well I see the rd again on tues. it has been very cold here and my joints are actually better than before? I have had hardly any pain at all lately knock on wood but my gut is acting up and I have had to cut back on the abx I hope my doc dont say ok thats it for that...
I am seeing my pcp today about my gut flare my joint s have been ok maybe a small twinge of discomfort but its so cold and a nursing student made a comment that usually if its RA you get much worse when it gets real cold I have been doing extremly better the colder it is?
who knows this could all be colitis after all? colitis can make your joint hurt I understand I have no idea anymore The RD so far thinks and feels it can not be RA because his exam he did not see any evidence at all of swelling redness heat anywhere.
all bloodwork is negative and genetic tests came back negative no ccp no to the other one also.
SO I have no idea whats happening. sometimes that can be worse but If it ends up being not arthritis I can live with that too... I just want no pain and to try and get back to a exercise routine I hope this is just some weird thing and Ill have at least 10 more years before anything bad happens to my joints hell I hope i get 15 more years or more honestly maybe they will have better treatments some day.
I will try n get my doc to let me keep taking the abx but that seemed to help so much but he's always concerned about the affect on my gut and now my guts acting up.
I had pain in my elbows, hands, knee and back and even my neck before it was awful I am glad its not like that right now and maybe its hope that this is not rA from what I understand in RA you generally get worse not go in reverse and I hope my joint pains keep going backwards to the point the pains are gone forever. Wishful thinking I know But I know how awful they can be the pain is horrendous awful like a bone broke but unrelenting. SO if I ever find out what this is I will let ya all know. I just keep hoping that maybe just maybe its not rhumatoid I still have the x rays and I dont know maybe I should press the rhummy for those MRI what do you think? That would show whats going on better than a xray I understand from reading here. Its kind of strange that the extreme cold is making me feel better than ever tho? maybe I need to move to alaska LOL kidding.
IT just seems the colder it is and the more snow we get the better my joints are doing..
we have 23 inches
north of syracuse NY.. forget it they have 120 plus inches in the last 8 days plus and they just got 30 more inches...
good grief. If 120 inches fell in NC they would be in complete panic.
Good to hear from you Mark1. Maybe the AP is working. There are a few on the RBF board that got relief very quickly and maybe you are right and it is not RA. Lets hope it isn't.
Thanks yea Bonny I sure do hope its not. RA is awful and from reading from all of you the treatment is hard I sure hope they have better solutions soon. I understand that alot of new medicines are coming in the form of a nasal spray not for RA but other conditions so maybe some of that research will get to the RA side. Its a more effective way of delivering meds they feel... time will tell.
yea we have alot but central NY is absolutly nuts in like 8 days they have a years worth of snow..... ugggg but its not even their record from what I understand they have had 437 inches of snow in a year before..... good grief I would move to san diego if 437 inches of snow fell here. but then again since the cold seems to making me feel better who knows Its hard not knowing whats wrong... plus if the docs can't find anything they may say well your imaging it... that would suck cas I definitly did not imagine awful pain.. who would.
If you are on AP, you also need to take a probiotic.
The AP did take two years for me to work, but I am painfree and alive!!
Becky
Hi mark1,yea saw the pcp he said stay on abx.. so i will.
he is testing me for some things and also will prob have to see the gi again. They say i had collengenous colitis but I was dx with uc before. My doc can be kinda slow and methodical which sucks when you do not feel good.
So I don't know Time will tell I see the rd on tues and hopefully my joint pain will continue to fade I hope I hope.
IF anyone has a magic wand and can restore people to health nows the time to break out hehehehe.
I hope the ap is working I do feel better! joint wise.
I am taking a probiotic and I think ill have to up the dose
Mark:
I had a very aggressive RA and the AP protocol has sent me through a lot of ups and downs. It isn't a quick fix but (in my opinion) it is the only fix. Stay with it!!
I can't believe the pain is gone. For me, it took two years and sometimes it was two steps forward, three back but it really did work. There are soooo many stories of people that have been on it for a long time so it is a proven course.
Rock on!!
Becky