where do you all live? | Arthritis Information

Would love to meet some people that suffer from PMR/GCA

I am in the Denver area.

East Texas, Welcome and nice to meet you.

Betsy

Central Connecticut come over any time

Georgiana

Hi Georgina....I see you still suffering? Remember you and I emailed ?

Has it gotten any better since you emailed me?

marianne195239165.8115856481Just south of Vancouver. (What a rainy month we're having!)Ahhhhhhhh........BC......love that place ....heaven on earth ...at least when it ain't rainin'!

knitwit.........My husband almost got a job in Vancouver WA, close to where you are. Beautiful there but the rain/ low clouds

If y'all need a vacation ....come on down to sunny CO....I have a big house......everyone with PMR is welcome to stay Beautiful Hawaii...come on down!marianne

I do remember e-mailing you, i thought of you often, how are you doing?

I am still having a hard time with this disease, very fatigued and a lot of pain. I think the pred is helping but sometime I do wonder how I would feel without it.

Let me know how you are doing with this disease.

Georgiana

As I mentioned on some of the other threads...I am hanging on...waking up walking like a robot very stiff but in the afternoon I almost feel human and WITHOUT prednisone. I do take aleve like they are dutch licorish . Just hoping it does not come back full blast.

It sounds that you still need the prednisone. One thing (just to make you feel slightly better about the unfairness of it all.........you got this at what 65? I assume you were healthy before? which means had 64 good years? Some of us here got this illusive desease in their 50s (me at 49!!) Still......... it ain't fair is it?!

Live can throw you lots of curfballs.....a very sweet friend of mine is 54..she just had a double mastectomy and reconstructive surgery and was about to start her life again when she was told she has leukemia. Yes....life can stink!

I'm over here in Malvern, England. Not quite the Rockies, but we do have a range of hills which are quite beautiful. Warm today at 15 deg C, spring may have sprung!

Hope you are all having a good day. Sorry I haven't been around for a while - my job is taking me all over the place at the moment.

Got down to 9.5mg prednisolone and starting to stiffen up badly. Thighs are very painfull after driving 4 hours back from London.

Going to bed now as it's midnight.

Love Judi xx

Hi all

I'm from South Dakota. I'm now on .5 prednisone. Started at .20 on Dec. 18. I'm also on Methotrexate since Jan. 1. I don't know if the pain in my lower back is from PMR or not. My doctor thought not since it seems to be my sacroiliac joints. I try Tylenol and that doesn't seem to help. I also have pelvic pressure and that was diagnosed as IBS. I don't think so, I think it is related to the lower back pain since it seems to form a circle and follows the same line on my body. I'm supposed to start down in a week to 4, 3, 2, 1 -- each for two weeks. Hope it works. Mary

I'm in Lancaster in the North west of England (just on the edge of the Lake
District). We are noted for the large amount of rain we get, but it hasn't
been too bad this winter. Like Judi, above, it feels like spring today. I may
even go and sit in the sun for a bit.

have a good day.

MargaretI love Britain despite the rain...used to married to a Brit from Cheltenham in the cotswolds....gorgeous area!Mary

You sound like me with the pelvic pain and the back pain. I also think the pelvic has something to do with the back. I am considering going to a back Dr. as now my right leg and foot are going numb, and not even a darvocet is taking away the back ache. I am down to 7.5 mg of pred. had a hard time getting to that level, but I am determined to get off this drug.
My dr wants me to take methotrexate, I am not sure of what is is for and the side effects. Take care Georgiana
Marianne

You are so right about being lucky, I was a healthy person before and had a pretty good life and when I get down in the dumps I say to myself to think of the people who are so worse off than me.

I do feel for you young ones who have this disease.

Georgiana

Australia.... "Where the bloody hell are you" place. Hope you have all seen the TV add or you will think we are all mad down here. Bindy Irwin is doing a great promo for us all now!

I live in Horsham, Victoria a rural country city. We are having the worst drought for 10 years now on record.This is happening in most parts of Australia. I am not a farmer but have family and friends who are and its been really tough. In our town we are allowed to bucket water onto plants and nothing on lawns. Its all looking grim. Maybe this year the rains will come?? On a positive note we are right near the Grampians, a beautiful mountain range aprox 1/2 way between Melbourne and Adelaide.

Love to visit Austrailia one day......long flight though (not good to sit still for that long with this desease ah huh Knitwit....Newell is out where the West begins. I live in central Eastern South Dakota, so it looks more like, Minnesota, Iowa, etc. I haven't traveled to Europe, but have been to all the states including Hawaii and Alaska and most Canadian provinces. Glad I did that earlier in my live; traveling now wouldn't be a good idea with all the back pain and stiffness. Although, I don't seem to be in as bad as shape as some that visit this forum. I know it could happen any day though the way this disease works. Mary Hi Reni and Mary, Good morning. It was so nice to read about S Dakota. My husband an I for several years went to a small place near Mitchell to pheasant hunt with a group of about 12 friends. The landowners and all the people were so so nice and hospitable. We all took RVs and just had a ball. My husband dies almost 2 years ago, and I'll never get to do that again, but it was so fun. I'll probably never get to Europe either, but isn't it great to talk to people from different countries? Have a great day, girlfriends.

