Raynaud’s | Arthritis Information

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Well I think I just had my first full blown Raynaud's episode where both of my feet and toes on a diagonal basis and my hands turned blue, my body all puffed up and red welts appeared on lower legs.  I left a message with my rheumatologist, who never returned the call, and when I called back 24 hours later, the receptionist said she erased the message after I left my name and number.  Didn't listen to my description of my symptoms and since my line was "busy" the first time she called, she didn't try again.  Doctors are morons.  It lasted about 48 hours and seems to be over.  Does this sound like Raynaud's to anyone who might have some experience?  It's pretty pitiful we have to beg for answers on a BBS Board while the MDs get rich to erase phone messages.  justsaynoemore39150.6403935185I haven't had Renaud's before but i have experienced the receptionist scenario. It's so frustrating isn't it.
Hope things are better for you now.
From my experience with Raynaud's, cold weather makes my hands and toes both numb and painful at the same time, and they turn grayish white, and then bluish purple and finally red when I soak them in warm water to warm them up. My fingers are also a lot puffier than they used to be.  I'm not sure about the welts on the lower legs, though. It's never happened to me before, and I'm the only person I know that has Raynaud's.

Linda - I have something to add to the end of that episode, which is kinda weird.  When I saw my rheumy again, he shrugged it off, said Raynauds could be caused by temperature change, don't worry about it.  Didn't care that his staff was erasing calls, which makes me believe he is the one vetting call backs.

So I did some research of Raynauds - and somewhere it said that vibrations could set it off.  Well, my hubby was in an appraisal school for four days at the bigger town about 45 miles from us, and I rented a vacation home so he wouldn't have to drive and I could rest.  It was off-season, so the price was great.  I didn't realize it from the pictures or the name of the place (The Pyramids), but there is this group of people who have built this large facility with homes build in the shape of pyramids and then rent them out when they aren't there (typical Florida stuff).  She gave us a tour and said if you stood in this one spot you could feel the energy and my hubby and I are rolling our eyes behind her back.

So, after I was there a couple of days, that's when I had this bizarre attack ... vibrations?  This disease is a Gump's box of chocolates - you never know what you will get next.  Thanks for the kind words and welcome to the Board.  Cathy

[QUOTE=justsaynoemore] ...  I didn't realize it from the pictures or the name of the place (The Pyramids), but there is this group of people who have built this large facility with homes build in the shape of pyramids ...if you stood in this one spot you could feel the energy and my hubby and I are rolling our eyes behind her back[/QUOTE]

Hi Cathy, at the risk of being labeled a hard-core wacho, or worse, allow me to say that over the years I have tried many off-beat, non-mainstream, and sometimes over-the-hill remedies. Pyramid healing was one such experiment: one that I continue to employ many years later. But then, I admit to a tendency toward the mystical and have found great benefit in the placebo effects of Dead Sea Salts and visits to a curandera

I cannot say that employing pyramidal healing techniques has either helped or hindered the biting pain of secondary Raynaulds, however there are some relaxation response techniques that can, and do, effect the duration and severity of the vasospasms.

Mind-body medicine is in its infancy in "modern" medicine, but in some cultural contexts it is medicine.

Oh, no! [/QUOTE]
 
my mom had Raynauds....  she had constant white tipped fingers..
 
YOU have scleroderma?
 
do you have CREST?

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