Will this disease ever get cured? I know I read about someone who was completely cured who had had stem cell therapy, but 1 it seemed pretty dangerous as her immune system had to b e completely destroyed and rebuilt..... is there any other hope out there???
anna_uk
ps im out of london now for about 5 days but will check back on the board when i get back.
dEAR ANNA, well, if we all got more organized it might. What causes this? Is there a link besides our relatives had it? Inheritance is a funny thing. My grandmother had it, but not my parent on that side. Other relatives in the same family, but cousins, have it? So who gets it and who doesn't. Is it more related to life style? My husband and I have live together since our 20s (married) so we have pretty much shared every life style situation, but he doesn't have it. The inheritance theory again? My grandmother lived on a dairy farm. Was her living there a factor? Who knows. No body----yet. So, research would be very helpful. Support would be nice. Understanding would be terrific!!
sarah jane
Anna I feel your desperation I truly do. Unfortuantely there is no other alternative out there. What we can do is raise money for arthritis research. The Arthritis walk is coming up soon. I do not know if the do it in England or not. If not, you can sponsor someone from the States that is doing it. I know for sure Crunchy is.
What else we can do is be pro-active in informing people the truth about our disease. I have educated many people from my husbands work about RA that didn't have a clue. Even the young guys. Now they all ask about me and check on me to see how I am. They also always ask Danny if he needs help with anything around here since I have been on the downside for awhile.
It's actually amusing to see it click in people's head when they get it. Their entire face changes and it really is like a light bulb goes on in their brains. But we can't light any lights without the power coming from us.
I think that they will eventually cure this and other autoimmune diseases. But I don't think they are asking the patients the right questions. Also, as long as most of the research is coming from the big drug companies, it is hampered by profit margins.THERE IS NOT ONLY AN ALTERNATIVE BUT A VERY EFFECTIVE ONE
It is a fallacy to devote and place all the hope on meds even though the result is NO CURE. Many feel contented and rely on meds to take care the problem. The pain probelm at any one level can only be solved at best, temporary. Not before long more aggressive or cocktail of drugs have to be introduced on trail and error. The real problem is oneself. Everyone refuses to reflect, examine and identify the foods intake from young to present day, the environment and other factors. Often than not, it is easy to point finger at genetics rather than oneself and the foods. There must be a cause in order to get the disease
It is necessary to use same humble factor to address the root and cause of the problem - NATURAL FOODS (including herbs). The tendency is disbelivable and simply ignore humble natural foods of daily diet that has any connection. In fact, the basics are remedial factor to the disease
Why we make ourselves so complicated when simple humble natural foods can solve the problem. Concentrate on HERBS & NATURAL FOODS that can cure. It is all hard work to explore, find, use and benefit in a long run. Go for alternative that can work not those can not work or cure. Too difficult to reason out, since a patient has suffered much pain and worked the way up from low level to chronic level and spent much time of consultation with specialists to no possitive result. From the angle of proper and correct medical treatment, it is unlikely to open the mind to accept nor is there any rational to accept change. In history and modern days, nature can provide an equilibrium between the human body and the disease. Hello Gimpy, I have been
diagnosed in 2005 and am on enbrel and mtx. It is working very well
with an exception of some flares during cold and damp weather. There is no cure yet. Anyone who says there is a cure, perhaps doesn't understand or is selling something. Now remission, some people do go into remission. That is an honorable goal, one that people can and do reach. Sometimes for a couple years, sometimes for many years. Many of the latest medications, the TNF's are putting people into remission, esp if caught early. It is an exciting time for us, wonder what is next? Bee In my personal experience AP (antibiotic protocol therapy)/drugs are not going to work in a long run. As long as drugs are being used, perhaps at best temporary but later progress into chronic level and having various serious side effects that have to be addressed separately. A simple analogy about chicken flu as all chicken are injected with antibiotic in commercail chicken farms, and changes taken place in the chicken after a period of time, today virus in chicken has emerged as super flu - bird flu - no cure. ONLY simple natural foods and appropriate herbs being harmless can work effectively for chronic diseases. In a ring there is no end in medication. It is better to focus on daily diet and aware of good and bad foods. Also explore into herbs. Many prefer to 'work smart' most easy way is medication and let it be. I have been working 'hard' to abstain from 'bad' foods, taking herbs as relationship of nature and human body can do so much to repel any diseases
degenerative disease for which there is no cure, but actually, people are
being cured of it all the time. It's just incredibly hard to cure and there's
no one cure that works for everyone. Some people have been cured by
stem cell treatment, some people have been cured by bee stings. Some
people are cured by diet. Dr Gabe Mirkin cured his wife Diana with AP and
some other people on AP say they have been cured. Kokokoko has cured
himself with WILD LINGZHI. Some people have just been unexplainedly
spontaneously cured. So I've never believed it's incurable.
