how old is everyone and when diagnosed | Arthritis Information

I am 54 ,diagnosed with PMR at 49 had it for 2 years . Itwent away ......came back in 2005I'll be 57 this year - got it last year several months before I turned 56.I was 52 when diagnosed, but had symptoms for about a year before diagnosis. Had it for almost 5 years, when it finally went away. I am 57 now, hoping it never returns!!!!

Reni
Hmmm. This pretty much blows their theory of 70 being the median age for developing PMR. I do wish they were more acurate about PMR in all areas. It's like, "Well, you get it when you're seventy, but it's hot so bad, and it will mysteriously go away in a year. You'll just wake up one day in a year and it will be gone forever. And you will live happily ever after". They are so so wrong, aren't they?I am 69 was diagnosed about a year and a half ago, but I think I have had it for about 5 years, was first diagnosed with fibromyalgia, it took four doctors before I was told about pmr. I was tested for everything you can think of. Lymes, MS, Lupus, went through a lot of ct scans, MRI, spinal tap, enough blood for 100 vampires to feast on.

Still have my doubts about this ever going away, I guess because I have had it so long, I can only hope. Right now it seems to be getting worse, now I am having the shakes, is that the pred or the disease?

Love to all, without you guys I would give up...Georgiana

Funny story .....

My friend knows someone in Ireland who had it for 3 years at 86. Next time I saw her I about 1 year later (when I was in the middle of my PMR) I asked her (hopefully expecting a "oh ...he is doing much better" answer) she told me flat out ."Oh......he is dead" (NOT the answer I was hoping for!!!!!!!)

I guess 86 is a nice age to leave this world...still her answer shocked me!

(

I was diagnosed several months before my 71st birthday...what a gift that was" Enough blood for a thousand vampires"? That's too funny, Georgianna. You made me laught this morning. Thanks.I started last November, aged 59. I just retired from full time work, and had
all sorts of plans which rather got put on hold.

MargaretGuess this desease does not discriminate it crosses all borders and oceans....

I was 64. Did anyone take statins before diagnosed. I think taking Lipitor for ten years might of done it to me.

Susan C.

We are all trying to figure out why we got this and there seems to be no answer.

I did not take statins. I kept thinking it was my spraypainting that did it.

I wonder if it's not about paint. I've used lots of solvents in my life even though I just do art work. My murals are all waterbased and non toxic, but I've done oil paintings all my life using turpentine, spray lacuqer, and lacquer thinner. Also, many times if I'm doing a mural in new construction, the painters may be spraying paint or lacquer. I have one of those chemical masks, but I really do wonder about this. I wish we would hear from more people.I was 60 when it started ... nearly 61 when diagnosed with PMR and now 62. I had the flu in July 2005 and could'nt shake it off completely. By November was a real mess. So I blame the flu.. virus..and maybe having a ton of stressfull situations happening as well?

I was 47. Diagnosed last October (now 48). Have had symptoms for many years prior to diagnosis but got really bad over the last couple of years. I've been through the barrage of tests, from Lupus to MS, obstructive sleep apnoea (yes, it was a neurologist that suggested that!) to "an expression of my inner psyche due to stress" (stress!, he was enough to give anyone stress - a geriatric consultant that I was referred to (at age 43) as I had had stroke-like symptoms). Grrrrrrr!

I was 62. It started in August and I was diagnosed in December. Before that I had low back and pelvic pain for about four years. I didn't do a lot of painting, but for about 10 years I refinished a lot of furniture when I was 40 or so. MaryI was diagnosed May 2002 and I was 72. I had it for about 3 years and it was gone for just 6 months. This time it hasn't been as painful. Hi,
I was diagnosed in Oct/06 at the age of 52. Pretty sure I had it for a few
years before that.
Jean

hello, I was diagnosed Dec 05. My 55th b'day was Dec 11. think I probably had it for a couple of months....was awaiting specialist appointments. One muculo-skeletal specialist told me to go away and relax on holidays! By the time I got back in 3 weeks, I had to lift my legs in and out of the car, could not get off the toilet, do up shoes etc. Pain......saw the rheumy prednisone..what a relief. But many ups and downs, but today and for last few weeeks, i feel pretty good. I am on methotrexate 25mgm IMI weekly and prednisolone 4 1/2 mgms.

