Hi all, I've been reading through some earlier posts and I saw so many people mentioning these emotions we all go through. Fear, a major factor at first. Anger, why me??? Frustration that one must adjust your life around this nasty stuff. Doubt, about what will work from the doctor. Bravery by those who are worse off the we are!, the little ones who have caring parents to try to sort this all out. Denial by those who just won't let this 'get them'! Empathy, was a major help for me when I first joined. You all heard my pain, you all knew how I felt. Practical help with the meds, what works to relieve stress. And, yes STRESS, we can't know what that 'monster' does to us. I can feel my body stiffen, my shoulders tighten, my hands & feet react when I start stressing over my situation (the meds don't work fast enough, I'm pressured to 'get off' the prednisone--Well, what can I do if it hurts??? Feeling a whole lot better, but still working for less stiff joints.
Yes, many times they have been compared to the stages of grief. Certainly, I have hit every stage more than once. I feel like it's some kind of rollercoaster ride and I always hated those.
But even though it is bad right now, it has to get better. Maybe it's more like driving unknown roads through the mountains at night. You have to go slow and careful because you can't tell what's around the next bend. But I love that ride because you go up and down, feel the curve of the road with your tires, listen to old songs on the radio and head for some quaint hotel down the road. And the next morning will break with beautiful light among tall pines.
You'll step outside with a hot cup of coffee in hand and watch the squirrels dancing beneath the trees. The air, cool and clean refreshes the lungs. And peace is here.
That's where I'm headed. The road may seem dark right now. But maybe the next turn brings me closer to this destination. One can only hope.
Dear Deanna, you have a wonderful attitude, approach to all of this. I know you will improve and life will look a little brighter. Hurting less