, and thanks for listening. The hematologist is really a very sweet man, and I'm sure Dr. Ojo is nice too. It is just so frustrating! Pray that I will get over it before the "procedure". Thank you.
Good luck, Betsy! Having been through a number of colonscopies over the last 15 years, the worst part of it is not being able to eat anything the day before and taking heavy duty laxatives to clean out your colon. The procedure itself is really interesting if you can stay awake for it (like "The Incredible Journey") but usually I've been so relaxed by the valium that I miss most of it. Some cramping during and after from the gas they inflate your colon with, but not too bad.Betsy,Hi Ruth and Reni, I'm supposed to be asleep when they do the "procedure". They didn't tell me I can't eat all day. That's terrible. I'm already so weak I'm about to fall over from the blood thing.
Thanks Reni for the kind words. I do always seem to make fun of everything, don't I? I guess that's how I get through life. Maybe someday I will write a book about all the dumb things that I subjected myself to... like letting Dr.Mojo Ojo snake some foreign object around in my intestines. I could have said, "Hell, no!", but did I say that. Hell, no.
I'll bet he's 4 ft tall and has a tinkertoy around his neck for a stethescope. Dear God, please let me be wrong.
Good luck Betsy... maybe they will be showing a good movie in Theatre!!!! I enjoy your sense of hmour too!! LynWishing you the best Betsy. Thank goodness for that wiggle juice they give you now when they do these tests.