I think I need a change | Arthritis Information

Well I have been putting it off and putting it off. Scared to death for the change but my anles and wrists have gotten so bad, I can barely use my cane or walk at all. They feel broken. Brett keeps talking about how I am going to get better but not at this rate. I have an appt in Mar. with my rd. I am going to ask for changing biologics which really really scares me BUT I am going downhill fast. I have spent a week in bed as it is SOOOO painful to walk, Brett helps me to the bathroom. I have had several broken bones and I swear - my ankles and wrists feel broken. This cannot be fibromyalgia.

I know you are resisting change; but Enbrel hasn't been working for you for a long time.

Research Rituxan. I'm hearing really good things about it. Humira and Remicade are too simular to Enbrel. I think you need something totally different.

Good Luck. Any chance you could try to move that appointment up? March is a long time to wait when you are in pain like you are.

I agree with Lovie! March is way too long to wait with your condition! You need to try and get in, oh like, yesterday! See if you can bump up the appt! And, good luck. I hope a change of meds is just the thing for you!

I'm with Laura and Lovie, bump this sucker up for an appointment. Say its an emergency and try to get one next week!

I guess it is unanimous. I have not walked for five days. I finally upped my pred. I am so stubborn!!!!! I called the rd and they are supposed to call me back. I want a pred pak. Very depressing. My ankles and wrists make me unable to do much of anything - including taking care of my new puppy or go to physical therapy. Amazing how fast it can hit you. I have not even brushed my teeth today as I can't stand. GROSS. I am scared - very scared - about changing biologics but it is either that or more pred Roxy I will be praying that another biologic helps you more. I just finished 4 days of being unable to walk without the walker and it's the pits. Walkers and canes make a mess out of our wrists so they are not really an answer. I hope your rheumy gets you in today!

((((Hugs)))) and prayers to you Roxy.

Roxy-Glad you have decided to try something else. I hope this will be just the thing for you. As always, you are in my prayers.

Tara

Roxy - please remember that I was in your situation 10 years ago - it took a while, I think around 2 years but I went from being bedridden to a stage where I could at least function partially. I can walk for around 20 minutes, do my own shopping & such things. I have to pace myself & still have flares sometimes bad but not constant like it used to be. My RA was severe so while I know this will not be the same for everyone I hope you can take something positive from this & you will also make some sort of improvement. I know I didnt think at the time I would ever get any better but to a certain extent I have and I hope you will too.
You are a determined person & I think you will be fighting all the way.
Good luck.i keep tthe hope i will get better. i am just stubborn and afraid of the drugs. i took my dreaded pred. and i am better but it is so hard to put these drugs in my body. Brett has been really helpful and the kids. i just miss my busy, productive life - that I felt I gave so much to our family. I think I will go paint a room - an inch at a time.

When do you see the doc about a change in drugs?

Sympathy about having to take the pred. I hope it helps a whole bunch.