In these modern times though, I'm not holding my breath for someone to
come up with a medical cure-all in a hurry. The problem with
pharmaceutical company sponsored research is they don't want to find a
cure. The amount of drugs we people take is a gold mine for them.
Fortunately, most important medical discoveries happen completely by
accident, so there's still hope some uncorrupted bright medical
researcher will stumble upon something useful and share it with us, the
afflicted. Until then, I'm just going to focus on a goal of getting off meds
instead of adding more. That said, if it's a choice between meds and
letting the disease run wild, I'll take the dreaded meds.
(PS---I think the AP is working! Although it's a bit soon to really say for
sure)
Perhaps you can contact me via my email address. I am currenty drinking an all natural product which is a COX-2 inhibitor as well as inhibiting Prostaglandin at PGE2 & have had tremendous results. MTX is a drug used in chemotherapy as you might know it can destroy the liver within 6 months & people using MTX should have consistant blood tests to monitor liver function. I now have total mobility back throughout my body using this all natural product that has a broard spectrum of usages. Hear from you soon.
Yours in health,
Durocell.
As time goes by I am less comfortable with these drugs. I thought I would
be more comfortable but that hasn’t happened. Before this happened I was pretty
much a health food nut. So, I still cry why me??
Gimpy, would you mind telling me what medication you are on. Ive heard
about AP therapy but not sure how they start it. Have you been on any
of the biologics before the Ap therapy?
Maryanne
AP stands for antibiotic protocol therapy and it's a treatment which uses
low doses of antibiotics to control or eradicate your RA. The theory is that
your RA is caused by an allergic reaction to an substance that is released
by mycoplasmas, which you are infected with. A mycoplasma is a thing
that is sort of in between a bacteria and a virus, but it has no cell wall so
it's really good at hiding inside tissues. The antibiotics inhibit
mycoplasma reproduction, and also draw them out of the tissues so your
immune system can attack them. Anyway, whether that is accurate or not,
some people have found long term relief from their RA by using AP, and a
few people are able to stop therapy altogether and their RA remains in
remission until they die. You can learn a lot about the theory and
treatment by reading The New Arthritis Breakthrough by Henry Scammell
(which you can more than likely borrow from your local library at no cost
to you). Website reswources are www.roadback.org and
www.rheumaticsupport.net. They will not try to sell you anything or make
you give them money. The antibiotics used are old and the patent is
expired on them, so they are low cost. No one is making a profit by
promoting this therapy.
I am on 20mg of mtx, 400mg plaquenil, and 150mg minocin MWF. I have
only been on AP for 6 weeks, and since I'm on other DMARDS I can have
no personal testement yet as to the effectiveness of the therapy for me.
Once I have been on a full dose of AP for one month I will start to
diminish my conventional DMARDS and then I will know. I think it's
working though, because when I up the dose I experience a herheimer
reaction and also I have been keeping a chart and I am definately having
less pain, fatigue, depression, and stiffness since I started.
Like any RA therapy, it's not a one size fits all treatment and it doesn't
work for everybody. It is also not a magic bullet where you just take a pill
and you're fine. You still have to watch your diet and excercise, and also
yeast can become a problem so you have to take a lot of probiotics (I've
had to give up sugar, boohoo).
AP therapy is an appealing therapy to me and I'm trying it because:
--It has less long term side effects than conventional DMARDS
--It's the only treatment where you take less drugs over time rather than
more.
--It's a therapy that attempts to deal with the cause of RA and not just
the symptoms.
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