My mum had PMR at 70. Only in her upper body. it went away and I have apologised profusely of not understanding what she was going through. she looked fine!

i'm 50 in years feel's like 150 years old body

I was 28 days after my 62nd birthday- best shape of my life-run 30-40 miles a week-lifted weight 3 days a week-swam one or two miles a week- and then all hell broke loose. Now I am happy to walk on the treadmill for 3 miles and have gained 30 pounds--gotta love it

Lonna

Keeping hopeful and positive is my motto!

I am 53 and was diagnosed March 2006. The drs are so hung up on your age--being at least 50 and that is not always the case.

My symptoms began at 46 (8/14/06) diagnosis at 47 (3/15/07).I'm 63 and have had it at its worse for about six months. Didn't get treatment for a couple of those months.

I wonder if I did not have it earlier but not in the shoulders and neck at that time. I'm just not sure.

Live in N.E. where it's COLD. Brrrr.

Yes, Doc's are hung up on age. I mentioned it to mine. Mentioned I had seen it on the forums on younger people and he said I wonder who their Doctors were. In other words, he didn't agree and didn't even know them. So an alarm went off. It's the same kind of mentality that they had with people with MS. They told people who had complaints about terrible pain with their MS that it wasn't that, that all you had was numbness.

Now of course they know better but, just think of the mentality. It took thousands of patients and time to teach the Doctors. I won't put up with that. Changed back to the other Doctor in the office.

Oh dear, he'll retire someday.

~Kewanee

Kewanee

During the last couple of months, it seems to me by googling about PMR that more and more websites say that ppeople of 50 + can get it. To-day I even saw on a Finnish-Swedish website that they say "Only a few people are under 50 when they get the diagnosis" It also ends by saying that the diagnosis is good if you have a good treatment and most people get rid of it after some time. I think this was the best website I have seen, so somebody has learnt from our experience, it seems.

Ragnar

Kewanee,

As I said in a much earlier message, when I mentioned this site to my rheumatologist and commented on how many under 50 there were with PMR, he agreed, and said, "The medical community has done these people a great disservice." I'm keeping him. [QUOTE=knitwit] Kewanee,As I said in a much earlier message, when I mentioned this site to my rheumatologist and commented on how many under 50 there were with PMR, he agreed, and said, "The medical community has done these people a great disservice." I'm keeping him.Reni
[/QUOTE]

Boy you do have a keeper there. It's a start alright.
Like to see more research done.

~Kewanee [QUOTE=RDSwede]

Kewanee

Ragnar

[/QUOTE]

Ragnar what was this site? Very encouraging indeed.
I'm dicing up my Pred. again today as I just cannot stant it. I'm only a few months into this. I figure there has got to be something else.
~Kewanee

It is written in Finnish-Swedish unfortunately, and it seems to be Rheuma ABC. Here is the address

http://www.reumaliitto.fi/reuma_abc_ruotsiksi/reumataudit/po lymyalgia.htm

It seems to be written by the Finnish Rheumatologic Association and they have one Swedish and one Finnish language version. Visit http://www.reumaliitto.fi/sivut/etusivu/ which is the Swedish homepage

Ragnar

[QUOTE=RDSwede]

It is written in Finnish-Swedish unfortunately, and it seems to be Rheuma ABC. Here is the address

http://www.reumaliitto.fi/reuma_abc_ruotsiksi/reumataudit/po lymyalgia.htm

Ragnar

[/QUOTE]

Thank you Ragnar,
Maybe it will be helpful to some others. I'm going to see what I can make of it.

~Kewanee
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