RA and Lupus | Arthritis Information

justsaynoemore2009-06-20 05:54:03

justsaynoemore2009-06-20 05:54:23

Hi Cathy, I don't have "Rupus" but I've read about it. I have multiple autoimmune disorders, as do most of the women on my mother's side of the family.

Have you seen this? From Lupus.org: http://www.lupus.org/education/brochures/connective.html

justsaynoemore2009-06-20 05:54:44

Hi Cathy, I'm new to this and have been dx with RA, possible, I love that word, overlapping Lupus plus Fibro and Sjogrens. Trying to get cert for Orencia by ins. Saw a skin doc yesterday for rash reg doc thought to be eczema. Nope!

Just part of the disease. I hope you can find something that helps you. I was on enbrel but got shingles on the bottom of my foot and my immune system was bottomed out. I had it for 7 months! The Orencia is supposed to be easier on the immume system than Enbrel.

Don't ever give in to this stuff, just fight back and keep moving!

justsaynoemore2009-06-20 05:55:04

Hello everyone, I just found this forum today - was actually looking for som information on my dog and a swolen joint. lol

I've been dx'd for at least 10 years, have sle, ra, fibro, sojurns, reynauds, ibs, brain fog from h*ll (just to name a few) - well you get the idea. My most hard won personal opinion is to learn to respect the disease, but if possible, do not let it run your life - not a easy path, but one that gives the most enjoyment in living!

I tend to try and stay away from the forums because the information often digresses into poor pitiful me, I'd much rather talk about what I can do and hear about what the medical profession is doing to help.

My thanks for taking the time and effort to develop this forum!

Peg

Hi Tiredalot,

Just went to my physician today. Was dx in March with RA so also new to all this but have had fibro for years. My rheumatologist never said there was anything that could be done for it so I just took NSAIDS.

What you said about the rash caught my attention. Asked my doc and he said he has no idea what it could be. Rheumatologist said the same thing. Bright red rash, both forearms, neck, face (both sides) near the jawline. Not the usual lupus rash they speak of.

Is this a symptom of RA? Lupus? Think my next trip should be to the dermatologist? Thanks for your help.

I like your attitude Promiseddreams!

justsaynoemore2009-06-20 05:55:55

Hi Cathy,

I just got home from my Dr (not my rheumy) and I have small sores on my forearms that she thought looked like Lupus along with other symptoms. So may I ask you a couple of questions? Does any of your bloodwork come in positive? So far mine are all negative. Also do you have any itchy small sores that do not go away?

I can't believe this overlapping. For me it was first Fibro then RA, PA and now Lupus. I give up. About the time I learn reams about one disease another is added. How are your meds working? I was also just informed that I have been in a long flare. I thought a flare meant bedridden.

Thanks Cathy

justsaynoemore2009-06-20 05:56:36

Hi, I´m Mili from Argentina and i have the same thing lupus and AR. Im taking micofelonato (i dont know the translation) and cortisone and hidycloroquina. What drugs are you taking? are they working?

justsaynoemore2009-06-20 05:56:59I was diagnosed with RA in 4/07 - but was just recently given the "Rhupus" diagnosis as well - as I now test postive for SSA & RPN antibodies (and postive ANA) and am super sun senstive with red rash across my chest and neck popping up for no reason.

My cousin - who is also my age....Has RA, Fibro Myalgia, Neuropathy, Diabetis, Celiac Spru & depression (go figure). She has quite an overlap.

Brennaboo2008-07-16 10:43:00I was also recently diagnosed with Lupus, whereas I have had RA since age 14. I've had Lupus symptoms for years but for some reason the doctor didn't want to give me that diagnosis till now. Red rash on neck and chest for at least 20 years, recently rash-like sores on forearms, extreme sun sensitivity, very extreme fatigue and depression.

So I officially have "Rhupus" now too. Also Sjogren's and Antiphospholipid Syndromes. I'm on my second round of Rituximab infusions - had two in November that didn't do much if anything (but I was undergoing severe stress for several months - Achilles rupture surgery, my sister got cancer and died, and my surgical incision got MRSA staph infection, landing me in the hospital in January and February - so the Rituximab probably didn't have a chance).

I'm trying to be hopeful that round 2 will be beneficial.

I have a cousin with undifferentiated inflammatory disease, and we share many of the same symptoms.

I have questions, I haven't been to a specialist yet. I have been sick for a couple of yours and a years ago, I had a positive ANA. It was 1:80 twice. Then after I had been on steroids for a few weeks, I had a negative result. Then a couple of months ago, it was 1:160. What in the world does that mean? This past month, I have hurt so badly all month and felt completely horrible. My Md said MCTD and my eye dr is saying MS. Does anyone else have optic neuritis and a positive ANA? Just wondering, I will be going to a specialist in a month or two, just curious for some kind of idea.
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