Hi Marianne,

It's a pleasure to meet you. I live in Port Orange Florida, which is just on the south side of Daytona Beach. I was born in Daytona and have lived here all my life. So far I haven't seen any geographic similarities in our disease processes, but I sure admire your trying and wish I could come up with something.....anything at all. This mystery disease is most unpleasant. Susan M.

I live in Australia on the Gold Coast which is located in the state of Queensland.

I was diagnosed with PMR last December at age 51.

Started on 15mg Prednisolene and now down to 8mg.
Hi,
I live in the interior of British Columbia. Sunny Okanagan
Jean

Hello: I live in Dartmouth/Halifax, Nova Scotia

rose

I live in Vermont. We are having snow flurries now. I kidded with my cousin the other day that winter was going to last till May. My kidding may come true. I'm missing my favorite time of the year spring. We will probably go from winter into summer and skip spring.

I wish I could remember what the side effects of mexothrexate (sp). My hubby is on it for his arthritis along with enbril. I do know it has made him very sensitive to the sun and bright lights. A friend of mine was also on it for RA. She was taking the shots and after a while got very bad side effects. You can google it.

I am also on prednisone. I started with 20 mg a day. I am down to 40mg on one week and 60 the next. I take it every other day. I hope to go down to 40 a week altogether. Right now i'm feeling so very tired and my muscles feel very week. do not know if this is part of this disease or not. It seems autoimmune diseases run in my family.

I would love to go to Hawaii some day. My sister went quite a few years ago and says she would love to go again. If she still was alive I would go with her, disease or not. I also would love to take a train trip into Canada. I don't know exactly where it goes into Canada but I would love it. I hear that is beautiful up there. My parents were Canadian as were my brothers.

take care everyone

Anna

Hi, Anna -

That is a very odd prednisone regimen for someone with PMR, and I wouldn't be surprised if taking it every other day is a good part of why you are feeling so tired and weak. From what I've read, with PMR you should be taking prednisone daily (in the a.m. preferably).

Do you have another doctor to get a second opinion about your dosages?

Hello to everyone,

I live in the UK in a place called Freckleton, it's halfway between Blackpool and Preston close to Lytham.

Diagnosed with PMR September 05 at 58. I stopped taking the prednisolone last February. Some good days, some bad and some really crap days but staying off the pred. I often think that the cure is worse than the disease.

I have one of those Rhuemys who says that PMR only affects the hip girdle and the shoulders, anything else and it's not PMR. Wouldn't it be nice if we could transfer our aches, pains and stiffness to them. I would just love to be able to say "there told you so". Not that I want you to think that Im in the least bit vindictive but.....

Sorry about the moan I'll shut up now and go and see how my chicken is getting on in the oven.

Love to all

Sheila

hi every one

i'm from a small town in new jersey called clayton 20 mintues outside of phila pa

i'm on 10mg of prednisone for now but not doing to well lots of pain

and i think it would be great to let people now the pain we have that said we can't be in at much pain or that ran down they just don't understand what we feel may be they would find a way to under stand if they went through it for a little while but i would not wish this on anyone

thank you for listening

vicki

Hi Sheila

I'm in Lancaster. I never got referred on to a rheumatologist, as my GP (who
has been wonderful) has dealt with it himself. Sounds like this is fortunate
for me, as I could well have ended up with the same rheumy as you, and as I
don't have much hip pain, and I do have pain in my hands, I could well have
had trouble with the diagnosis. I started in November 06, diagnosed in mid
december, started on 40mg pred, and have dropped steadily to 5mg. Still
some way to go!

best wishes

Margaret

I'm from the Gold Country- where they discovered gold during the Gold Rush. Mariposa, CA - sleepy little town 40 minutes out of Yosemite in the foothills. I look out my windows and see mountains and deer and occ mountain lions, hawks and eagles soaring- ducks in the pond. Very peaceful and meditative place- 11 acres and no neighbors within sight.

I've been at home so much with this stuff so sometimes feel lonely and isolated. Have to work at staying in touch with others.

Karen

Hi all,

I live in Sydney, Australia. Just beautiful, lots of bush, lots of water.......that is on the coast.

Zali

hi,

i live in australia also, south australia . mannum on the river murray.

Hi - I'm in Wellington NZ - just across the ditch from those two Aussies!! Jeanne, Allycat, and Zali, So nice to meet you! thanks Betsy its great to meet you alsoThanks too Betsy, good to meet you as well.

I'm Susan from Minneapolis, Minnesota.

Nice to meet all of you. Reading all of your posts really helps. it keeps me going.

Thanks

Central Connecticut here....Hi Margaret,
I will be in Lancaster, on May 3 for 5 whole days. Our daughter is in
University there. So we are very exceited about our trip. How is the weather
at this time of the year.
Take Care
JeanHi Jean

Very unpredictable. It was hot last week (shorts and short sleeves) This
week it's been raining and windy. Typical English April really - hope it's
fine when you are here, and that your journey doesn't cause you too many
problems. Lancaster and the area is lovely in good weather, but they did
some research a few years ago at the university to try and find out
reasons for students dropping out in the first week they arrived. The only
factor they could come up with was if it rained in freshers' week more
dropped out than in years when it was fine

I'm on holiday in Scotland while you are here. or we could have had a
coffee

Margaret

pmrwife....Georgiana is in Central Connecticut awell....maybe you are neighborsMargaret,
That would have been nice. My daughter had a real problem getting used to
the rain. But she stuck it out and really likes it there now.
Jean

Marianne;

We just might be! :)