Sorry, but i'm bummed. Just talked to my rheumy and my kidney/liver function hasn't changed since being on MTX so that's great. BUT, because they haven't changed I now have to double the dose.
I know people on here are on a lot more medications than I am so I shouldn't complain. My doctor adds them in slowly so I'm only on Prednisone and MTX for now until April, when he ads in Plequinil so i shouldn't complain. The MTX makes me puky and I hate that, so there you have it...whine whine whine............bummer.
Okay, got that out of my system. Now I'm going to go to the gym and do what I can to feel better.
I would be complaining too, MTX is a ruff med. I did not like being on it, and I did not like being on Arava either. I just did not like how they made me feel. When I was on Arava I just stopped taking it. And for the MTX I had a reaction to it, so got took off of it.
best of luck!
Sometimes, you just have to whine. It's hard when the meds don't work and you don't see the results you were expecting. Hang in there. At least he is trying to stay on top of it. Here's hoping that you do better soon. I'm sorry to hear that's what's happening to you.
Whine all you want.
You might ask your doc about lucoevorin (spelled wrong). I was about to quit MTX and my doc had me try it. It did help.
If the 20 mgs of mtx had been making a difference for me I might have stayed on it but when I quit at about 2 years, I didn't feel worse joint wise. Of course I was thrilled to have a happy gut back!
i think this is a good place to get out the whines. We all understand and you won't be spreading it around to a lot of other people!! My friends don't get this stuff....like I do. NOT. I had a step backwards today and even my dear husband suffereed (he is a saint!) but what can we do? Keep on letting the board know how you feel.....not feeling so much better today.DangOh hurts. I'm sorry you're having another bad day. It's like that sometimes. I've been at this long enough to know that some year's, some month's are better than others. You will get better. You just had that heart surgery and that's a big impact on someone that is healthy. With us, it's even bigger.Thanks for listening. I went to the gym and whacked the crap out of a racquetball. Yes, doesn't feel great on my joints but it did wonders for my head. So worth it.
So far with the double dose, I feel like someone kicked me in the stomach...hard. Oh well, not hurling yet. That's a positive!!!!
Really, thank you. My friends don't get it, my husband doesn't get it, my kids don't get it...but you all do. Thanks.
Man, that's the kind of therapy I need some days. Glad you're feeling a bit better about it. And no, family doesn't usually get, not for a long time. However, eventually, they will get better at it. My kids are now my biggest supporters. Their big hearts really make a difference. But a first, nope, no one got it. Thanks Deanna for following along with my 'story' , i'm wondering if I'll be able to drive my car and go to art class in the morning? I Hope! You are a peach. dear Debrakay, good for you to be able to hit the racquetball...any way we can keep moving is good. You'll know if the MTX socks you tomorrow, but at least you got out today.....a disappointing disease, this is!Yeah the MTX was a yuck drug, most of 'em are. I feel for ya I really do.
Yep, everyone here "gets it" thank goodness we have eachother to whine and gripe to and complain to the gazonch.WE all care adn yes we have a big impact on eachother, there are days when this board is the only thing that helps me throguh a hard day!
Whining is allowed! Judging others is not.
jode
Question...I felt as though someone punched me in the stomach, but I can deal with that, however, I woke up at 2:00 feeling like someone was standing on my back. I feel a lot of pressure there, and when I breath I can't take a full breath without pain. What's with that?I get a lot . I feel as if i cant breathe but not in my chest in my stomach as if there is a tight band round my stomach and back and it hurts like hell. Maybe its the inflamation of the muscles.I will ask my doc next time i see himDebrakay- if you are having stomach problems w/ the mtx you can always try the injection form. Much easier on the stomach. Hope the increase in mtx helps you out!
Well guess what??? I ended up spending the last 12 hours in the hospital emergency room. They said the MTX wouldn't have that side effect, so i went through a bunch of tests. First they thought it was a blood clot in the lungs, negative..then perhaps a heart attack, negative....so the bottom line; they think that I had a bunch of inflammation from the rhupus. So, morphine for the day and anti inflammatory and now I'm home. I have anti inflammatories, percocets and flexerils. Glad nothing serious was going on, but wicked scared. The pain between my shoulder blades was a 9, and i wasn't able to take more than a little breath. I also have a raspy voice.
I kind of felt like I went there for nothing, cause there isn't anything wrong with me..well, errrr, just rhupus. Weird feeling............I hope I never have that again though.
Debrakay, It doesn't sound like "nothing" to me! I'm really glad you went to the hospital. With symtoms like you had, you can't take a chance.
Especially the pain and breathing problems. That could indicate something very serious!
So glad to hear that is wasn't more serious than it was. As it is, it was serious enough! Try to rest and take care of yourself. Do you have someone around to take care of you for a while? I would hate to think you were alone and feeling so bad.
Gentle hugs,
Nini
Thanks Nini,
My husband travels and my boys are away at college. I'm very fortunate to have some great friends. My neighbor/friend took me to the hospital and stayed the 12 hours. I couldn't believe it, I tried to get her to go home. A bunch of my girlfriends have been taking turns "babysitting" me, lol.
Can't believe it still hurts like hell and i still can't take a normal breath, but the pain pills do take the edge off. I wonder how long until the inflammation moves on??? Soon I hope.
Thanks for the "gentle" hugs, lol....I do appreciate it.
DEbrakay I understand how you feel about the mtx and don't worry about the whining I just hope you feel better soon. I remember mts and it didn't get along with me either. Hurts I hope you are feeling better to. memeI am warming my Humira to take for the first time right now.
I need to stick in here that I FEEL GREAT today. Amazing RA monster. I guess the storms passed. I was down three days. Makes it a bit harder to start Humira when I feel well but here goes................ The chicken that I am has the Humira under my blanket between my legs trying to get it as warm as possible because I hear it hurts less
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